brainstrust events

Our Thrive with brainstrust events will help you live better with a brain tumour. Below you can find information about upcoming webinars and meetups, both online and face-to-face. Filter by Patient and Carer events to see what’s happening this month. If you have any questions about our supportive events or would like to book a coaching session, please email hello@brainstrust.org.uk

You can also browse our calendar of upcoming fundraising events and campaigns. For the latest information about races and challenges, please keep in contact with event organisers or email fundraising@brainstrust.org.uk

Running events by region – brainstrust would love you to support the charity by taking on a challenge for us.  See what events are available in your region and do something amazing today!

  • All Events
  • Fundraising Events
  • Patient & Carer Events
October 23rd, 2024

Living with metastatic brain cancer – Weds Oct 23rd 13.00

Join us for a virtual event where we share stories, support, and resources for those of you who are living with metastatic brain cancer.

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October 24th, 2024

Meningioma matters – Thurs 24th Oct 13.00

We know how hard it is living with a meningioma, whether you’re a patient or a caregiver. We’d love to hear how you are getting on, what you’re struggling with. Conversation is one of life’s sweetest joys. Good conversation is not just a fringe benefit – it’s the means by which we stay sane, contented […]

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October 28th, 2024

Managing Fatigue Workshop – Mon 28th Oct 14.00

Do you suffer with fatigue? We’ll help you to understand and manage your fatigue so that you can thrive, not just survive.  

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October 29th, 2024

Hypnotherapy for “Scanxiety” – Tues 29th Oct 14.00

Are you struggling with the overwhelming anxiety that comes with waiting for medical scan results? You’re not alone. “Scanxiety” is a profound experience shared by many, but there’s a powerful way to navigate this emotional journey. Our ground-breaking workshop will empower you with the tools to manage and transform your scan anxiety. 

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October 30th, 2024

Your space. Your voice. Time to write! Session 4 – Weds 30th Oct 14.30

New to journaling? Expert diarist? Keen to give writing a go? Just curious? Let’s get writing together. Everyone is welcome!    

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October 31st, 2024

Colloid Cyst Group – Thurs 31st Oct 13.00

We know that having a colloid cyst diagnosis can feel isolating and information is often hard to find. Come along to this relaxed virtual meetup to connect with others that really get it. There’s no agenda – grab a cuppa and pop along to say hello.  

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November 1st, 2024

Get Ready for Our Renowned Run Row Ride Event This November!

Run, row or ride….do it your way! The challenge is to complete 30 miles over 30 days, supporting the 30 people diagnosed with a brain tumour every day in the UK. For those 30 individuals, the path ahead can feel daunting and uncertain. By participating in Run Row Ride, your goal is to raise £200, […]

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November 5th, 2024

Tea and a wee blether – Tues Nov 5th 12.00

Grab a cuppa and come and join us for tea and a wee blether!! Here you’ll have the opportunity to meet, chat and connect with others in our community. It’s for anyone affected by a brain tumour diagnosis, and just like our face-to-face meetups it is a warm, welcoming safe space for you. There’s no […]

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November 6th, 2024

Living with a low grade glioma – Weds 6th Nov 16.00

Living with a low grade glioma brain tumour brings about its own challenges. Not only do you have to live with the symptoms that these tumours can bring (epilepsy has a high prevalence rate) but also the uncertain trajectory of a low grade glioma. By low grade we mean grade 2 tumours, and those that […]

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November 6th, 2024

November Art Time – Weds 6th Nov 10.30am

Take a couple of hours out of your day to discover how painting can be a wonderful mindful activity, allowing stresses and worries to fade into the background as you focus on the task at hand. Grab your art materials – pencils, paints or anything else – and join us to see how creativity can […]

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November 7th, 2024

High Grade Group – Thurs 7th Nov 13.00

This informal social group is just for people living with a high grade (3/4) tumour diagnosis and their supporters. There are no fixed conversation topics and no agendas. Just pop in to say hello and spend time in the same space as others who understand.

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November 8th, 2024

Acoustic Neuroma (Vestibular Schwannoma) Group – Fri 8th Nov 13.00

Casual and relaxed virtual meetup for those with an Acoustic Neuroma diagnosis , their carers and families.  

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November 16th, 2024

Run Alton Towers 2024

Join team brainstrust’s mission to help people with a brain tumour at the fun for all the family Run Alton Towers event.  Choose between the 5km, 10km or Half Marathon distance.  Not only do all finishers get a fantastic medal but entry to the park is also included as part of your race entry fee.  So […]

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November 22nd, 2024

Meningioma Matters – Fri 22nd Nov 13.00

Come along and have a virtual cuppa and a chat with others living with a meningioma diagnosis.

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November 24th, 2024

Hampton Court Palace 10k 2024

Join team brainstrust’s mission to help people with a brain tumour at theThe Palace 10k is a flat and picturesque course which starts and finishes inside Hampton Court Palace. Running at this historic venue offers not only a perfect opportunity to run a personal best but to visit and run inside one of the UK’s […]

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November 24th, 2024

Brainstrust Bass Belle 10 Miler

Join team brainstrust’s mission to help people with a brain tumour at the brainstrust Bass Belle 10 miler.  Back for a 10th time, this is a fast, flat, PB potential race set in the beautiful South Cambridgeshire villages of Bassingbourn, Litlington and Abington Pigotts. With only 465 places, the brainstrust Bass Belle is an intimate […]

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November 28th, 2024

Colloid Cyst group – Thurs 28th Nov 13.00

Virtual cuppa for those with a colloid cyst diagnosis and their loved ones.  

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December 5th, 2024

Santa in the City – 2024 London Santa Run

Santa run event dates: December 4th, 5th or 6th, 2024 Get the whole family in the mood for the festive period and help people living with a brain tumour. Santa in the City starts at the Millennium Bridge and takes in the South Bank, Tower of London and Tower Bridge before finishing in front of […]

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December 8th, 2024

Milton Keynes Winter Half Marathon

Join team brainstrust’s mission to help people with a brain tumour at the fantastic Milton Keynes Half Marathon.  A beautiful, scenic, single-lap, traffic-free, anti-clockwise route around the city of Milton Keynes. You will need to pinch yourself while running that you are actually in a city as you head out along the Grand Union Canal […]

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February 16th, 2025

Barcelona Half Marathon 2025

Join team brainstrust’s mission to help people with a brain tumour at the Barcelona Half Marathon. The half-marathon in Barcelona, also known as the Mitja Marató de Barcelona, is held every February. It’s the second largest running event in Barcelona next to the Marathon. The route takes the runners from the Arc de Triomf, by […]

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March 9th, 2025

Paris Half Marathon

Join team brainstrust’s mission to help people with a brain tumour at the Paris Half Marathon. The Paris Half Marathon is one of the best overseas half marathons for UK runners to take part in! The World famous fashion capital ups the ante when it comes to running for charity. A vibrant atmosphere as you […]

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March 9th, 2025

Cambridge Half Marathon 2025

Join team brainstrust as we take on the 2025 Cambridge Half Marathon for people with a brain tumour. This flat and fast course starts and finishes on Victoria Avenue in the centre of Cambridge with Midsummer Common as the event site. The route has been updated for 2025 and will now take you through the […]

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March 16th, 2025

Bath Half Marathon 2025

Join team brainstrust’s mission to help people with a brain tumour at the Bath Half Marathon. The Bath Half Marathon is a ‘big city’ race, starting and finishing in Bath city centre. This course is fast and undulating with proven potential to set a new personal best. Join 15,000 other runners on the flat, picturesque […]

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March 16th, 2025

Barcelona Marathon 2025

Join team brainstrust’s mission to help people with a brain tumour at the Barcelona Marathon. With very few hills or inclines, the course is very flat and fast, and suits first time runners, or those going for a PB!  The Barcelona Marathon is one of the most popular in Europe.  The course takes you through […]

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April 6th, 2025

London Landmarks Half Marathon 2025

London Landmarks Half places are available with team brainstrust. Event date: April 6th, 2025 Take on the 2025 London Landmarks Half Marathon with us to help people living with a brain tumour. This hugely popular half marathon takes in the iconic Westminster Bridge and Charing Cross Road, up past Leicester Square and China Town. Adding even […]

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April 6th, 2025

Brighton Marathon 2025

Join Team brainstrust as we take on the iconic Brighton Marathon for people living with a brain tumour diagnosis. The UK’s third largest marathon, not to mention most picturesque, will return on Sunday 6 April 2025! The fast and beautiful 26.2-mile course starts at Preston Park, and into Withdean before turning back down the London […]

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April 13th, 2025

Paris Marathon

Join team brainstrust’s mission to help people with a brain tumour at the world famous Paris Marathon. The Schneider Electric Marathon de Paris is now one of the biggest marathons in the world and perfectly combines a personal challenge with the chance to discover one of the world’s greatest cities. Race day will see you […]

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April 27th, 2025

Manchester Marathon 2025

Join team brainstrust’s mission to help people with a brain tumour at the fourth largest marathon in Europe. This is also the flattest major marathon with great PB potential. As with every year all finishers will get a  funky medal and other goodies!

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May 18th, 2025

Hackney Half Marathon

Join team brainstrust’s mission to help people with a brain tumour at this fast, flat, PB potential half marathon. The Hackney Half sells out every year and is renowned for its festival atmosphere and fantastic crowd support.  There will be entertainment stations along the route and a festival village for you to enjoy post race. Registration closes […]

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May 25th, 2025

Edinburgh Marathon 2025

Join team brainstrust’s mission to help people with a brain tumour at the Edinburgh Marathon. The marathon route is one of the fastest in the UK making that elusive personal best a distinct possibility! Edinburgh Marathon joined the world’s elite road races in 2012 by becoming the first marathon in Scotland to be officially recognised […]

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May 25th, 2025

Edinburgh Half Marathon 2025

Join team brainstrust’s mission to help people with a brain tumour at the Edinburgh Half Marathon 2025. Come and be part of Scotland’s BIGGEST running festival! This ever-growing festival of running is now a major event in the Scottish sporting calendar. Starting in Edinburgh, the course heads out through East Lothian offering stunning views and […]

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October 5th, 2025

Cardiff Half Marathon

Join team brainstrust’s mission to help people with a brain tumour at this well established Half Marathon which is now into its 22nd  year and part of the super half series that includes Prague, Berlin, Lisbon, Valencia. The Cardiff Half Marathon has grown into one of the largest and most exciting road races in Europe. It is […]

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Introduction

The Brain Tumour Data Dashboard lets you explore up -to-date, population level data about the brain tumours diagnosed in England between 2013 and 2015. Using the drop down menus on the left you can select different groups of patients to view in the charts below. In these charts the number of patients for every 100 diagnoses is displayed as images of people. Patients have been grouped by date of diagnosis, type of tumour, age, gender, and region in England.

For each group of patients you can explore the different routes to diagnosis, the proportion of those who received chemotherapy or radiotherapy, as well as the survival of the patients within each group. For more information about what these metrics mean please see the glossary.

How to use

  1. Select the year of diagnosis using the drop down menu.
  2. Select your patient group of interest from the four drop down menus in the following order:
    1. Tumour group
    2. Age at diagnosis
    3. Region of England
    4. Gender of patient
  3. To view a second chart to compare different groups of patients, click the ‘compare’ button.The second chart will appear below the first chart.

*Note that the tool is best used on a laptop or tablet rather than a mobile phone*

Unavailable data

Some of the data in these charts is not available.There are two main reasons for this:

  1. How the data has been grouped

If you cannot select a patient group from the drop down menus, the data is unavailable because of how the data has been organised.

Public Health England has grouped the data like a branching tree. The bottom of the tree contains all the patients with brain tumours, and then each branch divides the data by a certain characteristics, like age, or location of tumour. But the data is divided in an order, starting with location of the tumour (endocrine or brain), then by age, region, and gender. Age is at the start because it makes a bigger difference to survival rates and treatment rates than gender or region. Sometimes, after the data has been split by type of tumour and age, there is not enough data to be split again. This is because to protect patient confidentiality groups cannot contain less than 100 patients. Because some groups cannot be split further, you cannot create ‘totals’ for everyone by region or gender. For example, you cannot see results for all ages by region, or all brain tumours by gender. If these totals were calculated and released, it might be possible to identify patients, which is why Public Health England cannot release this data.

  1. Statistical reasons and data availability

If you can select a patient group from the chart menus, but the chart does not display, the data is unavailable for one of several reasons:

  1. Data is not yet available for the selected year from Public Health England.
  2. Data is not available because the data quality is too poor to release this statistic.
  3. Data is not available as the statistic is not appropriate for this group.
  4. Data is not available because the standard error of the estimate was greater than 20% and so the estimate has been supressed.

Up to date brain tumour data

Brain tumour data may influence the decisions you make about your care. Data also helps you understand the bigger picture, or landscape, in which you find yourself.

Brain tumour data and statistics influence the focus, and work of organisations like brainstrust. The information helps us to understand the scale and impact of the problems we are setting out to solve.

This tool helps you understand the landscape in which you find yourself having been diagnosed with a brain tumour. This landscape can be particularly tricky to navigate as there are many different types of brain tumour, all of which have a different impact.

The information you see represents the most up-to-date, official, population level brain tumour data available for England. Over time we will be adding to the brain tumour data available and publishing reports, with recommendations, as a result of what we learn from this data.

The data behind this content has come from Public Health England’s National Cancer Registration and Analysis Service (NCRAS) and is a direct result of the ‘Get Data Out’ project.

This project provides anonymised population level brain tumour data for public use in the form of standard output tables, accessible here: http://cancerdata.nhs.uk/standardoutput

Incidence

The number or rate (per head of population) of new cases of a disease diagnosed in a given population during a specified time period (usually a calendar year). The crude rate is the total number of cases divided by the mid-year population, usually expressed per 100,000 population.

Malignant

Malignant tumours which grow by invasion into surrounding tissues and have the ability to metastasise to distant sites

Mortality

The number or rate (per head of population) of deaths in a given population during a specified time period (usually a calendar year). The crude rate is the total number of deaths divided by the mid-year population, usually expressed per 100,000 population.

Non-malignant

Not cancerousNon-malignant tumours may grow larger but do not spread to other parts of the body.

Survival

The length of time from the date of diagnosis for a disease, such as cancer, that patients diagnosed with the disease are still alive. In a clinical trial, measuring the survival is one way to see how well a new treatment works. Also called ‘overall survival’ or ‘OS’.

Routes to Diagnosis

Under the ‘Routes to Diagnosis’ tab in the Brain Tumour Data Dashboard, you can explore the ways patients have been diagnosed with brain tumours. There are many ways, or routes, for cancers to be diagnosed in the NHS. A ‘route to diagnosis’ is the series of events between a patient and the healthcare system that leads to a diagnosis of cancer. The routes include:

  1. Two Week Wait

Patients are urgently referred by their GP for suspected cancer via the Two Week Wait system and are seen by a specialist within 2 weeks where they are diagnosed.

  1. GP referral

Diagnosis via a GP referral includes routine and urgent referrals where the patient was not referred under the Two Week Wait system.

  1. Emergency Presentation

Cancers can be diagnosed via emergency situations such as via A&E, emergency GP referral, emergency transfer or emergency admission.

  1. Outpatient

Outpatient cancer diagnoses include diagnoses via an elective route which started with an outpatient appointment that is either a self-referral or consultant to consultant referral. (It does not include those under the Two Week Wait referral system).

  1. Inpatient elective

Diagnosis via an inpatient elective route is where diagnosis occurs after the patient has been admitted into secondary care from a waiting list, or where the admission is booked or planned.

  1. Death Certificate Only

Diagnoses made by Death Certificate Only are made where there is no more information about the cancer diagnosis other than the cancer related death notifications. The date of diagnosis is the same as that of the date of death.

  1. Unknown

For some patients with a cancer diagnosis, there is no relevant data available to understand the route to diagnosis.

 

More information

If any of the statistical terms in this section of the brainstrust website are hard to understand, we recommend looking them up here:

Cancer Research UK’s Cancer Statistics Explained

http://www.cancerresearchuk.org/health-professional/cancer-statistics/cancer-stats-explained/statistics-terminology-explained#heading-Seven

If you are looking for help understanding terms relating specifically to brain tumours, and treatment, then the brainstrust glossary is available here:

https://www.brainstrust.org.uk/advice-glossary.php