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Jodie is one of our excellent coaches, having completed her ILM level 5 coaching training. Coaching at brainstrust is creating the most impact in driving engagement with care and building communities for people with a brain tumour, with people reporting 32% improvement in feeling part of a community, and 28% increase in engagement with clinical care.

 Name: Jodie Eveleigh

Role: Support Specialist and Volunteer Manager for the Midlands.  

Tell us a bit about your role and the type of things you do day-t0-day:

My role is very varied but it is all about supporting people at whatever stage they are in their brain tumour journey. This can be by answering specific questions, signposting to our resources or other services that may support them, or by being a listening and supportive ear to people in need. I also spend time travelling around the region organising Meetups and events, or visiting other groups to talk about the work of brainstrust.

What are your favourite things about your role?

One of my favourite things about my role is building relationships with the people we support. People can get in touch with us at any stage, whether that be at the point of diagnosis or a couple of years down the line, and I always feel quite honoured to be able to have the personalised contact with them. That is at the heart of what brainstrust does.

I also really enjoy meeting people in our community and seeing them build relationships and connections at our events. It is encouraging to see people being able to share their experiences with others who understand what they are going through.

What are the biggest challenges of your role?

I always want to do more and if I could make sure that everyone knew about brainstrust at the point of diagnosis then I would. Reaching out to hospitals and other support services is a key part of my role as it means that people can get the support that they need at the earliest opportunity.

What are your hopes and plans for your community?

I want to continue making sure that as many people as possible have access to our support. When faced with a brain tumour diagnosis knowing where to turn to for help can often be challenging so I want to keep spreading the word about brainstrust so people know we are here.

I also want to make sure people have access to a varied calendar of events across the Midlands region, which will give them not only the opportunity to meet others but also to learn about different topics such as fatigue and nutrition, that may help them throughout their journey.

What led you to apply for the role of support specialist at brainstrust?

My family experienced the impact of brainstrust‘s support services when my sister was diagnosed with a pilocytic astrocytoma aged 18. On hearing this news, we didn’t know where to turn, until my mum discovered a leaflet about brainstrust.

As an older sister I was struggling to process what was happening so I threw myself into finding out more about the charity and getting involved as a volunteer. As a family we held a number of fundraising events over the years and my sister even climbed Mount Snowdon with a group of friends after her surgery.

The support we received from brainstrust helped us to deal with the uncertainty that came with my sister’s brain tumour diagnosis. It meant a lot to know that there were people out there who understood.

Living with a brain tumour diagnosis is terrifying for everyone involved. Whether it is yourself or you are a parent, sibling, grandparent or friend, I aim to support people as much as brainstrust supported us.

What is something you’re proud of?

One thing that I am proud of has to be the people I have met within our community who do all the amazing things they do whilst going through this journey. It makes me feel incredibly humbled to hear about the different challenges and fundraising activities that people do for us as a direct result of the support they have received.

If you live in the Midlands and would like to get in touch with Jodie, please email jodie@brainstrust.org.uk