Household finances can be seriously impacted when living with a brain tumour diagnosis, which can in turn have a huge effect on day-to-day life and your ability to cope as a caregiver. You may find yourself being solely responsible for all financial matters and it can be difficult to know where to turn to for information and support. Here we talk about the options for financial help for brain tumour patients and their carers.
A 2018 report by Brain Tumour Research found that the average household living with a brain tumour diagnosis was financially worse off by £14,783.
This is down to a number of factors, including:
- Loss of income for both the patient and the caregiver
- Transportation costs
- Self-funded treatment costs
- Increased household bills – heating, electricity etc.
There are different options available which may help with any financial burden you are experiencing.
We have produced a Know How that goes through the different benefits that might be available for both caregivers and preople with a brain tumour.
When looking through finances and the options of support that may be available to you, have a think about the following:
- Who is around me that may be able to help? This could be help with organisation or even liaising with other services on your behalf
- What do I need as a caregiver to make me feel better supported financially?
- What information am I missing in order to feel in control of this?
If you find yourself needing to speak to someone about welfare benefits, then we can help. We have recently been joined by Eric, our Welfare and Benefits Advisor Volunteer. Whether you need to make an initial application, want to check that you are receiving all that you should be, or if you just don’t know where to start with it all, Eric might be able to help.
Having Eric’s support in completing my PIP application was incredibly helpful and helped to take a bit of the pressure away and make this process feel more manageable. I felt very comfortable speaking to Eric and felt that he really listened to me and it very much felt like a collaborative effort between the two of us. Someone recently supported by Eric
If you would like to find out more and seek support, get in touch with us by emailing firstname.lastname@example.org, get in touch with your regional Support Specialist, or give us a call on 01983 292 405.
Financial help with medication
If you are caring for someone who is on a lot of medication for their brain tumour or other medical conditions, this can add to the financial burden.
Prescriptions are free for everybody who lives in Wales, Scotland and Northern Ireland, but in England you may have to pay for these unless you meet certain criteria.
If you are living in England and the person you are caring for needs to take regular medication because of their brain tumour, they may be entitled to free prescriptions. In order to access this service, they would need to be eligible for a medical exemption certificate.