Our Patient Guide is a resource to help people living with a brain tumour, and their caregivers better understand the brain cancer journey. It explains what you can expect at each stage, the key questions that you should be asking, and what resources exist that can help you.
We want to make sure you have the best resources available, so we are actively engaging with the review of the NICE guidelines for brain tumours. NICE’s role is to improve outcomes for people using the NHS and other public health and social care services. It does this by:
- Producing evidence-based guidance and advice for health, public health and social care practitioners.
- Developing quality standards for those providing and commissionig health, public health and social care services.
- Providing a range of information services for commissioners, practitioners and managers across health and social care.
To get this right it takes a long time to review the current pathway, seek the evidence so that service delivery can be improved, put it out to consultation and then ensure that new developments become embedded in clinical practice. Because we’re involved in the NICE review and on the panel, it means that we can be ready to make the amends to our Patient Guide when the review is complete next summer.
There are some key areas that will impact on the patient pathway, which means that your journey will be better. And, of course, we will be busy ensuring that our community understands what the impact of these changes will be.
Together we are improving the quality of life and care for everyone who is living with a brain tumour and also for those who work so tirelessly with us.