Sign up to coaching with Thrive

Use our Thrive platform to get in-depth, on-going coaching support from our specialist support team. We can help you gain control of your situation to live the best life you can.

Thrive platform steps to signing up
Coaching testimonial

What is Coaching?

Coaching begins with questions; we ask you what you need and what you want to achieve. It’s about collaborating with you, listening to you actively, and helping you build up a toolkit of skills to achieve your goals. With coaching, you focus on specific, definable issues with the intention of creating practical solutions that work for you.

Why Coaching?

There is clear evidence to show that coaching works. It’s a great way to empower yourself with a practical toolkit to start moving forward with control and positivity.

Coaching is not a substitute for our 24 hour helpline. We are always going to be at the end of the phone for you when you are experiencing a crisis. Coaching is there to deepen our service, allowing you to move past the point of crisis and create a structured pathway towards feeling in control of your situation.

It is also not the same as counselling. Counselling tends to have broader focus on exploring and understanding feelings. It can be challenging, unearthing and confronting very painful feelings with a view to using this to make positive changes. Coaching is suited to more focused and specific scenarios, rather than a deep dive into broader feelings and experiences.

Why Thrive?

Thrive enables you to build up structure and direction with the support you receive. The platform allows you to choose when the sessions take place and what they focus on, this means you can see a clear pathway to reaching your goals. As a video platform, you also get to see your support specialist during the sessions, so you feel as connected as possible with your coaching journey.

Jodie Coaching Support Specialist

Meet Jodie, Support Specialist and Information Lead

As well as her role as a support specialists, Jodie also ensures that the information we use in our support enables our community to feel resourced, informed, and more in control of their diagnosis.

Knowing who to speak to and how to access support is so important when you are diagnosed with a brain tumour. The most important thing to me in my role is that people know they don’t have to face this alone.

Helen Coaching Support Specialist

Meet Helen, Director of Services and Policy

Helen has experienced cancer from a caregiver and patient perspective. This 360 degree view means that she is well placed to understand the perspectives of anyone who is living with cancer.

“My goal is for anyone who is living with a brain tumour to live their best life everyday.”

Carol

Meet Carol, Support Specialist for Scotland

Carol is passionate about coaching patients and caregivers to ensure they feel resourced and supported to make decisions that work best for them personally. She also works hard to ensure that remotely located communities have access to brainstrust services and support.

“It’s important for our community to be supported and resourced on their brain tumour journey. We have so many resources that it is good to work with patients and caregivers to ensure they can pick out which of our resources and support works best for them  so that we can offer them a bespoke support service.”

Molly

Meet Molly, Support Specialist and Children and Family Support Specialist.

Molly has a background in delivering radiotherapy treatment. She realised very quickly during her training that her passion was with providing support for patients and their loved ones. Molly’s special interest are in navigating clinical care and dealing with overwhelm or uncertainty.

“Most of you will have friends or family that you can reach out to but how many of you find yourself holding back even just slightly to avoid burdening your loved ones? I get it and that’s exactly why I’m here. I do what I do because it’s important to me that you feel there is someone that you can tell exactly how things are for you right now.”

Before you join your first session…

Before you join your first session we recommend that you take a quick look at the FAQ’s below to make sure that your browser is compatible with the Thrive coaching platform.

What browser works best with the platform?

The platform will work best if your browser is up to date and has its cache cleared regularly. Here are the minimum browser versions for the platform to work effectively:

  • Chrome – latest version
  • Firefox – latest version
  • Microsoft – latest version
  • Safari – latest version

Use the following resource to check the browser version you are using: What browser am I using?

You can also check what the latest version is of your browser here: What is the latest version of my web browser?

Please accept any pop-ups that appear about camera and microphone access when you access the site so that your sessions can run smoothly.

Find out more about coaching at brainstrust

What does coaching at brainstrust involve and how can it help you. Learn more on our coaching information page.

With Thanks to Our Partners:

The Rank Foundation
Thrive

Introduction

The Brain Tumour Data Dashboard lets you explore up -to-date, population level data about the brain tumours diagnosed in England between 2013 and 2015. Using the drop down menus on the left you can select different groups of patients to view in the charts below. In these charts the number of patients for every 100 diagnoses is displayed as images of people. Patients have been grouped by date of diagnosis, type of tumour, age, gender, and region in England.

For each group of patients you can explore the different routes to diagnosis, the proportion of those who received chemotherapy or radiotherapy, as well as the survival of the patients within each group. For more information about what these metrics mean please see the glossary.

How to use

  1. Select the year of diagnosis using the drop down menu.
  2. Select your patient group of interest from the four drop down menus in the following order:
    1. Tumour group
    2. Age at diagnosis
    3. Region of England
    4. Gender of patient
  3. To view a second chart to compare different groups of patients, click the ‘compare’ button.The second chart will appear below the first chart.

*Note that the tool is best used on a laptop or tablet rather than a mobile phone*

Unavailable data

Some of the data in these charts is not available.There are two main reasons for this:

  1. How the data has been grouped

If you cannot select a patient group from the drop down menus, the data is unavailable because of how the data has been organised.

Public Health England has grouped the data like a branching tree. The bottom of the tree contains all the patients with brain tumours, and then each branch divides the data by a certain characteristics, like age, or location of tumour. But the data is divided in an order, starting with location of the tumour (endocrine or brain), then by age, region, and gender. Age is at the start because it makes a bigger difference to survival rates and treatment rates than gender or region. Sometimes, after the data has been split by type of tumour and age, there is not enough data to be split again. This is because to protect patient confidentiality groups cannot contain less than 100 patients. Because some groups cannot be split further, you cannot create ‘totals’ for everyone by region or gender. For example, you cannot see results for all ages by region, or all brain tumours by gender. If these totals were calculated and released, it might be possible to identify patients, which is why Public Health England cannot release this data.

  1. Statistical reasons and data availability

If you can select a patient group from the chart menus, but the chart does not display, the data is unavailable for one of several reasons:

  1. Data is not yet available for the selected year from Public Health England.
  2. Data is not available because the data quality is too poor to release this statistic.
  3. Data is not available as the statistic is not appropriate for this group.
  4. Data is not available because the standard error of the estimate was greater than 20% and so the estimate has been supressed.

Up to date brain tumour data

Brain tumour data may influence the decisions you make about your care. Data also helps you understand the bigger picture, or landscape, in which you find yourself.

Brain tumour data and statistics influence the focus, and work of organisations like brainstrust. The information helps us to understand the scale and impact of the problems we are setting out to solve.

This tool helps you understand the landscape in which you find yourself having been diagnosed with a brain tumour. This landscape can be particularly tricky to navigate as there are many different types of brain tumour, all of which have a different impact.

The information you see represents the most up-to-date, official, population level brain tumour data available for England. Over time we will be adding to the brain tumour data available and publishing reports, with recommendations, as a result of what we learn from this data.

The data behind this content has come from Public Health England’s National Cancer Registration and Analysis Service (NCRAS) and is a direct result of the ‘Get Data Out’ project.

This project provides anonymised population level brain tumour data for public use in the form of standard output tables, accessible here: http://cancerdata.nhs.uk/standardoutput

Incidence

The number or rate (per head of population) of new cases of a disease diagnosed in a given population during a specified time period (usually a calendar year). The crude rate is the total number of cases divided by the mid-year population, usually expressed per 100,000 population.

Malignant

Malignant tumours which grow by invasion into surrounding tissues and have the ability to metastasise to distant sites

Mortality

The number or rate (per head of population) of deaths in a given population during a specified time period (usually a calendar year). The crude rate is the total number of deaths divided by the mid-year population, usually expressed per 100,000 population.

Non-malignant

Not cancerousNon-malignant tumours may grow larger but do not spread to other parts of the body.

Survival

The length of time from the date of diagnosis for a disease, such as cancer, that patients diagnosed with the disease are still alive. In a clinical trial, measuring the survival is one way to see how well a new treatment works. Also called ‘overall survival’ or ‘OS’.

Routes to Diagnosis

Under the ‘Routes to Diagnosis’ tab in the Brain Tumour Data Dashboard, you can explore the ways patients have been diagnosed with brain tumours. There are many ways, or routes, for cancers to be diagnosed in the NHS. A ‘route to diagnosis’ is the series of events between a patient and the healthcare system that leads to a diagnosis of cancer. The routes include:

  1. Two Week Wait

Patients are urgently referred by their GP for suspected cancer via the Two Week Wait system and are seen by a specialist within 2 weeks where they are diagnosed.

  1. GP referral

Diagnosis via a GP referral includes routine and urgent referrals where the patient was not referred under the Two Week Wait system.

  1. Emergency Presentation

Cancers can be diagnosed via emergency situations such as via A&E, emergency GP referral, emergency transfer or emergency admission.

  1. Outpatient

Outpatient cancer diagnoses include diagnoses via an elective route which started with an outpatient appointment that is either a self-referral or consultant to consultant referral. (It does not include those under the Two Week Wait referral system).

  1. Inpatient elective

Diagnosis via an inpatient elective route is where diagnosis occurs after the patient has been admitted into secondary care from a waiting list, or where the admission is booked or planned.

  1. Death Certificate Only

Diagnoses made by Death Certificate Only are made where there is no more information about the cancer diagnosis other than the cancer related death notifications. The date of diagnosis is the same as that of the date of death.

  1. Unknown

For some patients with a cancer diagnosis, there is no relevant data available to understand the route to diagnosis.

 

More information

If any of the statistical terms in this section of the brainstrust website are hard to understand, we recommend looking them up here:

Cancer Research UK’s Cancer Statistics Explained

http://www.cancerresearchuk.org/health-professional/cancer-statistics/cancer-stats-explained/statistics-terminology-explained#heading-Seven

If you are looking for help understanding terms relating specifically to brain tumours, and treatment, then the brainstrust glossary is available here:

https://www.brainstrust.org.uk/advice-glossary.php