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News archive    2016   
  • Scunthorpe couple raise incredible total for brain tumour support

    Chris Bassenger is a member of the brainstrust Meet Up group in Hull. Chris came to brainstrust for help and advice after he was diagnosed with a brain tumour. We offered a second opinion, and Chris wanted to raise money to give something back to the brain tumour community.

    With his wife, Laura, and family and friends, Chris held a fundraising event in North Lincolnshire, raising £1,646.27!

    brainstrust helped me with a second opinion. From this, I was referred to an epilepsy specialist, and brainstrust continued to support me. I felt someone was listening and focused on making improvements to my quality of life. It’s the fact that there is someone there to listen, and someone to speak to, that’s why I come to the meet up group. It’s something to look forward to. It helps."

    “I wanted to give something back so organised a fundraising event. The money raised will pay for a brain box for 30 people with a brain tumour diagnosis. It makes me feel good that I could help someone else.”

    If you are inspired by Chris’ story, and you...



    Read full story
    Category: Fundraising News | Published: 3 November 2017
  • UK Brain Tumour Symposium (formerly the UK Brain Tumour Summit) sells out in 48 hours

    UK Brain Tumour SymposiumLast week we announced, with Brain Tumour Research, the first UK Brain Tumour Symposium to be held jointly between our two organisations. The event is to take place in Milton Keyne's on the 12th Ocotber 2017. Following the launch on Friday 18th, the event was full by the Sunday evening with a waiting list now open. 

     

    On this, brainstrust's Chief Exectutive, Will Jones says,

    "Of course this is great news that there is such demand from our community for information on the latest treatments, brain tumour support initiatives and of course on research and campaigning for a better world for people with a brain tumour. We have an exciting programme for this event which I am sure people will find engaging, empowering and useful. On the flipside I understand it is frustrating for those that have been keen to join us and who haven't been able to register succesfully. Straight away we know that we must run the event again next year, and we will be working hard to generate the funding needed to cater for the demand. Thank you for your...



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    Category: Charity News | Published: 25 August 2017
  • Join us for the UK's first joint Brain Tumour Symposium

    brainstrust and Brain Tumour Research are proud to present the UK's first joint Brain Tumour Symposium (formerly the UK Brain Tumour Summit), an event for brain tumour patients, their friends and family, who are genuinely interested in helping us campaign for change.

     

     

    Taking place on 12th October in Milton Keynes, the Symposium brings together leading experts from many areas of brain tumour support and research. This is your chance to meet the doctors, scientists, patients, caregivers and charities who are leading the way in brain tumour research, support and campaigning.

     

    This free event will help you to understand the progress that is being made across many fronts in the work against brain tumours.

     

    Our aim is to provide an educational, collaborative and transparent focus on the biggest issues facing the UK brain tumour community today and the specific advances that are being...



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    Category: Charity News | Published: 14 August 2017
  • Carrie Holbrook, campaigning for the brain tumour community

    Since losing her husband to a brain tumour, Carrie Holbrook has been campaigning to raise awareness of brain tumours and improve outcomes for people with a brain tumour.


    She is delighted that brainstrust and Brain Tumour Research are working together to present the UK’s first joint Brain Tumour Symposium, which aims to provide an educational, collaborative and transparent focus on the biggest issues facing the UK brain tumour community today and the specific advances that are being made.


    Carrie said: “The UK Brain Tumour Symposium is a great opportunity to bring leading experts from brain tumour support and brain tumour research together. It will give people affected by brain tumours the chance to find out more about the progress and advances that are being made in many areas including brain tumour research, quality of life and living well.


    “Brain tumours are the biggest cancer killer amongst the under 40s, so it’s important to raise awareness, and this event is a great way to do that.”

     






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    Category: Charity News | Published: 14 August 2017
  • National survey shows decline in positive experience for brain tumour patients

    Many people with a brain tumour are not receiving the care and support they expect, according to the National Cancer Patient Experience Survey 2016.


    The survey is designed to monitor national progress on cancer care, provide information that could be used to drive local quality improvements, assist multi-disciplinary teams, commissioners, and NHS Trusts in improving patient services, and inform the work of charities supporting cancer patients.


    The survey found that:


    • Only 26% of people with a brain tumour received a care plan


    • 42% said they felt their clinical team worked together all of the time to give the best possible care


    • 40% felt supported by their GP


    • 42% felt happy with the provision of care and support post treatment


    • 63% were happy with how their results were communicated to them


    All of the above showed a decline from 2015. 


    • On a positive, 85.5% felt they had all the information they needed about radiotherapy, and 57.6% (an increase from 52% in 2015) had a better understanding of how the treatment worked for...









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    Category: Campaign News | Published: 26 July 2017
  • Cancer Research UK announces £25million investment in brain tumour research

    Exciting news – and not before time. For some years now Cancer Research UK (CRUK) has shown a real commitment to funding brain tumour research, increasing its funding share to 8%. Now CRUK is pushing the research agenda forward and is committing £25million over the next five years so that two Centres of Excellence can be established – purely for brain cancer research.

    What does this mean for our community?

    It means that at long last there will be a dynamic, multidisciplinary research community in the UK. It means too that the infrastructure required to facilitate innovation in the field, and create hubs of expertise will become established. For too long the research community has been fragmented and underfunded. This funding will make a...



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    Category: Research News | Published: 27 June 2017

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