Downloads & Resources

brainstrust resources are designed to help you feel more informed, in control and engaged with your care, no matter where you are on your brain tumour journey. Here you’ll find links to download our resources and request a brain box. If you’d like hard copies rather than downloadable versions, please email

The brain box

The brainstrust brain box is a must have support toolkit for people with a new brain tumour diagnosis and their caregivers. Fully customisable, with resources relevant to your unique situation, the brain box also comes with treats like teabags and self-care items to remind you to take time to look after yourself.

Find out more and get your box

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The brain tumour patient guide

The 2018 brain tumour patient guide is freely available to brain tumour patients and doctors and nurses working in relevant specialties. It explains the care you should be getting, as suggested by the latest NICE guidelines.

Find out more and download the guides

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My Radiotherapy Book

If radiotherapy is a potential treatment option for you, or you have recently had radiotherapy, then this resource will help you understand the treatment and feel more in control.

Download My Radiotherapy Book

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Behaviour and Personality Change (BPC)

Up to 60% of people diagnosed with a brain tumour experience BPC, and until now there has little support available for this.

Click here to download the Behaviour and Personality Change resource, and download a mood journal template here.

The Little White Book

A comprehensive, easy to navigate compendium of UK brain tumour support resources. You can access an online copy through our online catalogue with

We also produce regional editions of ‘The Little White Book’, signposting all of the best support available to you, wherever you might live. We currently have guides for Sheffield, Merseyside, Greater London, South East Scotland, Glasgow, Greater Manchester, Tees Valley and the surrounding areas, Aberdeen, the Highlands and surrounding areas, and the North West (little brainstrust).

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Brain Tumour Know Hows

When it comes to brain tumours, accessing simple, factual information can be difficult. There is a great deal of conflicting information available that can leave you feeling confused and overwhelmed. Brain Tumour Know Hows help you access concise, clear and impartial information about relevant topics like Cannabinoids and the Ketogenic diet.

Find all of our Know Hows here

A guide for talking about advanced cancer

Not all brain tumours recur, but the highly aggressive ones do. When this happens, there are still options on the table, but it is an entirely different situation from an initial diagnosis – not least because when a brain tumour comes back it is not the same tumour that first presented.

So it is important that you have the right kinds of conversations when this happens, so that you can decide what is important to you and your loved ones. You know the future is uncertain and you aren’t reassured by hearing that, “you’ll beat this.”

Click here to download the Advanced Cancer Coalition’s guide to talking about advanced cancer.

Proton Beam Therapy (PBT) Guides

proton beam covers september 2020 scaledIt is important to have independent, factual information available on PBT and what it offers. It is also important to you have a balanced view, which puts Proton Beam Therapy in context with respect to other treatments. This is crucial for people with a brain tumour (adults as well as children), their caregivers and stakeholders in the public and the private sectors.

Find out more and download the PBT guides here.

The Fatigue Toolkit

This resource is really important as it enables patients and caregivers living with a brain tumour to understand what is meant by fatigue and to self-manage brain cancer related fatigue.

Find out more and download here

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Tips from a brain tumour patient’s caregiver

In this resource, a couple share their tips for when someone you love has been diagnosed with a brain tumour: including questions it’s OK to ask, the best ways to offer support, and lots more.

Download your copy here.

Who’s Who in Your Clinical Team

brainstrust has developed this resource with the National Hospital for Neurology and Neurosurgery, to help you navigate your journey, understanding who makes up your team and what roles they have when it comes to your treatment and care.

Download it now

How to Have a Difficult Conversation Guide

We know how hard it is, explaining brain cancer, and having to hold those difficult conversations.

This guide helps families with approaching these moments. It features tips that will help you can get your thoughts together and clarify how you feel about what it is you’re facing, so that you can hold better conversations and feel more in control.

Download the guide now.

Did this information make you feel more resourced, more confident or more in control?

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