The results of the 2014 National Cancer Patient Experience Survey have just been published. The good news? Overall, cancer patients have a good patient experience. This is largely down to having a designated clinical nurse specialist (CNS) in charge of their care.
Brain tumour patients are the most engaged with research
We’re also thrilled that brain cancer patients are coming out tops for being involved in discussions about research (the scores ranged from 37% (brain/CNS and haematological cancers) to 14% (urological cancer)); and actually taking part in research (the scores ranged from 75% (brain/CNS) to 58% (lung, prostate and urological cancers)). Hurray, you guys, for leading the way!
Poor experience of brain tumour care
Brain tumour patients gave lower scores than any other cancer patients in a few areas, including: receiving understandable results; having things explained to family members; getting good support from the GP; having a team of healthcare professionals who work well together. Indeed, Only 55% of patients said the staff at their general practice definitely did everything they could to support them and just 51% of respondents said that the different people treating and caring for them always worked well together. Megan Hill, Head of Support at brainstrust says, “It is clearer than ever that the brain tumour community needs dedicated help, clear information and integrated services. We are working hard to fill gaps where we can, and drive change at hospital level so that people with a brain tumour have a much better experience”.