Living with recurrent medulloblastoma can be an incredibly challenging journey, particularly when facing limited treatment options. However, a recent breakthrough offers hope for patients in this [...]
Enhance your portfolio
We couldn’t do what we do without the support of you – the clinicians who work so hard to make life better for people who are living with a brain tumour. We’re none of us as smart as all of us – and so we want to make sure we are working with clinicians as much as possible. If you’d like to get closer to our brain tumour community read on – we’d be delighted to hear from you.
Coaching is at the heart of the service we provide at brainstrust. It provides patients and their caregivers a space to come to their own conclusions and make decisions about their care that are right for them. Patients and caregivers who are resilient, resourced and who ‘own’ the diagnosis have better consultations with you, have better outcomes and are more comfortable living with uncertainty. Their inner voice is constructive – they may even share insights with you which are surprising.
Review resources for people with a brain tumour
As well as working with the people we support, we build close relationships with healthcare professionals and scientific advisers from across the UK to ensure that we have the perspective needed to tackle the complex challenges that the brain tumour community face.
I was familiar with brainstrust as they had visited our department and shown me the support they offer patients. I was happy to assist when they asked me to review a paediatric leaflet. I was pleased I could directly benefit patients and families from around the country. Explaining procedures and treatments like radiotherapy to children in a way they can understand will reduce their anxiety and improve their overall experience. When I saw the end result I was delighted to be a small part of such a brilliant book that will help so many children.
Paediatric and Teenage Young Adult Radiographer
An integral part of the work that healthcare professionals assist us with is reviewing our resources. This helps us ensure that our information is expertly accurate and relevant. If this is something you would like to get involved in, please email email@example.com
Speak at our events
Our Thrive events provide a deep dive into different aspects of life with a brain tumour, so that attendees feel more engaged with their care and condition, more resourced to deal with the issues they face and less uncertain and fearful about the future. For relevant topics, a key part of these events involves giving attendees opportunities to ask questions and hear directly from a clinician. If there is a topic you would like to discuss at one of our events, please get in touch by emailing firstname.lastname@example.org
Hosting these webinars was a fantastic opportunity to be able to engage the brain tumour community in conversation; debunking myths and providing appropriate support and accurate information. Being able to host these sessions online means we are able to reach out to a much wider audience. My sessions were well attended and well received and I have been able to collate this feedback for my CPD portfolio.
Rhona Watson, Consultant Therapeutic Radiographer
Topics covered in the past include:
- Diet and nutrition
- Developments in neurosurgery
- The latest neuro-oncology clinical trials
Visit our event calendar to see what we have coming up.