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Brain tumour advice and brain tumour help
Menu
  • About brainstrust
    • Our Story
    • What we do
    • How we are different
    • How we are funded
    • Our team
    • Work with us
    • Contact Us
    • Close
  • Brain tumour support
    • Navigating your pathway
      • Patient guides
      • Who’s in my team?
      • Brain tumour hub
      • Symptoms & diagnosis
      • Anatomy & Tumour Types
      • Treatment information
        • Surgery
        • Molecular analysis
        • Therapies
        • Close
      • Clinical trials
      • End of life care
      • Grief & bereavement
    • Quality of life
      • Practical help
        • Travelling
        • Money matters
        • Access to work
        • Resources
        • Glossary
        • Close
      • Living well with a brain tumour  
        • Exercise & Rest
        • Be less alone
        • Epilepsy
        • Scanxiety
        • Acceptance
        • Mindfulness
        • Counselling / Hypnotherapy
        • Fatigue
        • Survivorship
        • Close
      • Taking control
        • Second opinions
        • Working effectively with your team
        • Peer support
        • Peer Support Volunteers
        • Close
    • Little brainstrust
    • Resources
      • Downloads & Resources
      • Our partners
    • Patient stories
    • Our campaigns
      • Tissue donation
      • Raising awareness
      • Quality of life
      • Clinical research
    • Meetups
    • Close
  • Get involved
    • Events
    • Fundraising
    • Volunteering
    • Set up a fund
    • Fundraising forms and resources
    • Close
  • Shop
  • News
  • Donate
Derby Meet Up helps people living with a brain tumour feel less alone
By Jodie Mytton
In Charity News, Uncategorized
Posted April 3, 2018

Derby Meet Up helps people living with a brain tumour feel less alone

Last month, we had the first brainstrust Midlands Meet Up of 2018 at Pizza Express in Derby’s Irongate. There was an amazing response, and 16 people joined for us for a relaxed evening meal.  We [...]

READ MORE
Aileen and Ruth fundraising in memory of Mum Mo for brain tumour support
By Will Jones
In Fundraising
Posted March 27, 2018

Aileen and Ruth fundraising in memory of Mum Mo for brain tumour support

Sisters, Aileen Patterson and Ruth Elliott from Newcastle went from couch to 5k. They raised an incredible £1,519 for brain tumour support at brainstrust in memory of their mum, Mo. Giving back [...]

READ MORE
New website helps you find trustworthy brain tumour information easily
By Will Jones
In Charity News
Posted March 13, 2018

New website helps you find trustworthy brain tumour information easily

March 2018 marks brainstrust’s 12th year of helping people live life with a brain tumour. It is also brain tumour awareness month. To mark this we are launching the new brainstrust website [...]

READ MORE
Brain tumour patients set to benefit from massive research funding boost
By braintrust-dev
In Research News
Posted March 6, 2018

Brain tumour patients set to benefit from massive research funding boost

Welcome news today (22nd February 2018) as Cancer Research UK announce a £45 million boost in brain tumour research funding. The funding will come from the Department of Health and Social Care [...]

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Inspiration from Tessa Jowell, Nick Robinson and the BBC – what this means for you. Part 4.
By braintrust-dev
In Charity News
Posted January 29, 2018

Inspiration from Tessa Jowell, Nick Robinson and the BBC – what this means for you. Part 4.

The patient experience: what are your top tips? Following last week’s inspiring and thought provoking BBC Radio 4 Today programme with Nick Robinson and Tessa Jowell talking bravely about [...]

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Inspiration from Tessa Jowell, Nick Robinson and the BBC – what this means for you. Part 3.
By braintrust-dev
In Brain News
Posted January 26, 2018

Inspiration from Tessa Jowell, Nick Robinson and the BBC – what this means for you. Part 3.

Welcome to part 3 of this week’s exploration of the key themes highlighted in Tuesday’s BBC Radio 4 programme. In part one we discussed adaptive trials and research funding, you can [...]

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Inspiration from the BBC. What does this mean for you? Part 2.
By braintrust-dev
In Brain News
Posted January 25, 2018

Inspiration from the BBC. What does this mean for you? Part 2.

Yesterday on the BBC’s Today programme, fronted bravely by Nick Robinson and Tessa Jowell, we heard Susan Short, Professor of Clinical Oncology and Neuro-Oncology (Leeds), speak about the need [...]

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Midweek inspiration from the BBC. What does it mean for us?
By braintrust-dev
In Research News
Posted January 24, 2018

Midweek inspiration from the BBC. What does it mean for us?

There has been some super coverage about brain cancer on Radio 4’s Today progamme this morning, inspired largely by Nick Robinson and Tessa Jowell’s own experiences and personal challenges [...]

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New routes to diagnosis data suggests quality of life improvements for people with a brain tumour
By braintrust-dev
In Campaign News
Posted January 17, 2018

New routes to diagnosis data suggests quality of life improvements for people with a brain tumour

New data shows that the proportion of people receiving a brain tumour diagnosis following emergency admission is decreasing, whilst diagnosis following a GP referral is up. Charts – Health [...]

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UK Proton Beam Therapy Units to open from this year
By braintrust-dev
In Brain News
Posted January 15, 2018

UK Proton Beam Therapy Units to open from this year

Proton Beam Therapy (PBT) will arrive in the UK from 2018, with sites opening at The Christie Hospital in Manchester and UCLH in London by 2020. The new sites will see an extension of the service [...]

READ MORE
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page 1 of 38
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Recent Posts
  • Derby Meet Up helps people living with a brain tumour feel less alone
    April 3, 2018
  • New website helps you find trustworthy brain tumour information easily
    New website helps you find trustworthy brain tumour information easily
    March 13, 2018
  • Brain tumour patients set to benefit from massive research funding boost
    Brain tumour patients set to benefit from massive research funding boost
    March 6, 2018
brainstrust’s Impact this year

Our vision is for everyone with a brain tumour to feel less afraid, less alone and more in control.

In the last year your support has helped:

734 New people access coaching via our 24/7 helpline

380 people receive a Brain Box (our support tool kit)

300 people attend a Meet Up

30,000 people use brainstrust’s NHS accredited online information and support

1900 members of our online community helping each other to feel less alone, less afraid and more in control.

“This note is to say ‘Diolch o galon’ (thanks from our hearts). We are so proud of you – you don’t know us yet we lean on you, you have no obligation to help us but you do, and every time we feel down, you inspire us to keep on fighting.” – brain tumour carer, Wales.

NEWS
  • Derby Meet Up helps people living with a brain tumour feel less alone
    April 3, 2018
  • Aileen and Ruth fundraising in memory of Mum Mo for brain tumour support
    Aileen and Ruth fundraising in memory of Mum Mo for brain tumour support
    March 27, 2018
  • New website helps you find trustworthy brain tumour information easily
    New website helps you find trustworthy brain tumour information easily
    March 13, 2018
  • Brain tumour patients set to benefit from massive research funding boost
    Brain tumour patients set to benefit from massive research funding boost
    March 6, 2018
  • Inspiration from Tessa Jowell, Nick Robinson and the BBC – what this means for you. Part 4.
    Inspiration from Tessa Jowell, Nick Robinson and the BBC – what this means for you. Part 4.
    January 29, 2018
Stay in touch
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Registered with the Charity Commission for England and Wales as Charity No. 1114634 and with the Office of the Scottish Charity Regulator as Charity No. SC044642

Incidence

The number or rate (per head of population) of new cases of a disease diagnosed in a given population during a specified time period (usually a calendar year). The crude rate is the total number of cases divided by the mid-year population, usually expressed per 100,000 population (see also age-standardised rate).

Malignant

Malignant tumours which grow by invasion into surrounding tissues and have the ability to metastasise to distant sites

Non-malignant

Not cancerous. Nonmalignant tumours may grow larger but do not spread to other parts of the body.

Mortality

The number or rate (per head of population) of deaths in a given population during a specified time period (usually a calendar year). The crude rate is the total number of deaths divided by the mid-year population, usually expressed per 100,000 population (see also age-standardised rate).

Survival (crude)

The length of time from either the date of diagnosis or the start of treatment for a disease, such as cancer, that patients diagnosed with the disease are still alive. In a clinical trial, measuring the overall survival is one way to see how well a new treatment works. Also called OS.

Survival (net)

Net survival estimates the number of people who survive their cancer rather than calculating the number of people diagnosed with cancer who are still alive. In other words, it is the survival of cancer patients after taking into account the background mortality that they would have experienced if they had not had cancer.

If any of the statistcal terms in this section of the brainstrust website are hard to understand, we recommend looking them up here:

Cancer Research UK’s Cancer Statistics Explained

http://www.cancerresearchuk.org/health-professional/cancer-statistics/cancer-stats-explained/statistics-terminology-explained#heading-Seven

If you are looking for help understanding terms relating specifically to brain tumours, and treatment, then the brainstrust glossary is available here:

http://www.brainstrust.org.uk/advice-glossary.php

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