The National Cancer Research Institute (NCRI) addresses some of the challenges identified in cancer research, and delivers activities to advance the progress of cancer research. All NCRI activities have direct input from patients and carers, who are experts in the experience of cancer.
Patients and carers shape actions at the national level and this is why we are inviting your input now.
One of the NCRI Brain working groups is exploring the challenges that come with being diagnosed and living with a glioma, a type of brain tumour, when you are clinically vulnerable. People can be vulnerable for a variety of reasons; they may be elderly, be living with other medical conditions, undergoing treatment for other conditions.
As part of this working group, we want to establish national guidelines around the best care for vulnerable people living with a glioma. We would like to know more about the support and information you received when you were diagnosed. We would be grateful if you could complete this survey which will take about 10 minutes of your time. It is anonymous and can be completed online here or you can download the survey to print and then complete in pen or pencil.
Complete the survey
CNS/patients can post handwritten forms back to brainstrust, or can scan in and send via email to firstname.lastname@example.org.
If you would like to talk to anyone about the survey, having a copy of the survey sent to you, or about your experience of being diagnosed, please email email@example.com.
For more information about brain tumours and support available have a look here.