brainstrust events

Our Thrive with brainstrust events will help you live better with a brain tumour. Below you can find information about upcoming webinars and meetups, both online and face-to-face. Filter by Patient and Carer events to see what’s happening this month. If you have any questions about our supportive events or would like to book a coaching session, please email hello@brainstrust.org.uk

You can also browse our calendar of upcoming fundraising events and campaigns. For the latest information about races and challenges, please keep in contact with event organisers or email fundraising@brainstrust.org.uk

Running events with Run for Charity – brainstrust would love you to support the charity by taking on a challenge for us. Check out all of our featured events or search for your event of choice via the hub. Run for Charity featured and all events

Running Events with Realbuzz – through brainstrust’s partnership with Realbuzz, our runners now have the opportunity to take on some of the biggest events Globally  and in the UK including the Superhalfs series & the Abbott World Marathon Majors.  Places in these events are hard to come by so check out the list below and get registered.
Treks & Trails with Ultra Challenge – The UK’s No 1 Series of treks & trail runs! Take on a challenge at your pace and fundraise for the brain tumour community! Whether along a stunning coastline or on trails through magnificent countryside, you’ll get full support all the way–including plenty of food & drink, medics & massage, camaraderie, a medal & T shirt -and an amazing sense of achievement. With 20 events to choose from, and distance options ranging from 10km up to the full 100km, there’s an Ultra Challenge waiting for you.
  • All Events
  • Fundraising Events
  • Patient & Carer Events
February 6th, 2026

Acoustic Neuroma (Vestibular Schwannoma) Group – February Online Meetup Fri 6th Feb 13.00

A welcoming monthly online space for anyone affected by an acoustic neuroma.  

Read more
February 10th, 2026

The role of Neuropsychology in the treatment & management of brain tumours – Tues 10th Feb 14.00

If you’re living with a brain tumour and want to understand more about neuro-psychological support services, then this webinar is for you! The focus of this session will be about the role of neuropsychology services in the care of people living with a brain tumour diagnosis

Read more
February 11th, 2026

Scanxiety- Hypnotherapy workshop for brain tumour patients and caregivers -Weds 11th Feb 14.00

Find out more about how hypnotherapy can help you to manage scanxiety when living with a brain tumour. That familiar wave of worry before a scan? You’re not alone. This session builds on what you’ve already learned and brings fresh focus to understanding and managing scanxiety. We’ll explore how fear affects your body and mind, […]

Read more
February 11th, 2026

brainstrust bereavement community – Weds 11th Feb 19.00

The grieving process begins at the time of diagnosis. We know that a death caused by a brain tumour is different. Come and be less alone.

Read more
February 16th, 2026

The Problem With “Fine” Workshop – Mon 16th Feb 14.00

It’s OK not to be OK – come and join us to build emotional strength, so you can move from not being really fine to thriving. When you are living with a brain tumour, not feeling fine can become part of everyday life. Even so, many of us respond to “How are you?” with “I’m […]

Read more
February 17th, 2026

Living with metastatic brain cancer? – Tues 17th Feb 14.00

Living with metastatic brain cancer? Welcome to our online event where we come together to share stories, offer support, and provide resources for those living with metastatic brain cancer. Join us for informative discussions, Q&A sessions with experts, and connect with others who understand what you’re going through. Whether you’re a patient or a caregiver, […]

Read more
February 20th, 2026

Colloid Cyst Community online meet up – Fri 20th Feb 13.00

A relaxed virtual cuppa and chat for anyone affected by a colloid cyst – patients, carers, and families.

Read more
February 23rd, 2026

Your voice matters: shape the future of grade 2 glioma treatment – Mon 23rd Feb 2-3.00pm

Why this matters to you Living with a grade 2 glioma brings complex uncertainty – risk of seizures, timings of treatment, and whether to have treatment. A new trial is exploring whether a targeted drug called Vorasidenib could give people with low-grade glioma more options, potentially delaying the need for surgery, radiotherapy, or chemotherapy while […]

Read more
February 25th, 2026

Neuro Pilates for the brainstrust community (online session) – Weds Feb 18th 10.00am

A gentle, inclusive Neuro Pilates class designed to support movement, balance, and wellbeing for those living with a brain tumour. Join us for a calm, welcoming online Neuro Pilates session (chair-based) designed especially for the brainstrust community. This gentle class focuses on supporting movement, posture, and balance through a specialist Pilates approach tailored to individuals living […]

Read more
March 2nd, 2026

Meningioma Matters – Mon 2nd March 16.00

Living with a meningioma can feel isolating. This is a relaxed, open space to talk, listen, and connect with others who get it. We know how hard it can be to live with a meningioma – whether you’re a patient or a caregiver. This space is for you.  

Read more
March 4th, 2026

March Art Time – Weds 4th March 10.30am

Come and join us for Art Time – whether you’re a seasoned artist or a complete novice, this is a gentle two-hour session to explore how painting can become a mindful, soothing activity. As you focus on the creative process, you may find stresses and worries begin to fade into the background.      

Read more
March 4th, 2026

Introduction to Neuroscience-Informed Hypnotherapy – Weds 4th March 14.00

Join this session to find out more about hypnotherapy and an introduction to strategies to support you when living with a brain tumour. Curious about how your brain can support your well-being? This session introduces the science of neuroplasticity and how hypnotherapy can ease discomfort, lift mood, and reduce anxiety. Designed for people living with […]

Read more
March 5th, 2026

High Grade Brain Tumour Community – Thurs 5th March 13.00

Living with a high grade (grade 3 or 4) brain tumour can feel isolating. This online group offers a supportive space to those who understand This informal online group is for people living with a high grade (grade 3 or 4) brain tumour diagnosis – and their supporters. There’s no set agenda and no pressure […]

Read more
March 5th, 2026

Living with a low grade glioma – Thurs 5th March 16.00

Join us for an honest and supportive session where we’ll talk about what it’s really like to live with a LGG diagnosis.

Read more
March 6th, 2026

Acoustic Neuroma (Vestibular Schwannoma) Group – Fri 6th March 13.00

A welcoming monthly online space for anyone affected by an acoustic neuroma. Living with an acoustic neuroma can feel overwhelming at times, and it helps to talk to others who truly understand. This is a friendly, informal online space where you can connect, share experiences, or simply listen in. Whether you’re newly diagnosed or further […]

Read more
March 9th, 2026

Glioblastoma (GBM) & Nutrition with Patrice Surley – Mon March 9th 15.30am

Patrice Surley is doing a return visit! Come and join our webinar as she chats about nutrition based on her experience with GBM patients Following three very successful webinars for us, Patrice has kindly offered to come back to chat about nutrition based on her experience with Glioblastoma (GBM) patients. There will be an opportunity […]

Read more
March 10th, 2026

Tea & a Wee Blether – March Online Meetup-Tues 10th March 12.00

Join our monthly online cuppa and chat. A safe, welcoming space for anyone affected by a brain tumour.

Read more
March 11th, 2026

Scanxiety- Hypnotherapy workshop for brain tumour patients and caregivers – Weds 11th March 14.00

Find out more about how hypnotherapy can help you to manage scanxiety when living with a brain tumour. That familiar wave of worry before a scan? You’re not alone. This session builds on what you’ve already learned and brings fresh focus to understanding and managing scanxiety. We’ll explore how fear affects your body and mind, […]

Read more
March 11th, 2026

Brainstrust Bereavement Community – Weds March 11th 19.00

The grieving process begins at the time of diagnosis. We know that a death caused by a brain tumour is different. Come and be less alone

Read more
March 13th, 2026

Dose of Neuroscience – Hypnotherapy Session – Fri 13th March 12.00

A hypnotherapy session to build calm and confidence while understanding the neurochemicals behind emotional wellbeing. Are you or a loved one facing the emotional challenges that come with a brain tumour diagnosis? Feelings of anxiety, overwhelm, and inner noise can often become daily companions. That’s why we’re inviting you to A Dose of Neuroscience: Hypnotherapy Session, a […]

Read more
March 19th, 2026

Introduction to Creative Writing for brain tumour patients & carers – Thurs 19th March 11.00am

Overview Discover writing for pleasure, when writing might support us personally, and where it can bring a sense of solidarity, purpose or hope. This is an opportunity for brain tumour patients & carers to put down a few words here or there. This gentle and paced introduction to writing will cover why we might write, […]

Read more
March 19th, 2026

Whilst I Wait – Hypnotherapy Workshop – Thurs March 19th 14.00

Join this session to learn how hypnotherapy can support you during periods of waiting when you are living with a brain tumour. Waiting is hard; the aim of this session is to make it easier. Whether you’re waiting for results, treatment, appointments or something else entirely, this session offers calming, brain-based techniques to keep you […]

Read more
March 20th, 2026

Colloid Cyst Community – March Online Meetup – Fri March 20th 13.00

A relaxed virtual cuppa and chat for anyone affected by a colloid cyst – patients, carers, and families.

Read more
March 20th, 2026

Living with metastatic brain cancer? – Fri 20th March 15.00

Join us for a virtual event where we share stories, support, and resources for those of you who are living with metastatic brain cancer. Living with metastatic brain cancer? Welcome to our online event where we come together to share stories, offer support, and provide resources for those living with metastatic brain cancer. Join us […]

Read more
March 24th, 2026

Managing Fatigue Workshop – Tues March 24th 11.00am

Do you suffer with fatigue? We’ll help you to understand and manage your fatigue so that you can thrive, not just survive. This interactive workshop will help you to understand fatigue and how it is different for people living with a brain tumour. You will be encouraged to share your experiences on how fatigue is […]

Read more
March 25th, 2026

Neuro Pilates for the brainstrust community (Online Session with Sammy) – Weds March 25th 10.00am

A gentle, inclusive Neuro Pilates class designed to support movement, balance, and wellbeing for those living with a brain tumour. Join us for a calm, welcoming online Neuro Pilates session (mat-based) designed especially for the brainstrust community. This gentle class focuses on supporting movement, posture, and balance through a specialist Pilates approach tailored to individuals living with […]

Read more
March 25th, 2026

Calmness and Confidence – Hypnotherapy Workshop

An extra dose of steadiness when you need it most. Open to anyone who’s taken part in the core sessions or is a regular at resets, this bonus hypnotherapy session helps you reconnect to your own strength and stability. It’s designed to fit flexibly for those who need it. This session is mostly evening. This […]

Read more
March 29th, 2026

Sheffield Half Marathon 2026

Join team brainstrust’s mission to help people with a brain tumour at the Sheffield Half Marathon. A major event in the UK’s running calendar, the Sheffield Half Marathon is South Yorkshire’s biggest event of its kind. Thousands of runners of all abilities will be taking part, raising many thousands of pounds for numerous great causes. […]

Read more
March 29th, 2026

Wolverhampton 10k 2026

Join team brainstrust’s mission to help people with a brain tumour at the Wolverhampton 10k. Join us for the brand new ROAD CLOSED Wolverhampton 10k. Starting and finishing at Molineux Stadium this race is open to all abilities and offers the perfect opportunity to run a chip timed 10k! You will each get a unique themed medal, […]

Read more
April 12th, 2026

Paris Marathon 2026

Join team brainstrust’s mission to help people with a brain tumour at the world famous Paris Marathon. The Schneider Electric Marathon de Paris is now one of the biggest marathons in the world and perfectly combines a personal challenge with the chance to discover one of the world’s greatest cities. Race day will see you […]

Read more
April 12th, 2026

Milan Marathon 2026

Join team brainstrust’s mission to help people with a brain tumour at the fantastic Milan Marathon. A fast and scenic course that runs mostly in the heart of the city, medal and jersey for all finishers, plus a state-of-the-art Running Festival that turns into a modern and engaging running fair for three days. The start […]

Read more
April 12th, 2026

City of Lincoln 10k 2026

Join Team Brainstrust’s mission to help those with a brain tumour at the City of Lincoln 10k 2026. This 10k is one of the biggest and best-loved road runs in the region. With brilliant support all round the route, a great goody bag and a trendy T-Shirt, it’s no surprise that thousands rock up and run every year. The […]

Read more
April 12th, 2026

Brighton Marathon 2026

Join Team brainstrust as we take on the iconic Brighton Marathon for people living with a brain tumour diagnosis. The UK’s third largest marathon, not to mention most picturesque, will return on Sunday 12 April 2026! The fast and beautiful 26.2-mile course starts at Preston Park, and into Withdean before turning back down the London […]

Read more
April 19th, 2026

Manchester Marathon 2026 Waiting list

Join team brainstrust’s mission to help people with a brain tumour at the fourth largest marathon in Europe. This is also the flattest major marathon with great PB potential. As with every year all finishers will get a  funky medal and other goodies!  Waiting list places now available but limited.

Read more
April 26th, 2026

Shakespeare Half & Marathon Series 2026

Join Team Brainstrust’s mission to help those with a brain tumour at the Shakespeare Half or Marathon 2026. This flat and fast route, follows 1 lap for the half marathon and 2 laps for the marathon. The majority of the route follows closed roads around the town, with the remainder on the Stratford Greenway footpath, a […]

Read more
May 3rd, 2026

Great Birmingham Run Series – 10k / Half Marathon 2026

Join brainstrust’s mission to help those with a brain tumour at the Great Birmingham Run Series. The AJ Bell Great Birmingham Run is the Midlands’ biggest and best running event, with thousands of Brummie runners taking to the streets every year to challenge themselves and raise cash for charity. There’s everything you’d expect from a […]

Read more
May 9th, 2026

Nuclear Races – 6 & 12k challenges – May to November 2026

Join team brainstrust’s mission to help people with a brain tumour at the Nuclear Races in Brentwood, Essex. Events are open to anyone and includes challenges at  6 & 12km. Nuclear is well known for delivering UK’s most award winning events with big, high quality, achievable, natural & man-made obstacles designed to test every ability […]

Read more
May 9th, 2026

Tough Mudder 5km / 15km Challenges – May – October Nationwide 2026

Join team brainstrust’s mission to help people with a brain tumour at the 2025 Tough Mudder. The ultimate obstacle course challenge now has 20+ obstacles over a 15 Kilometre run. With no competition and no timing, it’s just you, your teammates and muddy strangers working together to conquer the course and earn the world-famous orange headband. […]

Read more
May 10th, 2026

Great Bristol Run Series – 10k/ Half Marathon 2026

Join brainstrust’s mission to help those with a brain tumour at the Great Bristol Run 2026. Each year, thousands of runners push their perseverance and passion to the limit and take on the super-scenic 10k and half marathon routes at the AJ Bell Great Bristol Run. If stunning views, inspiring history and graffiti murals are […]

Read more
May 10th, 2026

Leeds Half Marathon 2026

Join team brainstrust’s mission to help people with a brain tumour at Leeds Half Marathon, Yorkshire’s biggest and loudest event.  With a fantastically vibrant atmosphere guaranteed, this run could be right up your street. The much-loved run raises hundreds of thousands of pounds for charity every year and often attracts more than 7,500 runners. The race starts […]

Read more
May 10th, 2026

Leeds Marathon 2026

Join team brainstrust’s mission to help people with a brain tumour at the Rob Burrows Leeds Marathon. The Rob Burrow Leeds Marathon will see 7,777 participants take on a brand new route through Leeds that starts and finishes at Headingley Stadium.  This is an event that truly is for everyone, so whether you are an experienced runner […]

Read more
May 10th, 2026

Bidwells Oxford 10k Town & Gown 2026

Join Team Brainstrust’s mission to help those with a brain tumour at the Bidwells Oxford 10k Town & Gown 2026. As the only closed-route 10k race in Oxford, this sell-out event offers a unique opportunity to run on city roads amidst Oxford’s scenic landmarks and historic charm. The course also features beautiful stretches through the city’s […]

Read more
May 17th, 2026

Lark Rise Bike Ride 2026

Join Us for this years Lark Rise Bike Ride: A Fantastic Day for All Get ready for another incredible Lark Rise Bike Ride! A fun, family-friendly event, this ride takes you through the stunning historic landscape that inspired Flora Thompson’s Lark Rise to Candleford. With three route options to choose from, there’s something for everyone!  […]

Read more
May 17th, 2026

Hackney Half Marathon – Waiting List 2026

Join team brainstrust’s mission to help people with a brain tumour at this fast, flat, PB potential half marathon. The Hackney Half sells out every year and is renowned for its festival atmosphere and fantastic crowd support.  There will be entertainment stations along the route and a festival village for you to enjoy post race. Registration has […]

Read more
May 17th, 2026

Essar Chester Half Marathon 2026

Join team brainstrust’s mission to help people with a brain tumour at the Essar Chester Half Marathon 2026. The Chester Half is one of the UK’s longest established and most highly regarded half marathons, starting and finishing in the historic Roman/Medieval international destination city of Chester. The fast and largely flat city and rural race route will […]

Read more
May 23rd, 2026

Edinburgh 5k – Edinburgh Marathon Festival 2026

Join team brainstrust’s mission to help people with a brain tumour at the Edinburgh 5k 2026. Come and be part of Scotland’s BIGGEST running festival! This ever-growing festival of running is now a major event in the Scottish sporting calendar. Starting in Edinburgh, the course heads out through East Lothian offering stunning views and an unforgettable running […]

Read more
May 23rd, 2026

Edinburgh 10k – Edinburgh Running Festival 2026

Join team brainstrust’s mission to help people with a brain tumour at the Edinburgh 10k 2026 Come and be part of Scotland’s BIGGEST running festival! This ever-growing festival of running is now a major event in the Scottish sporting calendar. Starting in Edinburgh, the course heads out through East Lothian offering stunning views and an […]

Read more
May 24th, 2026

Edinburgh Marathon Festival – 5km/10km / Half / Marathon

Join brainstrust’s mission to help people with a brain tumour at the Edinburgh Half Marathon 2026. Come and be part of Scotland’s BIGGEST running festival! This ever-growing festival of running is now a major event in the Scottish sporting calendar. Starting in Edinburgh, the course heads out through East Lothian offering stunning views and an […]

Read more
May 31st, 2026

Great Manchester Run Series 2026

Join Team Brainstrust’s mission to help those with a brain tumour at the Great Manchester Run series 2026.  Will you choose the 10k or Half Marathon? Join us for another spectacular running celebration in the heart of Manchester with the AJ Bell Great Manchester Run. The AJ Bell Great Manchester Run is the city’s original and best-loved […]

Read more
June 7th, 2026

Leeds Running Festival 5k/10k/Half – June 2026

Join Team Brainstrust’s mission to help those with a brain tumour at the Leeds Running Festival in June 2026. Join us for a unique opportunity to run a 5k, 10k or Half Marathon around Roundhay Park in Leeds, one of the biggest city parks in Europe. Each Mile will be accurately marked out and we have […]

Read more

Introduction

The Brain Tumour Data Dashboard lets you explore up -to-date, population level data about the brain tumours diagnosed in England between 2013 and 2015. Using the drop down menus on the left you can select different groups of patients to view in the charts below. In these charts the number of patients for every 100 diagnoses is displayed as images of people. Patients have been grouped by date of diagnosis, type of tumour, age, gender, and region in England.

For each group of patients you can explore the different routes to diagnosis, the proportion of those who received chemotherapy or radiotherapy, as well as the survival of the patients within each group. For more information about what these metrics mean please see the glossary.

How to use

  1. Select the year of diagnosis using the drop down menu.
  2. Select your patient group of interest from the four drop down menus in the following order:
    1. Tumour group
    2. Age at diagnosis
    3. Region of England
    4. Gender of patient
  3. To view a second chart to compare different groups of patients, click the ‘compare’ button.The second chart will appear below the first chart.

*Note that the tool is best used on a laptop or tablet rather than a mobile phone*

Unavailable data

Some of the data in these charts is not available.There are two main reasons for this:

  1. How the data has been grouped

If you cannot select a patient group from the drop down menus, the data is unavailable because of how the data has been organised.

Public Health England has grouped the data like a branching tree. The bottom of the tree contains all the patients with brain tumours, and then each branch divides the data by a certain characteristics, like age, or location of tumour. But the data is divided in an order, starting with location of the tumour (endocrine or brain), then by age, region, and gender. Age is at the start because it makes a bigger difference to survival rates and treatment rates than gender or region. Sometimes, after the data has been split by type of tumour and age, there is not enough data to be split again. This is because to protect patient confidentiality groups cannot contain less than 100 patients. Because some groups cannot be split further, you cannot create ‘totals’ for everyone by region or gender. For example, you cannot see results for all ages by region, or all brain tumours by gender. If these totals were calculated and released, it might be possible to identify patients, which is why Public Health England cannot release this data.

  1. Statistical reasons and data availability

If you can select a patient group from the chart menus, but the chart does not display, the data is unavailable for one of several reasons:

  1. Data is not yet available for the selected year from Public Health England.
  2. Data is not available because the data quality is too poor to release this statistic.
  3. Data is not available as the statistic is not appropriate for this group.
  4. Data is not available because the standard error of the estimate was greater than 20% and so the estimate has been supressed.

Up to date brain tumour data

Brain tumour data may influence the decisions you make about your care. Data also helps you understand the bigger picture, or landscape, in which you find yourself.

Brain tumour data and statistics influence the focus, and work of organisations like brainstrust. The information helps us to understand the scale and impact of the problems we are setting out to solve.

This tool helps you understand the landscape in which you find yourself having been diagnosed with a brain tumour. This landscape can be particularly tricky to navigate as there are many different types of brain tumour, all of which have a different impact.

The information you see represents the most up-to-date, official, population level brain tumour data available for England. Over time we will be adding to the brain tumour data available and publishing reports, with recommendations, as a result of what we learn from this data.

The data behind this content has come from Public Health England’s National Cancer Registration and Analysis Service (NCRAS) and is a direct result of the ‘Get Data Out’ project.

This project provides anonymised population level brain tumour data for public use in the form of standard output tables, accessible here: http://cancerdata.nhs.uk/standardoutput

Incidence

The number or rate (per head of population) of new cases of a disease diagnosed in a given population during a specified time period (usually a calendar year). The crude rate is the total number of cases divided by the mid-year population, usually expressed per 100,000 population.

Malignant

Malignant tumours which grow by invasion into surrounding tissues and have the ability to metastasise to distant sites

Mortality

The number or rate (per head of population) of deaths in a given population during a specified time period (usually a calendar year). The crude rate is the total number of deaths divided by the mid-year population, usually expressed per 100,000 population.

Non-malignant

Not cancerousNon-malignant tumours may grow larger but do not spread to other parts of the body.

Survival

The length of time from the date of diagnosis for a disease, such as cancer, that patients diagnosed with the disease are still alive. In a clinical trial, measuring the survival is one way to see how well a new treatment works. Also called ‘overall survival’ or ‘OS’.

Routes to Diagnosis

Under the ‘Routes to Diagnosis’ tab in the Brain Tumour Data Dashboard, you can explore the ways patients have been diagnosed with brain tumours. There are many ways, or routes, for cancers to be diagnosed in the NHS. A ‘route to diagnosis’ is the series of events between a patient and the healthcare system that leads to a diagnosis of cancer. The routes include:

  1. Two Week Wait

Patients are urgently referred by their GP for suspected cancer via the Two Week Wait system and are seen by a specialist within 2 weeks where they are diagnosed.

  1. GP referral

Diagnosis via a GP referral includes routine and urgent referrals where the patient was not referred under the Two Week Wait system.

  1. Emergency Presentation

Cancers can be diagnosed via emergency situations such as via A&E, emergency GP referral, emergency transfer or emergency admission.

  1. Outpatient

Outpatient cancer diagnoses include diagnoses via an elective route which started with an outpatient appointment that is either a self-referral or consultant to consultant referral. (It does not include those under the Two Week Wait referral system).

  1. Inpatient elective

Diagnosis via an inpatient elective route is where diagnosis occurs after the patient has been admitted into secondary care from a waiting list, or where the admission is booked or planned.

  1. Death Certificate Only

Diagnoses made by Death Certificate Only are made where there is no more information about the cancer diagnosis other than the cancer related death notifications. The date of diagnosis is the same as that of the date of death.

  1. Unknown

For some patients with a cancer diagnosis, there is no relevant data available to understand the route to diagnosis.

 

More information

If any of the statistical terms in this section of the brainstrust website are hard to understand, we recommend looking them up here:

Cancer Research UK’s Cancer Statistics Explained

http://www.cancerresearchuk.org/health-professional/cancer-statistics/cancer-stats-explained/statistics-terminology-explained#heading-Seven

If you are looking for help understanding terms relating specifically to brain tumours, and treatment, then the brainstrust glossary is available here:

https://www.brainstrust.org.uk/advice-glossary.php