Brain Tumour Know Hows

Quick guides to give you key facts about important topics to you on your brain tumour journey.

Immunotherapy: DCVax®

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Brain tumour immunotherapy, particularly DCVax®, is gaining an increasing amount of media coverage and interest. We are seeing a growing number of calls to our support helpline about DCVax® and brain tumour immunotherapy. This Know How sheds some light on the current state of play for one particular brain tumour immunotherapy trial and some recently published results.

 

Download the DCVax® Know How

Dealing with the overwhelm

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When situations change, it is hard to know which way to turn. Things that you did so easily suddenly become overwhelming. If you are a person living with a brain tumour, there may also be changes in your ability to function as you used to. Some things are within your power to change. Some are not. This Know How is designed to help you understand the difference, and prioritise the things that you can have an impact on.

Download the Overwhelm Know How

Cannabinoids cannabinoids_know_how

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This Know How is intended to bring some clarity to a confusing topic. Medicinal cannabis is a broad term for any sort of cannabis-based medicine used to relieve symptoms. There are many mixed messages about cannabis in the media and within the brain tumour community. Many cannabis based products are available to buy online, but their quality and content is not known. They may be illegal and potentially dangerous. Certain things inside cannabis contain anticancer properties, but this does not make it an anticancer treatment.

Download the Cannabinoids Know How

Returning to work

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Returning to work can be a big step in recovery. It can bring a sense of normality, stability, routine and social contact. But we also know that it can be very daunting. This Know How will help you to prepare for returning to work, understand what help is available to you.

It has been written to encompass returning to work after bereavement as well as illness.

Download the Returning to Work Know How

How to handle conflict

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When you are living with a brain tumour, emotions can run high, as people are living with stress. At times like this, we tend to go to our default behaviour – what we know – and this can make things worse. This Know How will help you understand how to handle conflict, and try and turn it into something productive.

 

Download the How to Handle Conflict Know How

How to get a second opinion

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We are often asked about second or even third opinions. Seeking more opinions has both advantages and disadvantages. This Know How has been designed to help you understand the pros and cons of a second opinion, bring some clarity as to what the options are and inform you how to go about seeking another opinion.

 

Download the How to Get a Second Opinion Know How

The choice of topics are driven by the needs of our community. So, if we have lots of questions around a focus, such as immunotherapy – hey presto, a Know How will be written.

Where a Know How involves health information, they are written following our rigorous Information Standard process, so that you know the information is trustworthy and reliable.

If you would like a Know How written, please email hello@brainstrust.org.uk. And of course, if you’d like to chat about any of these Know Hows then don’t hesitate to get in touch.