Well, we do everything we can to help the people that contact us for advice and support, and for these people, outcomes are often better,journeys easier to navigate and the whole brain cancer experience is ‘more straightforward’ (we’ll never say that it is a positive experience) unfortunately despite all the hard work, not a great deal has changed when it comes to the wider picture.
- More children die of brain cancer than any other illness in the UK
- More people under the age of 40 are dying from brain cancer than any other cancer
- Incidence of brain cancer is increasing 2% year on year
- Yet still research is desperately underfunded
- And the pathway for patients being diagnosed with brain cancer is not always clear or direct
Brain cancer is something that could affect any one of us, but by raising awareness, and upping the stakes in our battle against this devastating disease, we can, and will beat it.
For starters, we’ve just published ‘ten top tips for brain tumour patients’.
These are based on the personal experiences of our icon Meg Jones and those of her carer, and mother, brainstrust director, Helen. We’ve reproduced these tips below, and also have a downloadable pdf that you can print out – why not share these with anyone you think might need them? Click here to download a pdf which you can use or pass on to someone who might need it.
brainstrust’s 10 top tips for coping with a brain cancer diagnosis:
1. Breathe. Deeply and slowly.
2. Find out as much as you can. Call us on 01983 292405 or email firstname.lastname@example.org for free support and advice.
3. Ask for a brainstrust brain box
4. Buy a colourful, bright notebook to capture your thoughts and questions.
5. Go prepared to your consultations – write down your questions, how you are feeling, your anxieties: they look so much smaller on paper. And don’t be afraid to get a second or third opinion.
6. Spoil yourself with small treats – a bar of chocolate, an extra ten minutes with the newspaper, switch off the alarm.
7. Come to a brainstrust meet-up. If there isn’t one near you, we will make one happen: www.meetup.com/brainstrust
8. People want to know how they can help. Be specific. Suggest practical things that they can do. This helps them, and then everyone is happy.
9. Trust your instincts. Most of the time they will lead you in the right direction. Be persistent and focus on your inner strength.
10. Seek sunshine. And smile.
During the month, we will also be launching two very exciting support initiatives. The first being our programme of Meet ups, and the second, the brainstrust brain box. Click here for more information, and to attend the launches on the 16th March.
There’s lot’s going on throughout March, if you’d like to join in, then here are some of the highlights, with information on how to get involved and help brainstrust to take the lead against brain cancer:
7 March – Bath Half Marathon. Team brainstrust is running at this event. If you’d like to run with us to raise awareness of brain cancer, then drop Tessa an email – email@example.com or call 07948 400329.
16 March – The launch of brainstrust’s Meet ups. This is our fun, new and innovative approach to support which we will be piloting on the 16th March. Click here to find out more about the launch evening and to register for this unique programme of events.
16 March – The launch of brainstrust’s brain box. At the first Meet up, we shall be introducing our brain box: Another initiative to help brain tumour patients and their carers. It’s exciting stuff, so click here RSVP and make sure not to miss out!
21 March – Reading Half Marathon. Berkshire’s leading Half Marathon held annually in March, and this year, we’re there! If you’d like to support us at this event and raise awareness of brain cancer, then drop Tessa an email – firstname.lastname@example.org or call now 07948 400329.
24-26 March – Society of British Neurological Surgeons Spring meeting 2010. Hosted by Addenbrookes Hospital, Cambridge. This high profile conference is a meeting for leading Neurological Surgeons and other members of the profession from the United Kingdom and Ireland. We shall be going to ensure we’re up to speed with what’s going on in the world of brain surgery and also as part of our Brain Tumour Awareness Month Activity. Click here to find out more and to visit www.sbns.org.uk
28 March – Wilmslow Half Marathon. If you’d like to support us at this event and raise awareness of brain cancer, then drop Tessa an email – email@example.com or call now 07948 400329.
31 March – The Inspiration Ball. This event marks the close of Brain Tumour Awareness Month, and has been organised to benefit brainstrust by Lisa Connell, Rent a Date for Charity and Lehmann Communications. Click here to book your tickets and to find out more about this glitzy evening.
Throughout the month, Brain Tumour Research (of which brainstrust is a member charity) is encouraging organisations, schools, colleges, even local churches and pubs to pick a date during March and hold a Wear a Hat day for brain tumours. Perhaps pass a hat round so that everyone can donate a pound or two to Brain Tumour Research and help bring hope, rather than despair, to the thousands of people who are diagnosed with a brain tumour each year.
Do you have your own awareness raising idea or event in March? Then let us know! Call Tessa on 07948 400329 or email firstname.lastname@example.org and we’ll help you get started.