When you are diagnosed with a brain tumour, you may find yourself worrying about finances. You may be worrying about losing your job, about being on reduced pay, about running your own business and being unable to work. Or perhaps you are a caregiver, and you are not sure how you are going to manage being a caregiver and also keep working. You can suddenly find yourself in financial difficulties for any number of reasons. On this page we talk about financial support for brain tumour patients, and what you can do to lessen the impact of money worries.
On this page you will find you will find information about the support that is available, including:
Brain tumour know hows
Finance and benefits
Our finance and benefits Know How contains information about benefits that could support you and your family when one of you has a brain tumour.
This Know How provides you with a framework to help you deal with money worries.
Speak to our welfare and benefits advisor volunteer
If you find yourself needing to speak to someone about welfare benefits, then we can help. We have recently been joined by Eric, our Welfare and Benefits Advisor Volunteer. Whether you need to make an initial application, want to check that you are receiving all that you should be, or if you just don’t know where to start with it all, Eric might be able to help.
“‘Having Eric’s support in completing my PIP application was incredibly helpful and helped to take a bit of the pressure away and make this process feel more manageable. I felt very comfortable speaking to Eric and felt that he really listened to me and it very much felt like a collaborative effort between the two of us‘. Someone recently supported by Eric
If you would like to find out more and seek support, get in touch with us by emailing firstname.lastname@example.org, get in touch with your regional Support Specialist, or give us a call on 01983 292 405.
Other organisations who may be able to help
Firstly, have a look at the finance section of our brain tumour hub, where lots of useful financial services are listed. Click here to use this online tool.
Call Macmillan Support Line 0808 808 00 00. The welfare rights service is available to anyone who calls the Macmillan Support Line.
Contact your local Macmillan information and support centre. Your local information and support centre may have advisers who can help you identify the benefits you are entitled to and help you with filling in forms. Search for support in your area to find your nearest centre.
Help with the Cost of Cancer is an excellent booklet, published by Macmillan. It provides information about all of the different kinds of help available for people with cancer. Download it here.
Contact your local Maggie’s centre. Maggie’s have Benefits Advisors who can tell you what you’re entitled to, help you fill out forms and support you through the application process. Their support is free. You can find your nearest Maggie’s centre here.
Contact Citizens Advice. Citizen’s Advice offers confidential advice online, over the phone, and in person, for free through their national charity and network of local charities. Find out how to get in touch.
A Guide to Grants for Individuals in Need (Directory of Social Change ISBN: 1-903991-52-8) is a directory published each year of over 2000 charities and trusts that will provide financial help to people in need. It may be available at your local library.
Independence at Home is a Trust which will make grants towards any expense which is not covered by statutory provision and which is related to the needs of a person living at home with a disability. Find out more here.
Turn2us is a national charity providing practical help to people who are struggling financially. Their website has a benefits calculator which allows you to see what benefits you may be entitled to as well as a grant search function. Find out more here.
The Jay C Trust provide financial grants to families affected by a Glioblastoma diagnosis and living in Surrey and Birmingham. Find out more here.
If you have a health problem, such as brain cancer, you will probably find it tricky trying to get travel insurance. You should always be honest about your condition; if you aren’t and then you claim, the policy will be invalid.
There are options and you will need to set aside some time to find the best policy. You will be asked for loads of information, so put the kettle on and settle down with a cup of tea as you make the call. You will be asked the following:
- Personal information – names, ages, contact information
- Your travel plans – where, when and for how long
- Medical information – be prepared to talk about your diagnosis, treatment, medication, when you last saw your GP, symptoms
There is a comprehensive list of travel insurance providers (who we know patients have used) at www.braintumourhub.org.uk
Financial help with medication
Sometimes when living with a brain tumour you are automatically entitled to free prescriptions. And sometimes you can apply for certificates that entitle you for free medication. Some prescribed items are always free (such as medication given to hospital inpatients). You can find more information about free prescriptions here.
You can find more information about medical exemption certificates here.
Did this information make you feel more resourced, more confident or more in control?
Date published: 17-05-2009
Last edited: 31-08-2017
Due for review: 31-08-2020
This information is currently being reviewed as of Feb-2022