Downloads and resources
brainstrust resources are designed to help you feel more informed, in control and engaged with your care, no matter where you are on your brain tumour journey. Here you’ll find links to download our resources and request a brain box. If you’d like hard copies rather than downloadable versions, please email email@example.com
The brain box
The brainstrust brain box is a must have support toolkit for people with a new brain tumour diagnosis and their caregivers. Fully customisable, with resources relevant to your unique situation, the brain box also comes with treats like teabags and self-care items to remind you to take time to look after yourself.
Feel confident, not confused
When you or someone you love has a brain tumour, the fabric of your life is torn apart. It can feel like chaos rules your life and you are out of control. These resources will equip you with the information you need to feel confident and in control.
Living with a brain tumour is complex. This is never more so than when you are a teenager or young adult who has been diagnosed with a brain tumour. This booklet should help you understand the range of radiotherapy treatments that are currently available and why one might be more appropriate for you over another.
Feel on top of things, not overwhelmed
A brain tumour diagnosis can make you feel as if your life is spiralling out of control. These resources will help equip you with the skills and tools to break down the overwhelm, so you can start taking control and making the decisions that are best for you.
Up to 60% of people diagnosed with a brain tumour experience BPC, and until now there has little support available for this.
Feel prepared, not panicked
A brain tumour diagnosis throws you into a world of unknowns. Our resources can help you navigate the through the panic to a place where you have the information you need to take control of your brain tumour journey. The resources in this section will help you navigate through the panic and feel prepared and equipped to face the road ahead.
This resource has been produced with people who have the lived experience of what it is like to care for someone with a brain tumour at end-of-life, with leading consultants in palliative care and clinical nurse specialists who are hospice-based. Having as much information to hand as possible allows you to be in control, certain that you are making the right decisions for those concerned.
This leaflet will help you to cope with the fear and uncertainty of a suspected brain tumour. It explains what you can expect to happen next, so you can feel more informed and more in control after your scans.
We know how hard it is, explaining brain cancer, and having to hold those difficult conversations. This guide helps families with approaching these moments, so that you can hold better conversations and feel more in control.
We also have a resource tailored to family members who need to talk to children about their brain surgery. You can download the resource and find out how to use it here.
When a brain tumour recurs it is an entirely different situation from an initial diagnosis. So it is important that you have the right kinds of conversations when this happens, so that you can decide what is important to you and your loved ones.
Help fund our mission
These resources are driving a 20%* improvement in wellbeing for people living with a brain tumour.
Help us get these tools into the hands of more people every day with a donation of £5 each month.
*To see a full breakdown of our impact data, see our impact report.
Did this information make you feel more resourced, more confident or more in control?
Our health information is designed to help you feel better resources, more confident and more in control when you are living with a brain tumour diagnosis and it is important to make sure that the resources continue to do this. To help us make sure that the information we produce is as useful as it can be, it would be great if you could take a few minutes to complete our short feedback form.
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Coaching with brainstrust
Coaching with one of our support specialists can help you understand what’s important to you. We listen and ask questions, collaborating with you to create a plan to reach specific goals.