50 miles. 2 days. Huge impact.

Follow the Seagulls is a long-distance charity trek that helps change the lives of people living with a brain tumour. Take on 50 miles of breath-taking coastline over 2 days in this series of iconic charity walks. Your challenge will raise vital funds to help people living with a brain tumour feel less afraid, less alone and more in control.

There are 80,000 people living with a brain tumour in the UK, too many of them are isolated, afraid and alone. We take on the Big Brain Tumour Trek so that people with a brain tumour and their loved ones get the support they need to live their best life possible.

Scroll down for more information on each walk. Will 2023 be the year you become a Follow the Seagulls superhero?

Text reads: Whitby 1 and 2 April 2023. Image description: group of charity walkers wearing follow the seagulls t-shirts are stood cheering on cliff top with Whitby castle behind them.


Vast moorland, ancient monuments, stunning coastal views, and tumbling waterfalls. This walk has it all. Take on Follow the Seagulls in Whitby this year and we can guarantee you a challenge like no other, and a weekend you’ll never forget.

Join us on 1 and 2 April 2023 for Follow the Seagulls in Whitby.

Isle of Wight

This beautiful course sees you explore nearly all the Isle of Wight’s stunning coastline. Walk from Cowes to Yarmouth, taking in towering cliffs, untouched countryside and even an old railway line. Take on Follow the Seagulls in the Isle of Wight this year for an incredible experience with a huge impact.

Join us 1 and 2 April for Follow the Seagulls in the Isle of Wight.

Text reads: Isle of Wight. 1 and 2 April. ID: group of charity walkers wearing the Follow the Seagulls tshirts smiling arm in arm.
Text reads: Fife. 15 and 16 April 2023. ID: group of charity walkers wearing follow the seagulls t-shirts stood in green park.


The Fife coast is truly impressive, on this hike you’ll trek through forests, quaint fishing villages, past historic castles and along beautiful cliff tops. Whether you choose to walk alone or as a part of a group, we will ensure you have an amazing experience!

Join us on 15 and 16 April 2023 for Follow the Seagulls in Fife.


You can expect tranquil estuaries, rugged cliffs, charming lost villages and even some lighthouses! This trek is certainly a challenge as you’ll take on steep hills and steps, but we can guarantee there’s no sense of achievement quite like reaching those summits.

Join us on 15 and 16 April 2023 for Follow the Seagulls in Dartmouth.

Text reads: Dartmouth. 15 and 16 April. ID: group of charity walks stood in walking gear in front of harbour with cliffs in background.
Image text reads: Follow the Seagulls Brighton. 3 and 4 June 2023. Image is of view of Brighton.


New for 2023, the Brighton walk will cover some of the most celebrated and beautiful trails in the region. You’ll be treated to rolling hillsides, beautiful beaches, and stunning clifftops. Sign up for Follow the Seagulls in Brighton and help make life better for people living with a brain tumour.

Join us on 3 and 4 June 2023 to Follow the Seagulls in Brighton.

Why we walk

These charity walks are a real challenge, it will take everything you’ve got. But with every step you’re helping improve the lives of people living with a brain tumour today.

“I rang brainstrust in the middle of the night, about 3am, when I was in a state. I was amazed that someone could care. I think she said, ‘but you needed me now’ and since then that is the only thing I have ever felt from this charity – love support, friendship and care.” – Sarah

Looking for a different kind of challenge?

There’s far more to supporting brainstrust than charity walks. If you’re more into pounding the pavements than trekking along coastlines, join team brainstrust and take on a charity run for the brain tumour community. Or perhaps you have a fundraiser of your own creation? We love it when our supporters come to us with their own fundraising projects, and we’ll be there to support you every step of the way. Click here to get started with your own fundraising idea.

Stay up to date with the latest team brainstrust news.


The Brain Tumour Data Dashboard lets you explore up -to-date, population level data about the brain tumours diagnosed in England between 2013 and 2015. Using the drop down menus on the left you can select different groups of patients to view in the charts below. In these charts the number of patients for every 100 diagnoses is displayed as images of people. Patients have been grouped by date of diagnosis, type of tumour, age, gender, and region in England.

For each group of patients you can explore the different routes to diagnosis, the proportion of those who received chemotherapy or radiotherapy, as well as the survival of the patients within each group. For more information about what these metrics mean please see the glossary.

How to use

  1. Select the year of diagnosis using the drop down menu.
  2. Select your patient group of interest from the four drop down menus in the following order:
    1. Tumour group
    2. Age at diagnosis
    3. Region of England
    4. Gender of patient
  3. To view a second chart to compare different groups of patients, click the ‘compare’ button.The second chart will appear below the first chart.

*Note that the tool is best used on a laptop or tablet rather than a mobile phone*

Unavailable data

Some of the data in these charts is not available.There are two main reasons for this:

  1. How the data has been grouped

If you cannot select a patient group from the drop down menus, the data is unavailable because of how the data has been organised.

Public Health England has grouped the data like a branching tree. The bottom of the tree contains all the patients with brain tumours, and then each branch divides the data by a certain characteristics, like age, or location of tumour. But the data is divided in an order, starting with location of the tumour (endocrine or brain), then by age, region, and gender. Age is at the start because it makes a bigger difference to survival rates and treatment rates than gender or region. Sometimes, after the data has been split by type of tumour and age, there is not enough data to be split again. This is because to protect patient confidentiality groups cannot contain less than 100 patients. Because some groups cannot be split further, you cannot create ‘totals’ for everyone by region or gender. For example, you cannot see results for all ages by region, or all brain tumours by gender. If these totals were calculated and released, it might be possible to identify patients, which is why Public Health England cannot release this data.

  1. Statistical reasons and data availability

If you can select a patient group from the chart menus, but the chart does not display, the data is unavailable for one of several reasons:

  1. Data is not yet available for the selected year from Public Health England.
  2. Data is not available because the data quality is too poor to release this statistic.
  3. Data is not available as the statistic is not appropriate for this group.
  4. Data is not available because the standard error of the estimate was greater than 20% and so the estimate has been supressed.

Up to date brain tumour data

Brain tumour data may influence the decisions you make about your care. Data also helps you understand the bigger picture, or landscape, in which you find yourself.

Brain tumour data and statistics influence the focus, and work of organisations like brainstrust. The information helps us to understand the scale and impact of the problems we are setting out to solve.

This tool helps you understand the landscape in which you find yourself having been diagnosed with a brain tumour. This landscape can be particularly tricky to navigate as there are many different types of brain tumour, all of which have a different impact.

The information you see represents the most up-to-date, official, population level brain tumour data available for England. Over time we will be adding to the brain tumour data available and publishing reports, with recommendations, as a result of what we learn from this data.

The data behind this content has come from Public Health England’s National Cancer Registration and Analysis Service (NCRAS) and is a direct result of the ‘Get Data Out’ project.

This project provides anonymised population level brain tumour data for public use in the form of standard output tables, accessible here: http://cancerdata.nhs.uk/standardoutput


The number or rate (per head of population) of new cases of a disease diagnosed in a given population during a specified time period (usually a calendar year). The crude rate is the total number of cases divided by the mid-year population, usually expressed per 100,000 population.


Malignant tumours which grow by invasion into surrounding tissues and have the ability to metastasise to distant sites


The number or rate (per head of population) of deaths in a given population during a specified time period (usually a calendar year). The crude rate is the total number of deaths divided by the mid-year population, usually expressed per 100,000 population.


Not cancerousNon-malignant tumours may grow larger but do not spread to other parts of the body.


The length of time from the date of diagnosis for a disease, such as cancer, that patients diagnosed with the disease are still alive. In a clinical trial, measuring the survival is one way to see how well a new treatment works. Also called ‘overall survival’ or ‘OS’.

Routes to Diagnosis

Under the ‘Routes to Diagnosis’ tab in the Brain Tumour Data Dashboard, you can explore the ways patients have been diagnosed with brain tumours. There are many ways, or routes, for cancers to be diagnosed in the NHS. A ‘route to diagnosis’ is the series of events between a patient and the healthcare system that leads to a diagnosis of cancer. The routes include:

  1. Two Week Wait

Patients are urgently referred by their GP for suspected cancer via the Two Week Wait system and are seen by a specialist within 2 weeks where they are diagnosed.

  1. GP referral

Diagnosis via a GP referral includes routine and urgent referrals where the patient was not referred under the Two Week Wait system.

  1. Emergency Presentation

Cancers can be diagnosed via emergency situations such as via A&E, emergency GP referral, emergency transfer or emergency admission.

  1. Outpatient

Outpatient cancer diagnoses include diagnoses via an elective route which started with an outpatient appointment that is either a self-referral or consultant to consultant referral. (It does not include those under the Two Week Wait referral system).

  1. Inpatient elective

Diagnosis via an inpatient elective route is where diagnosis occurs after the patient has been admitted into secondary care from a waiting list, or where the admission is booked or planned.

  1. Death Certificate Only

Diagnoses made by Death Certificate Only are made where there is no more information about the cancer diagnosis other than the cancer related death notifications. The date of diagnosis is the same as that of the date of death.

  1. Unknown

For some patients with a cancer diagnosis, there is no relevant data available to understand the route to diagnosis.


More information

If any of the statistical terms in this section of the brainstrust website are hard to understand, we recommend looking them up here:

Cancer Research UK’s Cancer Statistics Explained


If you are looking for help understanding terms relating specifically to brain tumours, and treatment, then the brainstrust glossary is available here: