The Neurological Alliance’s third survey into the experiences of people across the spectrum of neurological conditions
This year’s survey received over 10,000 responses from people affected by a neurological condition, and highlights the gaps that exist for people living with a brain tumour.
We know from our daily interactions with our community that improving life at home, or in the community for people with a brain tumour and their families is vital. Good neurorehabilitation and psychological care improves quality of life and prognosis for people with a brain tumour; a better quality of life often means a better outcome.
But we know that this care is hard to get right. Despite generally having had excellent treatment, people remain feeling lost, confused and isolated. This is reinforced by this survey:
- 70% of people have experienced problems or delays in accessing the services they need to help them manage their condition
- Over 61% of people have had their contract of employment terminated because of their condition
- Only one third have been asked about their mental well-being by a healthcare professional. And that less than half feel fully involved in making choices about your care.