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An easy to use database of brain tumour support services, and brain tumour clinical trials. Find out what is available to you, on your doorstep and beyond.
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New routes to diagnosis data suggests quality of life improvements for people with a brain tumour

New data shows that the proportion of people receiving a brain tumour diagnosis following emergency admission is decreasing, whilst diagnosis following a GP referral is up.

 

Charts - Health Data Insight CIC, 17th January 2018, http://data.healthdatainsight.org.uk/apps/routes_to_diagnosis/
 Data - Public Health England's National Cancer Registration and Analysis Service (NCRAS)
 

 

This is encouraging news, as whilst this may not have any impact on survival (in fact it may create a l


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Incubator day in Leeds a success

On Friday 8th December 2017, brainstrust and the NCRI (National Cancer Research institute) held an Incubator day aimed at designing a clinical trial for early diagnosis in patients who are diagnosed with a brain tumour.

 

The incubator day was a interactive workshop where primary care specialists, neurologists, and researchers interested in the area met to discuss potential proposals for clinical research. The NCRI Early Diagnosis Group was supported by members of the Leeds Clinical Trials Unit, Health Economists, Research Design Service members, patients and charity representatives.

 

A potential randomised study of patients with “headache suspicious of cancer” to different pathways to care was discussed but it was considered too early for such a study and the clinical endpoints need to be better considered.

 

A prospective multi-centre study of “headache suspicious of cancer” looking at the red flag features in the history, the value of a simple screening test of cognition and other features prior to imaging, will be developed – led...


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