Peer support for people affected by a brain tumour

Are you wondering whether peer support may help you? We hope that by reading this you will have a clearer idea about what our peer support can offer. If you have any questions, please contact your local support specialist (details below).

Why peer support?

Here at brainstrust we don’t underestimate the value to talking to someone who has had a similar experience. Our community overwhelmingly report that a brain tumour diagnosis is frightening, isolating and bewildering. Talking to someone who has already been through the same experience can help to reduce the isolation, help to make sense of what is happening, and reduce the fear of the unknown.

How does it work?

If you would like a peer supporter to contact you, please fill in the application form. You will be contacted by your local support specialist who will ask you some questions to help match you with the right volunteer. You will then receive an email, or a letter if you prefer, letting you know the name of your peer supporter. Once you have been given the name of your peer supporter they will contact you, either by phone or by email, at a mutually agreeable time and within a week.

How you proceed with the relationship will be decided between you and your peer supporter and will depend on your circumstances. The relationship could be long-lasting and involve calls, emails and meeting face-to-face (although we ask you not to meet in each other’s homes), or it could be a one-off conversation/email exchange. It will be up to you to determine what support you require and if your support need has been met.

Support specialists will keep an overview on the relationship, checking in with both you and your peer supporter to make sure everything is going as planned and that the relationship between you is working. We will also be monitoring if the relationship is of benefit to you.

Would you like to help a patient or caregiver in a similar position to you as they face up to the challenge of a brain tumour diagnosis? Click here to find out how you can volunteer as a peer supporter.

Who are peer supporters?

Peer supporters are trained volunteers who have been through a similar experience to you – whether you are the patient or caregiver. They will provide reassuring support by answering your questions about their own experience and can also:

  • Help you to prepare for your appointments – supporting you to work out what questions you need answered;
  • point you in the direction of useful resources;
  • help you weigh up different treatment options by asking questions to help identify what’s at stake; and
  • be there to listen at a time when it’s most needed.

If you think peer support is for you, please download our application form and once completed post it to brainstrust HQ, 4 Yvery Court, Castle Road, Cowes, Isle of Wight, PO31 7QG or scan and email it to brainstrust HQ.

Did this information make you feel more resourced, more confident or more in control?