Charities, advocacy organisations and professional societies from across the globe unite on Brain Tumour Patients’ Charter of Rights
“The Brain Tumour Patients’ Charter of Rights has worldwide relevance,” said Kathy Oliver, Chair of the International Brain Tumour Alliance (IBTA) and one of the members of the Charter drafting group. “We’re excited that so many patient organizations and professional societies are supporting the Charter and we hope it will prompt productive discussion and debate and bring about positive change where necessary. The Charter is the result of a truly global collaborative process to help people who are diagnosed with this devastating disease, and those who care for them and treat them.”
Ten fundamental categories of “rights”
The Charter enumerates ten fundamental categories of “rights” for brain tumour patients that every country should strive to deliver:
- Acknowledgment and Respect
- Appropriate Investigation of Signs and Symptoms
- A Clear, Comprehensive, Integrated Diagnosis
- Appropriate Support
- Excellent Treatment and High-Quality Follow-Up Care
- The Care Relationship
- Supportive/Palliative Care
- Rehabilitation and Wellbeing
- Medical Information and Privacy
- Appropriate End-of-Life Options and Care
Within each category, specific policies, practices, and standards – a number of which will be aspirational in some countries – are defined.
The Brain Tumour Patients’ Charter of Rights was developed through a multi-stakeholder and iterative process and is a “living document”, subject to annual review.