Colloid Cyst community hub
The brainstrust colloid cyst page has been my only source of support as I feel it’s been lacking from my Neurosurgeon. It’s a safe place to ask questions and get real answers from people who have or are going through this emotional rollercoaster. I want to thank brainstrust, I feel like they are the only ones who actually care.
– Colloid cyst patient and colloid cyst group attendee
When you’re diagnosed with a Colloid Cyst, it can be a struggle to find the information that you need. We also know that the word ‘cyst’ comes with its challenges; family and friends might not understand the significance of your diagnosis and you may find that you’re unsure whether you can reach out for support or know when to.
We’ve been speaking to our community to find out what resources and support they have found the most useful. On this page you will find links to information that will help you to feel less isolated, more in control and better resourced.
Colloid Cyst information sheet
This information sheet covers what a Colloid Cyst is, common symptoms, diagnosis, treatment options and support.
The information on this page has been put together by our community for people living with a Colloid Cyst. It has been designed to signpost you to support and services that other members of our community have found helpful.
A brain tumour diagnosis can leave you feeling overwhelmed, out of control and scared.
In this section you will find information, resources and links to events to help you feel more resourced, less alone and less afraid after a Colloid Cyst diagnosis.
If you or someone close to you has been diagnosed with a Colloid Cyst, it may help to know you are not alone, and you may also learn from others’ experiences.
In this section you will find stories from other Colloid Cyst patients and carers who have written about their experiences.
Coaching with brainstrust
Coaching begins with questions; we ask you what you need and what you want to achieve. It’s about collaborating with you, listening to you actively, and helping you build up a toolkit of skills to achieve your goals. With coaching, you focus on specific, definable issues with the intention of creating practical solutions that work for you.
Use our Thrive platform to get in-depth, on-going coaching support from our specialist support team. We can help you gain control of your situation to live the best life you can.
Click the button below to visit our ‘Thrive’ page and begin your coaching journey. Alternatively you can call 01983 292 405 to talk to a support specialist about how coaching could help you.
Help fund our mission
Our work leads to a 20% decrease in loneliness for people we support.
Just £5 a month could help us host our monthly Acoustic Neuroma meetup helping us connect more people with others who understand.
Did this information make you feel more resourced, more confident or more in control?
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