Our impact

Our impact –
getting it right.

It is important you know what we have achieved, as well as where we might be falling short. Your stories and feedback have always been steered our work, and we have been working hard in recent years to develop processes that make us best in field at sharing what you are helping us to achieve. That’s why we commit to sharing the annual impact of our work at brainstrust.

It is so amazing the work that you do at brainstrust and you have helped and supported my family more than you will
ever know.

What we look at

We report on people’s progress against six indictors, all of which support the four priorities in our strategy. These six indicators are:

  • engagement with care and condition
  • reduced isolation
  • engagement with communities
  • creating control
  • feeling supported
  • feeling resourced

Our goal

A world where people with a brain tumour are involved, resourced, supported, confident and connect. They are living the life they want, because they are people first and patients second.

To make this happen, we aim to:

Help people overcome fear

Help people to engage with their challenges and care

Eliminate isolation

Improve knowledge and understanding

Through our work in the following areas:

Coaching and support

Building communities

Information and education

Regional insight and relevance

Clinical engagement, development and network building

Engaging people in research

Which is only possible with:

Effective fundraising

Efficient marketing and promotion

Administrative support

Good governance

Our impact in 2024/2025

This figure shows the progress that beneficiaries who have come to us in the last year (April 1st, 2024, to March 31st, 2025) have made in the last year across the 6 key strategic indicators.

• We helped people improve the most with feeling part of a community and feeling less alone, where both saw a 42% increase.
• After that, we saw an increase of 34% with helping people to feel resourced.
• An area our focus would be helping people to feel engaged with clinical care, where we saw our smallest increase of 29%.

Annual reports and accounts

For a more detailed breakdown of our impact, you can download our most recent Trustee’s Annual report and Accounts.

Future focus

While we are still having a positive impact and improving well-being across all six indicators, we have work to do to ensure those who would benefit from our support are able to access us when they need it most. This reinforces the need for strong clinical engagement and making sure brainstrust is accessible, available and a known option for all patients at every point of their pathway.
In 2023-24, 897 people with a brain tumour and 617 caregivers contacted brainstrust directly for support for
the first time.
This total of 1,514 people accessing our coaching, events or helpline is a 17% increase.

Our impact reports

Since we embarked on our new strategy, we began to publish impact reports annually to share our progress. You can download these here.

Excellence, together

We know that partnerships and signposting create incredible impact in reach beyond our size.

Meaningful collaboration and co-creation is a key component of our approach as we work to secure the best outcomes for anyone who is living with a brain tumour. Partnerships are an essential part of how we create this impact.
Find out more about the partnerships and collaborations that are vital to our work.

Help fund our mission

0 %*

improvement in wellbeing for people with a brain tumour thanks to our work.

*See our impact report for a full break down of our impact

£ 0

by donating only £3 a month, helps us keep this information up to date.

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