The brain box

The brainstrust brain box – the ‘must have’ support toolkit for people with a new brain tumour diagnosis and their carers.

We appreciate how difficult things can be once you are diagnosed with a brain tumour; the ‘4.00am moments’, the travelling to and from appointments, the stream of questions that pop into your head, trying to remember the jobs of all the people that you’ll meet on your journey, and knowing who to turn to and when. A juggling act that you don’t need when you just want to focus your energy on feeling better.

So to assist brain tumour patients, we’ve launched this unique invaluable aid to keeping on top of things.

The brainstrust tool-box shaped ‘brain box’ contains a number of essential things to support and provide information for brain tumour patients and their carers.

COVID-19 and postal delays

We are still sending out brain boxes, but please bear with us as there might be a slight delay to postage because of COVID-19. Please fill out the form and we’ll get a brain box to you as quickly as we can!

Many of our resources are downloadable online and you can access them here.

If you are a brain tumour patient, or if you are looking after someone who has a brain tumour, the box won’t cost you a penny. We just need to know a little bit more information about you before we send you your box. Please complete to the short form below to request your brain box:

    Please let us know which resources are the most important for you to receive:

    The Brain Tumour Patient Guides

    The 2018 brain tumour patient guide is freely available to brain tumour patients and doctors and nurses working in relevant specialties. It explains the care you should be getting, as suggested by the latest NICE guidelines.


    Just select which ones you would like - they won't all be relevant for you.
    1: Introduction2: Diagnosis3: Receiving diagnosis after biopsy4: Treatment5: Follow-up6: Survivorship7: Palliative Care8: End of life care

    My Radiotherapy Book
    We know how confusing a brain tumour diagnosis and the treatments can be. This resource will help you understand, and take control, if you are facing radiotherapy.


    The Fatigue Toolkit
    This resource is really important as it enables patients and caregivers living with a brain tumour to understand what is meant by fatigue and to self-manage brain cancer related fatigue.

    How to Have a Difficult Conversation Guide
    We know how hard it is, explaining brain cancer, and having to hold those difficult conversations. This guide helps families to approach these moments. It features tips that will help you get your thoughts together and clarify how you feel about what it is you're facing, so that you can hold better conversations and feel more in control.


    Behaviour and personality change

    This resource will help you understand behaviour and personality change, the causes, and how it is manifested. It will also enable you to explore strategies to help you cope with these changes.


    Proton Beam Therapy Guides

    Written alongside esteemed clinicians, scientists and expert patient and carers, this guide is invaluable to you if you want to understand more about Proton Beam Therapy. These booklets tackle the popular questions we hear, dispel many of the myths that have developed in recent years and help you make informed decisions about Proton Beam Therapy with the most balanced and up to date information to hand.


    Just select which ones you would like - they won't all be relevant for you.
    1: PBT Myths2: Understanding the decision process3: Understanding the pathway4: Should I have PBT?5: Where should I have PBT?6: What to expect7: How it works8: PBT clinical research9: Glossary

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    To read brainstrust’s privacy policy, please click here.

    Did this information make you feel more resourced, more confident or more in control?