brainstrust is collaborating with a number of charities to bring together healthcare professionals and affected families to review progress being made in support and treatment of brain tumours.
500 children are diagnosed with a brain tumour every year in the UK. With countless more families affected, the need to share information about the different fights against brain tumours currently taking place is as important as ever. The UK is at the forefront of the fight against brain tumours, and this event will help families affected, as well as healthcare professionals, to understand the progress being made across many fronts.
The Paediatric Brain Tumour Symposium will be an excellent day for families to get an insight on what is happening on the research and treatment front of childhood brain tumours. It is also for healthcare professionals to gain an insight on the whole journey of patients from treatment to management of long-term side effects.
Khadijha Sundus, brainstrust’s Support Specialist for Children and Families say “This event will provide information to benefit all members of the family. We know that when a child is diagnosed with a brain tumour, it does not just impact the child but the whole family, and we are here to support each member. This is why we have designed this event collaboratively for all who are affected by a childhood brain tumour”
A full schedule
The event has been designed to comprehensively cover a range of areas from research to quality of life. Key topics covered at the event include:
- Early diagnosis
- Challenges with drug delivery
- Advances in neurosurgery
- Managing behaviour and personality change
- Support for families and caregivers
- And many more
“It will allow families to feel fully resourced regarding treatment options, as well as the challenges in treating and living with a childhood brain tumour. We know what a complex and scary time this can be for families, and we understand the importance of being adequately informed and supported.”
Little brainstrust are here to support any members of a family when a child has a brain tumour. If you need support following a brain tumour diagnosis, email firstname.lastname@example.org or call 01983 292 405 to speak to somebody that understands.