Partnerships and collaborations
Our ethos is ‘we’re none of us as smart as all of us.’ Indeed, such meanginful collaboration is a key component of our approach as we work to secure the best outcomes for anyone who is living with a brain tumour. Our partnerships, of which we nurture around 80, are global and fall into four themes:
These include clinical engagement with the 35 neuroscience and neurosurgical centres and organisations that a relevant to our community such as Use My Data, and the Patient Information Forum. Clinical engagement is a priority as this is one way that we can reach the community. It is however, a two way relationship as healthcare professionals can visit our website and order resources for their patients, signpost coaching and other support services, and also take advantage of training opportunities, such as our expert led webinars and coaching programme.
These collaborations are hubs of clinical practice and research, such the British Neuro-Oncology Society (BNOS), the National Cancer Research Institute (NCRI) and the Cochrane Collaboration. This year we have launched the neuro-oncology special collection with Cochrane and the James Lind Alliance, a suite of reviews which share the evidence for some key topics that are relevant to the community. You can read more about this work here.
We work across the four ‘Public Health’ nations, which enables us to keep our community updated in a meaningful and relevant way. Whether this has been advocating for cohorts of people living with a specific type of brain tumour to ensure the treatment and surveillance they need has been accessible or using data from the National Cancer Registration and Analysis Service to communicate information about waiting times and urgent referrals to our community.