In Events, Fundraising, Fundraising News, Uncategorized
brainstrust teafest a4 poster 2019 2 1

TEAFEST. IT’S BACK.
But this year, there’s strong competition!

G&T Fest is the new kid on the block. Running alongside TEAFEST, it’s up to you to pick your drink of choice to help people living with a brain tumour.

Whether it’s a cuppa or a G&T, having a drink with friends is one of life’s simple pleasures. And it is often taken for granted.

A brain tumour diagnosis is isolating: loss of mobility, fatigue and communication challenges are just some of the things that can make life with a brain tumour lonely.

So from Monday 18 – Sunday 24 February, whether it’s for a cuppa or a G&T, join us to let the 60,000 people living with a brain tumour know they’re not alone.

Tea or Gin – the choice is yours!

TEAFEST is the annual fundraising and awareness campaign, where you have a cuppa and cake with friends, family and colleagues to drive the conversation on brain tumours.

However, we know that tea isn’t everyone’s drink of choice.

That’s why for 2019, we’re launching G&T Fest. With Gin now the nation’s favourite alcoholic drink, we know that lots of people prefer to meet up for a Gin and Tonic rather than a cup of tea. If you’re one of those people, you can sign up today and request your G&T Fest welcome pack.

Get your free welcome pack today

Whether it’s TEAFEST or G&T Fest which tickles your fancy, signing up is easy. Just fill in the form below, and tick which campaign you would like to support. We’ll send you the right welcome pack, full of fundraising and awareness tools that you need to make your event a huge success.

Encourage as many of your friends, family and colleagues to do likewise, and from 18-24 February, join us to see which campaign raises the most money to support people living with a brain tumour.

Donate

If you’d like to create a fundraising page for your TEAFEST or G&T Fest event, you can do so here.

If you’d like to make a donation, please go to brainstrust.org.uk/donate, call us on 01983 213 572 or text GTEA19 £3 to 70070. Your donations will help people living with a brain tumour feel less isolated and better supported.

Get kitted out for your event

No TEAFEST event is complete without the the TEAFEST mug, tea towel and tea coasters. You can order these by visiting our online shop. We also have a variety of merchandise, such as wristbands and pin badges, ready for you to buy and sell at your event, so that everyone can show their support to people living with a brain tumour.

Register for your fundraising pack today!

Each pack has stickers, posters, a collection box and inspiring resources to make raising awareness and vital funds for brainstrust easier than ever. So what will it be – TEAFEST or G&T Fest? Choose how you will take yours from 18-24 February, and show the 60,000 people living with a brain tumour that they’re not alone.







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Your personal data is very important to us because it allows us to help people living with a brain tumour. Your details will only be used by brainstrust in adherence to our privacy policy. We will never give your information to other organisations without first seeking your specific consent. You can manage your mailing preferences at any time on this page

Got a question?

If you’re having problems registering for your welcome pack, or have a question about TEAFEST or G&T Fest, then please get in touch. Call us on 01983 213 576 or email ryan@brainstrust.org.uk.

Whether you’ve chosen TEAFEST or G&T Fest, we’ve created the perfect images for you to use on social media pages. Download the relevant profile picture and cover photo, share on Facebook, Twitter and Instagram, and encourage your friends and followers to do the same!

TEAFEST profile picture

TEAFEST cover photo

G&T Fest profile picture

G&T Fest cover photo

TEAFEST or G&T Fest email signature

As part of the first ever G&T Fest, we are delighted to be working alongside the following organisations:

Tailors Gin

Two Birds Spirits

Silent Pool Distillers

Pickering’s Gin

 

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Tips to help you this festive seasonBrain News, Campaign News

Introduction

The Brain Tumour Data Dashboard lets you explore up -to-date, population level data about the brain tumours diagnosed in England between 2013 and 2015. Using the drop down menus on the left you can select different groups of patients to view in the charts below. In these charts the number of patients for every 100 diagnoses is displayed as images of people. Patients have been grouped by date of diagnosis, type of tumour, age, gender, and region in England.

For each group of patients you can explore the different routes to diagnosis, the proportion of those who received chemotherapy or radiotherapy, as well as the survival of the patients within each group. For more information about what these metrics mean please see the glossary.

How to use

  1. Select the year of diagnosis using the drop down menu.
  2. Select your patient group of interest from the four drop down menus in the following order:
    1. Tumour group
    2. Age at diagnosis
    3. Region of England
    4. Gender of patient
  3. To view a second chart to compare different groups of patients, click the ‘compare’ button.The second chart will appear below the first chart.

*Note that the tool is best used on a laptop or tablet rather than a mobile phone*

Unavailable data

Some of the data in these charts is not available.There are two main reasons for this:

  1. How the data has been grouped

If you cannot select a patient group from the drop down menus, the data is unavailable because of how the data has been organised.

Public Health England has grouped the data like a branching tree. The bottom of the tree contains all the patients with brain tumours, and then each branch divides the data by a certain characteristics, like age, or location of tumour. But the data is divided in an order, starting with location of the tumour (endocrine or brain), then by age, region, and gender. Age is at the start because it makes a bigger difference to survival rates and treatment rates than gender or region. Sometimes, after the data has been split by type of tumour and age, there is not enough data to be split again. This is because to protect patient confidentiality groups cannot contain less than 100 patients. Because some groups cannot be split further, you cannot create ‘totals’ for everyone by region or gender. For example, you cannot see results for all ages by region, or all brain tumours by gender. If these totals were calculated and released, it might be possible to identify patients, which is why Public Health England cannot release this data.

  1. Statistical reasons and data availability

If you can select a patient group from the chart menus, but the chart does not display, the data is unavailable for one of several reasons:

  1. Data is not yet available for the selected year from Public Health England.
  2. Data is not available because the data quality is too poor to release this statistic.
  3. Data is not available as the statistic is not appropriate for this group.
  4. Data is not available because the standard error of the estimate was greater than 20% and so the estimate has been supressed.

Up to date brain tumour data

Brain tumour data may influence the decisions you make about your care. Data also helps you understand the bigger picture, or landscape, in which you find yourself.

Brain tumour data and statistics influence the focus, and work of organisations like brainstrust. The information helps us to understand the scale and impact of the problems we are setting out to solve.

This tool helps you understand the landscape in which you find yourself having been diagnosed with a brain tumour. This landscape can be particularly tricky to navigate as there are many different types of brain tumour, all of which have a different impact.

The information you see represents the most up-to-date, official, population level brain tumour data available for England. Over time we will be adding to the brain tumour data available and publishing reports, with recommendations, as a result of what we learn from this data.

The data behind this content has come from Public Health England’s National Cancer Registration and Analysis Service (NCRAS) and is a direct result of the ‘Get Data Out’ project.

This project provides anonymised population level brain tumour data for public use in the form of standard output tables, accessible here: http://cancerdata.nhs.uk/standardoutput

Incidence

The number or rate (per head of population) of new cases of a disease diagnosed in a given population during a specified time period (usually a calendar year). The crude rate is the total number of cases divided by the mid-year population, usually expressed per 100,000 population.

Malignant

Malignant tumours which grow by invasion into surrounding tissues and have the ability to metastasise to distant sites

Mortality

The number or rate (per head of population) of deaths in a given population during a specified time period (usually a calendar year). The crude rate is the total number of deaths divided by the mid-year population, usually expressed per 100,000 population.

Non-malignant

Not cancerous. Non-malignant tumours may grow larger but do not spread to other parts of the body.

Survival

The length of time from the date of diagnosis for a disease, such as cancer, that patients diagnosed with the disease are still alive. In a clinical trial, measuring the survival is one way to see how well a new treatment works. Also called ‘overall survival’ or ‘OS’.

Routes to Diagnosis

Under the ‘Routes to Diagnosis’ tab in the Brain Tumour Data Dashboard, you can explore the ways patients have been diagnosed with brain tumours. There are many ways, or routes, for cancers to be diagnosed in the NHS. A ‘route to diagnosis’ is the series of events between a patient and the healthcare system that leads to a diagnosis of cancer. The routes include:

  1. Two Week Wait

Patients are urgently referred by their GP for suspected cancer via the Two Week Wait system and are seen by a specialist within 2 weeks where they are diagnosed.

  1. GP referral

Diagnosis via a GP referral includes routine and urgent referrals where the patient was not referred under the Two Week Wait system.

  1. Emergency Presentation

Cancers can be diagnosed via emergency situations such as via A&E, emergency GP referral, emergency transfer or emergency admission.

  1. Outpatient

Outpatient cancer diagnoses include diagnoses via an elective route which started with an outpatient appointment that is either a self-referral or consultant to consultant referral. (It does not include those under the Two Week Wait referral system).

  1. Inpatient elective

Diagnosis via an inpatient elective route is where diagnosis occurs after the patient has been admitted into secondary care from a waiting list, or where the admission is booked or planned.

  1. Death Certificate Only

Diagnoses made by Death Certificate Only are made where there is no more information about the cancer diagnosis other than the cancer related death notifications. The date of diagnosis is the same as that of the date of death.

  1. Unknown

For some patients with a cancer diagnosis, there is no relevant data available to understand the route to diagnosis.

 

More information

If any of the statistical terms in this section of the brainstrust website are hard to understand, we recommend looking them up here:

Cancer Research UK’s Cancer Statistics Explained

http://www.cancerresearchuk.org/health-professional/cancer-statistics/cancer-stats-explained/statistics-terminology-explained#heading-Seven

If you are looking for help understanding terms relating specifically to brain tumours, and treatment, then the brainstrust glossary is available here:

https://www.brainstrust.org.uk/advice-glossary.php