How we are different

Through our own history, and 10 years of listening to the people we’re here for, we know what it feels like, and what challenges you face when you are diagnosed with a brain tumour.

‘We are both personal and positive, with a focus on reality and honesty.

We have direct experience of living with a brain tumour and cancer, which is why we set up brainstrust in 2006. We did not want others to feel as lost and afraid as we did. With everybody’s situation a different situation, with different priorities and pressures, it is not within our gift to tell people what to do, more to help people accept where they are and who they are, and to do what is right for them in their new normal with brain cancer.

This work, delivered by our highly-trained team, builds resilience, confidence and engagement. It means people are able to live the life they want with a brain tumour, and they are living life as a person first, patient second.’

Helen Bulbeck

Co-founder and Director of Policy and Services, brainstrust

brainstrust’s help is constructive, and personalised, made so by our coaching principles and practices.

Our help drives real, measurable, relevant change, and has meaningful impact for people with a brain tumour. We work strategically to meet real and defined need in a way that not only works, but also complements other systems and services from other providers, including charities and the NHS. Our strategy, ‘First, we are people’ aligns our work with real need, and also seamlessly with the NHS 10 year plan and its goal to deliver truly patient-centred care.

Our resources are revered nationally for their depth, insight and relevance. More than just fact sheets – we go beyond this to help people use facts and information to their own advantage, supplementing written information with coaching and workshops.

Our service is nationally accessible, but also bears regional relevance and insight. We know who can help on the ground, in your area – we build communities.

And we listen first. The brain tumour community drives our work through its input and views. Thanks to these people, we truly understand the challenges faced when you hear the words, ‘you have a brain tumour’

We are small, smart and agile. This means we are efficient and effective. We don’t aspire to be the biggest, just the best.