Inspired by a friend’s recent experiences, last month saw Louisa host a Halloween Party to raised funds for brainstrust
Louisa explained her reason for choosing to host her event:
“brainstrust was recommended to us by a friend who has been recovering from treatment for a brain tumour. He and his wife couldn’t speak more highly of the support they received from brainstrust which connected them with people locally going through similar experiences, who are now friends for life.”
Louisa’s friend is Steven, who reflected on his experience of receiving a brain tumour diagnosis and his contact with brainstrust:
“Being diagnosed with a brain tumour it is like being hit by an emotional train. Nothing can prepare you for the words “we have found a tumour in your brain.” Your world falls apart and all your plans for the present and the future are taken away. I felt empty and lost and the effects are far reaching. My wife, Annette felt the loss as much as I did, as did friends and family. How do you prepare yourself for an uncertain future? Even now, two and half years on, just writing this article brings back strong feelings of dread, and I am one of the lucky ones. I am a survivor.
After my diagnosis, I wouldn’t say I buried my head in the sand, but everything I read online filled me with fear, so I stopped reading about it. This is where brainstrust came in. brainstrust is full of resources and helpful information about living with a brain tumour. More importantly there is always someone on the phone or in the chat room to talk to, 24 hours a day. It was Annette that first contacted brainstrust and the empathy and support that they gave us was unprecedented. brainstrust hold regular get togethers so we could meet other people in similar situations. We have developed friendships with our fellow tumour buddies, competing for who’s got the worst fatigue or best cranial scar.”
Steven has also credited Louisa’s pilates classes with getting him moving again:
“After a year’s worth of surgery, radiotherapy, chemotherapy and so much time going from sofa to bed and visa versa, it was Louisa’s classes that got my body moving again and helped regained my strength. With Louisa’s help, I’m hoping to get back to doing the things I love, like running marathons.”
Looking back on the evening Louisa said:
“It really was a brilliant night, such a joy to see people smiling, dancing and enjoying themselves. The event ran incredibly smoothly, with just over 100 in attendance. The welcome punch helped everyone get their dancing shoes on and the last to leave rolled out about 3am! Thanks to the brilliant band Twist of Rock and an excellent Hog Roast from Crackling Fayre.”
Steven added, “Louisa organised an amazing Halloween fancy dress event. A big thank you to Louisa and brainstrust.”
Louisa’s charity Halloween Party raised an extraordinary £1,745, and we’d like to say a big thank you to Louisa, Steven and everyone who helped make the evening such and amazing success. And we have to say – there were some fantastic costumes too!