Work with brainstrust

A unique charity with an inspirational story and an exciting future.

We’re here to help people live life with a brain tumour. We do this by helping people become less alone, less afraid and more in control.

It’s no small task creating a ‘brain tumour support’ sector from scratch, but we’re well on our way.

Step inside brainstrust and you’ll find talented people working together to improve the lives of everyone living with a brain tumour.

Support Specialist and Volunteer Manager – Central South England

Employment type

Flexible, home-based working

Full-time (37.5 hours per work)

Salary

£24,000 – £26,000 p/a dependent on experience

Job function

Support

Location

This is a home-based position, covering Berkshire, Dorset, Hampshire, Isle of Wight, Oxfordshire, West Sussex, Wiltshire.

The role

Working closely with the Director of Services and Head of Support, you will be trained to deliver brainstrust’s revered, impartial and impactful coaching and information service for people living with a brain tumour, and their families. You will instil empowerment and control in those living with brain cancer in Central South England, dramatically improving their wellbeing. Key to the success of your work will be the development and training of brainstrust’s network of patient support volunteers.

If successful, you will play a key role in helping us towards our vision to be readily available to as many of the 60,000 people in the UK who are living with a brain tumour, and their carers.

Responsibilities

Deliver a high quality, effective and impartial support and information service on the ground in your region.

Build a supportive network of relationships for people in your region at the crisis point of brain tumour diagnosis and beyond; for patients, families and carers.

Help to ensure that brainstrust delivers excellent, sustainable projects which contribute towards our goal of ‘instilling a sense of empowerment and control in everyone living with brain cancer’ in central south England.

Work collaboratively with local stakeholders to ensure that patient and carer information and support are available throughout the brain tumour journey.

Become first point of contact for brain tumour patients and their carers through a range of methods, to include our support line, Meetup groups, face-to-face meetings, webinars and online support groups.

Support with the production of information and resources which meet the criteria for our PIFTICK quality mark certification.

Be informed about relevant health, social care and voluntary sector developments.

Assist with the identification of regional service gaps and initiatives to create effective solutions and sustainable services which meet the needs of people affected by brain tumours who are living in central south England.

Support the delivery of brainstrust support services on a national basis, such as in the delivery of webinars.

Assist with ensuring that information about the patient experience is used to inform decision-making about local service provision for people affected by brain tumours.

Represent brainstrust in health and voluntary sector local networks as appropriate and share the learning internally and externally.

Ensure information, databases and patient records are maintained confidentially and safely in line with brainstrust‘s policies and procedures.

Support volunteers in service delivery with emphasis on user involvement.

Perform all duties in accordance with brainstrust‘s policies and procedures.

You will also:

Identify potential fundraisers in our patient and carer database.

Work with the fundraising team to ensure leads are sensitively and appropriately nurtured.

Identify potential patient and carer case studies.

Undertake other tasks as appropriate to the role.

About you – experience and capabilities

You will be an excellent communicator, face to face, phone or email. You recognise the importance of listening, and you will be the sort of person that brings focus and calm to difficult situations. Prioritising your workload will be second nature, and you will be energised and driven by a passion for learning, and making life better for those with a long term and/or serious illness.

A degree is not essential, but a caring or communication skills qualification is desirable. It is important that you have a high standard of writing, and that you are on good terms with your computer, particularly MS office, email and maybe even salesforce.com or similar case management tools.

Apply now

This is an exciting opportunity to have real influence. You can make a big impact in a small and stable (but growing) charity as we carve out a new sector for brain tumour support.

As an inclusive organisation committed to equal opportunities, we recognise the need for greater diversity in the charity sector, so we welcome and encourage candidates from a diverse range of backgrounds to apply for this role.

An informal chat about this role can be arranged by emailing jane@brainstrust.org.uk.

To apply, please email your CV and covering letter to Jane Gardiner, Head of Support at join.us@brainstrust.org.uk. The closing date for applications is 5pm on Friday 25th June, with interviews to be held on Tuesday 29th June.

To allow continual monitoring and improvement of our equality, diversity and inclusion policy, we would be grateful if you could complete this anonymous survey once you have submitted your application. Your responses are not linked to and will have no bearing on the outcome of your application.

You can read about what 24 hours of support at brainstrust looks like here.

And you can meet our team here.