Helen is a mum of two from Staffordshire who loves the outdoors and green spaces. Helen was diagnosed with an Acoustic Neuroma in 2020. Since finding brainstrust after her diagnosis Helen has become an active member of the brainstrust community, volunteering as a peer supporter to help others with the same diagnosis.
Today we are sharing Helen’s account of her life living with an Acoustic Neuroma, the challenges it brings and how she copes.
‘You look well’.
My tumour is non-malignant but daily living involves lots of challenges. It might not be obvious, but I have hearing loss, loss of balance function, tinnitus, dizziness, nausea, fatigue, migraine and anxiety.
The teams providing ongoing support to me includes a Skull Base Multidisciplinary Team, Balance Consultant, Vestibular Physiotherapist, Complex Hearing Team, Neuro Psychologist, Chiropractor, Physio Led Pilates Instructor, Massage therapist, Occupational Therapist & ongoing support from brainstrust.
Watch and wait, scanxiety and anxiety.
I am living with a non-malignant brain tumour; I have annual scans to monitor for growth. Scan day is preceded by huge levels of anxiety- waiting (sometimes months) for the follow up with my Consultant is agonising.
Hiking on the Roaches
When much of my life has had to change time out in green spaces is a rare opportunity to feel like the old me.
Sleep and nap time
I live with debilitating symptoms and I need lots of rest. Living with this tumour is exhausting.
Being in a busy or noisy environment is mentally, physically and emotionally challenging for me. I love going out and being sociable, but I find it very hard, it is often easier to stay at home.
If you are living with an Acoustic Neuroma like Helen, brainstrust is here to support you. Visit our dedicated Acoustic Neuroma hub, call 01983 292 405 or email email@example.com to get support today.
Support brainstrust this Brain Tumour Awareness Month, help us give a voice to the all too often silent impact of a brain tumour by sharing these stories far and wide:
We’re fundraising to help us continue our vital services. Every penny raised throughout the month will help ensure that people have the support they need.