Coaching can help you live better when you, or someone you love, has a brain tumour.
Patients with chronic conditions like brain cancer live with their condition 24/7, and only spend a fraction of their time visiting clinical experts: the rest of the time, they have to manage their condition themselves. Put simply, most of the time you are a person, not a patient. And there are countless decisions related to your condition that you alone must make.
When we are no longer able to change a situation, we are challenged to change ourselves. You are the person who is ultimately going to have the greatest impact on your life.
Through coaching, you can learn how to face challenges, develop resilience and utilise resources to help you live better with a brain tumour.
How does coaching work at brainstrust?
Coaching is in our DNA; it informs the way that we run our Thrive events, it leads the conversations we have on our phone line and by email, and is at the heart of our support at brainstrust. Coaching can help you realise what means the most to you and guide you as you produce a plan to reach your specific goals. This means that you can make your own informed decisions about living with a brain tumour you are the one in control.
Our coaching relationships are built on collaboration, between you – the brain tumour patient or caregiver – and one of our trained support specialists. The role of our coaches is to listen intently, and ask key questions that will help you to understand and prioritise what matters most to you. We focus on achieving immediate goals which relate to specific areas. For example, weighing up the pros and cons of having a particular treatment, or overcoming a problem with caring. Coaching will help you to make courageous decisions about your life, focusing on the future to achieve a better quality of life.
“Thank you so, so much for your help and advice the other day, I think the best thing is I feel more in control now as I have a plan of action as such, whilst before I was floundering, and I don’t have any support network to help me with things … thank you for that.” Patient
“Today I am taking your very good advice – I have written down my priorities and I am going to sort them out one by one. That might sound very black and white but my goodness it’s a good feeling that it just might get me somewhere. What you have said to me is brilliant! I know what I am doing.” Carer
Take the first step – get in touch
Some people find regular coaching conversations to be the most valuable, whereas others prefer them on an ad hoc basis – perhaps before a scan, or when a new issue arises that needs careful consideration. If you’d like to see how coaching can help you to live better with a brain tumour, email us at firstname.lastname@example.org
 National Voices (2014) Supporting self-management: Summarising evidence from systematic reviews