News archive 2016
Tuesday 13th and Wednesday 14th June - Manchester
The PHE Cancer Data and Outcomes Conference 2017 brings together patients, carers, clinicians, commissioners, academics and charities to showcase the latest developments and opportunities for using data to drive improvements in services, treatment and patient experience both nationally and locally. This year’s conference will cover the breadth of the patient pathway and explore the use of data at all stages including prevention, early diagnosis, treatment, survivorship and end of life.
The conference will take place on Tuesday 13th and Wednesday 14th June in Manchester. Patient bursaries are available for people affected by cancer and carers. The bursaries will cover the conference registration fee, travel to and from the conference and overnight accommodation for Tuesday 13th if needed.
To register your interest please send an email to firstname.lastname@example.org. You will be asked to complete a bursary application form. All applications will be considered after the closing date of 24th March and those that have been awarded a bursary will be notified by mid-April.
For more information visit www.phe-events.org.uk/cdoc2017.
Read full storyCategory: Research News | Published: 15 March 2017
Amy Edgar is running the London Marathon in April to raise money to help the thousands of people in the UK who are living with a terrifying brain tumour diagnosis.
Here Amy writes about her training and reasons for taking on the 26.2 mile challenge.
Whilst I’m writing this, it’s a Friday evening. I’m sitting on the sofa, ice pack nursing my leg after my 16 mile run this morning, cup of tea, and a (huge) bar of chocolate! Marathon training is a battle, but not half the battle people go through when fighting a brain tumour. That is why I’m running 26 miles this April to raise as much as I can for brainstrust so they can continue the amazing support they provide for those who are living with or affected by a brain tumour.
My dad had a brain tumour many years ago, luckily he fought it and is very well. He got in touch with brainstrust years later so he could share his story with others. I ran my first 10k for brainstrust in 2015, since then I have occasionally been fundraising and attending meet up groups.
I’ve been a keen runner for about 4 years but before training for the marathon the...
Read full storyCategory: Charity News | Published: 9 March 2017
We know how hard it is to find great support when you've been diagnosed with a brain tumour. It's the reason we founded brainstrust 10 years ago, and why we wanted to provide 24/7 personal support and signpost you to other help that's available, wherever you may live.
We launched our Little White Book directories to help you find your way on your brain tumour journey. Each Little White Book is produced regionally and signposts you to the support available in each area.
We’re now launching Little White Books in Greater Manchester, Tees Valley, and one in the North West, focusing on children's brain tumour services. Each book has easy to navigate information on UK brain tumour resources.
Read full storyCategory: Charity News | Published: 27 February 2017
'When I have a cup of tea I feel supported. I feel very cared for by brainstrust.'
Brain tumour support is built on tea. We know.
Having a cup of tea and a chat can help people with a brain tumour to think things through before making decisions about their care or treatment, helping them to feel more in control.
This week, join us for Teafest17 and help the 60,000 people living in the UK with a brain tumour to feel less alone and afraid, and more in control.
- Why not hold your own Teafest at home, school or work?
- Ask your local cafe or coffee shop to get involved.
- Shop for Teafest - buy tea towels, tea mats, mugs, wristbands and more for your Teafest event.
- Swap your morning cuppa for a text donation.
Read full storyCategory: Charity News | Published: 21 February 2017
Last year, Dillon St. Paul took part in the BBC’s The Apprentice, where he battled in the boardroom to become Lord Sugar’s business partner.
At the time, Dillon believed it was the hardest thing he has ever done, but now that he’s survived brain tumour surgery his outlook on life has changed forever.
Dillon has written a blog about his experience of brain tumour surgery, and wanted us to share this with the brain tumour community. You can read Dillion's blog here.
Read full storyCategory: Brain News | Published: 9 February 2017
Despite suffering from motion sickness, Lynn Crichton was determined to skydive 10,000 feet out of a plane in memory of her fiancé, Garreth, who sadly died of a brain tumour in 2012.
Garreth was a very outgoing and adventure-loving person, so a skydive is exactly the sort of challenge that would have got his stamp of approval.
“Garreth had lots of friends and was loved by everyone who knew him,” says Lynn. “He was a very positive person and always gave lots of good advice and encouragement. He had done lots of travelling, and he’d done a bungee jump, so he would have been thrilled at me doing a skydive!”
Lynn wanted to raise funds in Garreth’s memory, so contacted brainstrust for more information. “I was impressed by the personal service I received,’ says Lynn. So much so, that she decided to start fundraising to help the thousands of people in the UK with a brain tumour.
She got involved in Teafest, followed shortly after by a 12-mile cycle ride. For her next challenge, she was persuaded by her friend Carol Cochrane, who is also brainstrust’s community...
Read full storyCategory: Fundraising News | Published: 19 January 2017