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"Is there such a thing as a benign tumour?" A salient question, raised on BBC R2 today. And our response, based on years of working with the brain tumour community? Helen Bulbeck from brainstrust says...
"No brain tumour can be benign. We know the impact is devastating. Whilst the clinical community use the words ‘benign’ and 'malignant' to understand the pathology of the disease and plan treatment, for the 55,000 people living with the disease, and their carers, benign or not, the disease is debilitating. Brain tumours impact on relationships, personality, speech and independence. All brain tumours are isolating, terrifying and confusing. All types of brain tumour can kill. And the day that all people are able to access good quality, effective help can't come soon enough"
What do you think? Share you views on the brainstrust pinboard over on www.braintumourawareness.org.uk
Brain tumour tissue is removed everyday by surgeons but very few people know they can donate brain tumour tissue to research. A new campaign launched today [Tuesday 24 February] at the University of Bristol led by leading medical researchers and charity, brainstrust seeks to raise awareness for patients and healthcare professionals about donating brain tumour tissue and helping researchers find a cure for this disease.
A new collaboration announced today gives unprecedented access to over 400,000 brain tumour tissue samples for research.
This initiative, called the Brain Tumour Archive Network, will unlock thousands of previously hard to access brain tumour samples for researchers throughout the UK.
Creation of the network is being led by brainstrust and supported by a wider group of brain tumour charities including Charlie’s Challenge, Brain Tumour Research and umbrella group Sophie’s Wish. BRAIN UK, operating at the University of Southampton, will link existing archives of brain tumour tissue in a virtual network so that researchers can gain access to unprecedented levels of tissue to support their much needed research into better...