Tools to help you with brain tumour fatigue
We know that one of the most frequent and distressing problems described by people living with a brain tumour is fatigue. But brain tumour fatigue is different. It occurs with emotion, cognitive and behavioural problems and can be due to neurological dysfunction, treatments, mood disturbances and supportive medications.
This resource is really important as it enables patients and caregivers living with a brain tumour to understand what is meant by fatigue and to self-manage brain cancer related fatigue so that they:
- Understand and evaluate their fatigue
- Learn a new pace of living
- Take steps to mitigate the impact of fatigue
- Make the most of what they can do, rather than what they can’t.
This up to date, tangible resource clearly informs patients and their caregivers about:
- What we mean by fatigue
- Causes of fatigue
- What is different about fatigue for people living with a brain tumour
- Coping with fatigue in different contexts
- Sleep hygiene
- Self activation measures (breathing, mindfulness, activity scheduling, prioritising, acceptance commitment theory, exercise)
- Goal setting
- Fatigue diary
- Looking after someone who has fatigue
- Drug treatments for fatigue
- Who can help
It underpins and complements brainstrust’s fatigue coaching workshops which help our community to:
- Understand fatigue and how it is different for people living with a brain tumour
- Explore how being fatigued is impacting on quality of life
- Learn about effective strategies so that the person owns the fatigue, rather than it owning them.
Getting hold of the brain tumour fatigue resources
or to order a hard copy email firstname.lastname@example.org
And once you’ve read it you’ll no doubt be wanting to download some of the proformas that you need to help understand your sleep a little better. These can be accessed by clicking on the links below.
The first is the Brief Fatigue Inventory used by clinicians to assess the severity of fatigue and the impact of fatigue on your daily functioning. It takes about five minutes to complete and is usually completed with a healthcare practitioner.
The second is the fatigue diary. If filled in over time this will help you identify patterns in your sleep behaviour.