Fundraise at work

Without the support we receive from businesses and organisations just like yours, we simply wouldn’t be here to support those who need us most. That’s why, as a smaller charity, your support makes a big difference.

Press the buttons below to find out more

website button charity of choice
website button events campaigns
website button sponsorship
website button gifts in kind
website button payroll giving
website button ideas

Charity of choice

By adopting brainstrust as your charity of choice, you will proudly join a community that’s passionate about helping everyone affected by a brain tumour diagnosis; whoever they are, and wherever they are on their journey.

If you would like to nominate brainstrust as your charity of choice, we would be incredibly grateful. For further information or support, please don’t hesitate to get in touch with our fundraising team.

Get involved:
Offer gifts in kind
Pick a challenge that inspires you
Do your own thing
Become a sponsor
Take part in one of our national campaigns
Volunteer
Payroll Giving
Benefits:
Enjoy fun team building activities and boost morale
Achieve your CSR (Corporate Social Responsibility) objectives
Collaborate on social media projects
Increased publicity nationwide
Appear as a branded corporate supporter on our website
Receive personalised support from our dedicated fundraising team
Make a positive difference to thousands of people across the UK who hear the words “you have a brain tumour”, ensuring patients and carers can access 24/7 support from brainstrust

Events and Campaigns

We’re extremely honoured to receive support from thousands of people all over the UK who go the extra-mile to show they care. Whether you rally the troops or go it alone, do something big or make a token gesture, there’s something to suit everyone’s taste and ability… and it all makes an incredible difference.

When you sign up to any of our events or campaigns, you will receive a bespoke fundraising pack specifically designed to lend a helping hand every step of the way. Our Challenge Events Coordinator, Anna, and our Community Fundraiser, Sophie, are always a phone call or email way.

Get involved:

Events & Campaigns

Our vital work would not be possible without you. Click here to find out how you can help us through fundraising.

Sponsorship

With an array of events, campaigns and other sponsorship opportunities available, our fundraising team can mould and adapt each partnership to suit your company’s charitable goals and preferences. It’s a great way to collaborate with us whilst demonstrating your commitment to making a difference within the brain tumour community.

Sponsorship opportunities:

Events, Campaigns and Trading

Support materials & activities

  • Brain box
  • Meetups
  • Support resources

Benefits (to be specifically tailored to each sponsorship opportunity):

  • Branding included on event literature, press releases and social media promotions
  • Logo printed on event specific merchandise
  • A5 advert included within supporter welcome pack
  • Agreed number of free spaces in the event
  • A discounted ticket price for staff, family and friends
  • On-site exposure at events with branded corporate station
  • Make a positive difference to thousands of people across the UK who hear the words “you have a brain tumour”, ensuring patients and carers can access 24/7 support from brainstrust

Gifts in Kind

More than 60,000 people in the UK are living with a devastating brain tumour diagnosis. 40% of all cancers spread to the brain. It is the most the most common form of cancer in people under 40. But these facts don’t help you when you hear the words “you have a brain tumour”.

A brain tumour diagnosis brings with it the double impact of a cancer diagnosis and a progressively debilitating neurological disease. The treatment is complex and harmful; and diagnosis brings with it fear, isolation, disempowerment and a loss of control. This is where we help, and we need your support.

One of our passion projects is our brain box, sent to patients, carers and family members. Each brain box is tailored to the recipient, made up of specific resources providing essential information to help people feel less alone and less afraid in the face of a brain tumour diagnosis. With wellbeing at the heart of what we do, we also add in a few treats – a little something to brighten up their day!

With each brain box costing £40, we are extremely grateful to receive gifts in kind. Something as simple as a warm cup and tea with biscuits, or a small toy to include in a children’s brain box, truly makes the world of difference.

Ideas

If you are stuck for ideas, we’ve got you covered! Find our events here (link to event calendar page) or see how other people have done their own thing to support people with a brain tumour.

Do your own thing

Introduction

The Brain Tumour Data Dashboard lets you explore up -to-date, population level data about the brain tumours diagnosed in England between 2013 and 2015. Using the drop down menus on the left you can select different groups of patients to view in the charts below. In these charts the number of patients for every 100 diagnoses is displayed as images of people. Patients have been grouped by date of diagnosis, type of tumour, age, gender, and region in England.

For each group of patients you can explore the different routes to diagnosis, the proportion of those who received chemotherapy or radiotherapy, as well as the survival of the patients within each group. For more information about what these metrics mean please see the glossary.

How to use

  1. Select the year of diagnosis using the drop down menu.
  2. Select your patient group of interest from the four drop down menus in the following order:
    1. Tumour group
    2. Age at diagnosis
    3. Region of England
    4. Gender of patient
  3. To view a second chart to compare different groups of patients, click the ‘compare’ button.The second chart will appear below the first chart.

*Note that the tool is best used on a laptop or tablet rather than a mobile phone*

Unavailable data

Some of the data in these charts is not available.There are two main reasons for this:

  1. How the data has been grouped

If you cannot select a patient group from the drop down menus, the data is unavailable because of how the data has been organised.

Public Health England has grouped the data like a branching tree. The bottom of the tree contains all the patients with brain tumours, and then each branch divides the data by a certain characteristics, like age, or location of tumour. But the data is divided in an order, starting with location of the tumour (endocrine or brain), then by age, region, and gender. Age is at the start because it makes a bigger difference to survival rates and treatment rates than gender or region. Sometimes, after the data has been split by type of tumour and age, there is not enough data to be split again. This is because to protect patient confidentiality groups cannot contain less than 100 patients. Because some groups cannot be split further, you cannot create ‘totals’ for everyone by region or gender. For example, you cannot see results for all ages by region, or all brain tumours by gender. If these totals were calculated and released, it might be possible to identify patients, which is why Public Health England cannot release this data.

  1. Statistical reasons and data availability

If you can select a patient group from the chart menus, but the chart does not display, the data is unavailable for one of several reasons:

  1. Data is not yet available for the selected year from Public Health England.
  2. Data is not available because the data quality is too poor to release this statistic.
  3. Data is not available as the statistic is not appropriate for this group.
  4. Data is not available because the standard error of the estimate was greater than 20% and so the estimate has been supressed.

Up to date brain tumour data

Brain tumour data may influence the decisions you make about your care. Data also helps you understand the bigger picture, or landscape, in which you find yourself.

Brain tumour data and statistics influence the focus, and work of organisations like brainstrust. The information helps us to understand the scale and impact of the problems we are setting out to solve.

This tool helps you understand the landscape in which you find yourself having been diagnosed with a brain tumour. This landscape can be particularly tricky to navigate as there are many different types of brain tumour, all of which have a different impact.

The information you see represents the most up-to-date, official, population level brain tumour data available for England. Over time we will be adding to the brain tumour data available and publishing reports, with recommendations, as a result of what we learn from this data.

The data behind this content has come from Public Health England’s National Cancer Registration and Analysis Service (NCRAS) and is a direct result of the ‘Get Data Out’ project.

This project provides anonymised population level brain tumour data for public use in the form of standard output tables, accessible here: http://cancerdata.nhs.uk/standardoutput

Incidence

The number or rate (per head of population) of new cases of a disease diagnosed in a given population during a specified time period (usually a calendar year). The crude rate is the total number of cases divided by the mid-year population, usually expressed per 100,000 population.

Malignant

Malignant tumours which grow by invasion into surrounding tissues and have the ability to metastasise to distant sites

Mortality

The number or rate (per head of population) of deaths in a given population during a specified time period (usually a calendar year). The crude rate is the total number of deaths divided by the mid-year population, usually expressed per 100,000 population.

Non-malignant

Not cancerousNon-malignant tumours may grow larger but do not spread to other parts of the body.

Survival

The length of time from the date of diagnosis for a disease, such as cancer, that patients diagnosed with the disease are still alive. In a clinical trial, measuring the survival is one way to see how well a new treatment works. Also called ‘overall survival’ or ‘OS’.

Routes to Diagnosis

Under the ‘Routes to Diagnosis’ tab in the Brain Tumour Data Dashboard, you can explore the ways patients have been diagnosed with brain tumours. There are many ways, or routes, for cancers to be diagnosed in the NHS. A ‘route to diagnosis’ is the series of events between a patient and the healthcare system that leads to a diagnosis of cancer. The routes include:

  1. Two Week Wait

Patients are urgently referred by their GP for suspected cancer via the Two Week Wait system and are seen by a specialist within 2 weeks where they are diagnosed.

  1. GP referral

Diagnosis via a GP referral includes routine and urgent referrals where the patient was not referred under the Two Week Wait system.

  1. Emergency Presentation

Cancers can be diagnosed via emergency situations such as via A&E, emergency GP referral, emergency transfer or emergency admission.

  1. Outpatient

Outpatient cancer diagnoses include diagnoses via an elective route which started with an outpatient appointment that is either a self-referral or consultant to consultant referral. (It does not include those under the Two Week Wait referral system).

  1. Inpatient elective

Diagnosis via an inpatient elective route is where diagnosis occurs after the patient has been admitted into secondary care from a waiting list, or where the admission is booked or planned.

  1. Death Certificate Only

Diagnoses made by Death Certificate Only are made where there is no more information about the cancer diagnosis other than the cancer related death notifications. The date of diagnosis is the same as that of the date of death.

  1. Unknown

For some patients with a cancer diagnosis, there is no relevant data available to understand the route to diagnosis.

 

More information

If any of the statistical terms in this section of the brainstrust website are hard to understand, we recommend looking them up here:

Cancer Research UK’s Cancer Statistics Explained

http://www.cancerresearchuk.org/health-professional/cancer-statistics/cancer-stats-explained/statistics-terminology-explained#heading-Seven

If you are looking for help understanding terms relating specifically to brain tumours, and treatment, then the brainstrust glossary is available here:

https://www.brainstrust.org.uk/advice-glossary.php