brainstrust events

Our Thrive with brainstrust events will help you live better with a brain tumour. Below you can find information about upcoming webinars and meetups, both online and face-to-face. Filter by Patient and Carer events to see what’s happening this month. If you have any questions about our supportive events or would like to book a coaching session, please email hello@brainstrust.org.uk

You can also browse our calendar of upcoming fundraising events and campaigns. For the latest information about races and challenges, please keep in contact with event organisers or email fundraising@brainstrust.org.uk

Running events by region – brainstrust would love you to support the charity by taking on a challenge for us.  See what events are available in your region and do something amazing today!

  • All Events
  • Fundraising Events
  • Patient & Carer Events
December 4th, 2024

Last Art Time of 2024 – Weds 4th Dec 10.30am

Come and join us for our last art time of 2024, whether you’re a seasoned artist or a novice – join us for a very special two hours to discover how painting can be a wonderful mindful activity, allowing stresses and worries to fade into the background as you focus on the task at hand. […]

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December 4th, 2024

Hypnotherapy workshop: Scanxiety – Weds 4th Dec 14.00

Join us for a ground-breaking workshop designed to empower you with the tools to manage and transform your scan anxiety. Discover how neuroscience-informed hypnosis can offer you a new perspective and effective strategies to cope with the anxiety associated with medical scans, reducing anxiety and promoting a sense of calm.You will gain hands-on strategies to […]

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December 5th, 2024

Building a supportive community in Preston – Thurs 5th Dec 11.00am

A brain tumour diagnosis is terrifying, isolating and confusing. We know. But, when you get together with others who truly understand what you’re going through, incredible things can happen. Whether you’re living with a brain tumour or you are supporting a loved one, there’ll be something for everyone. We’re establishing a supportive healthcare community in […]

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December 5th, 2024

High Grade Group – Thurs 5th Dec 13.00

This informal social group is just for people living with a high grade (3/4) tumour diagnosis and their supporters. There are no fixed conversation topics and no agendas. Just pop in to say hello and spend time in the same space as others who understand.  

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December 5th, 2024

Santa in the City – 2024 London Santa Run

Santa run event dates: December 4th, 5th or 6th, 2024 Get the whole family in the mood for the festive period and help people living with a brain tumour. Santa in the City starts at the Millennium Bridge and takes in the South Bank, Tower of London and Tower Bridge before finishing in front of […]

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December 5th, 2024

Tea and a wee blether – Thurs 5th Dec 11.00am

Grab a cuppa and come and join us for tea and a wee blether!! Here you’ll have the opportunity to meet, chat and connect with others in our community. It’s for anyone affected by a brain tumour diagnosis, and just like our face-to-face meetups it is a warm, welcoming safe space for you. There’s no […]

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December 11th, 2024

Living with a low grade glioma – Weds 11th Dec 16.00

Living with a low grade glioma brain tumour brings about its own challenges. Not only do you have to live with the symptoms that these tumours can bring (epilepsy has a high prevalence rate) but also the uncertain trajectory of a low grade glioma. By low grade we mean grade 2 tumours, and those that […]

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December 13th, 2024

Acoustic Neuroma (Vestibular Schwannoma) Group – Fri Dec 13th 13.00

An acoustic neuroma diagnosis can be a very difficult thing to come to terms with. Come along to meet others who are going through a similar experience. Grab a coffee, say hello, you will be glad you did.  

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December 13th, 2024

Colloid Cyst Group – Fri 20th Dec 13.00

We know that having a colloid cyst diagnosis can feel isolating and information is often hard to find. Come along to this relaxed virtual meetup to connect with others that really get it. There’s no agenda – grab a cuppa and pop along to say hello.

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December 18th, 2024

Living with a Meningioma – Weds 18th Dec 18.00

STOP’EM is a study for adults with a meningioma that needs surgical removal and who have not had a seizure before. We want to know if a short course of an anti-seizure medication (ASM) started 1 day before surgery prevents seizures happening after surgery. Professor Michael Jenkinson and Associate Professor Neurosurgery Adel Helmy are joining us […]

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December 19th, 2024

Meningioma Matters – Thurs 19th Dec 13.00

We know how hard it is living with a meningioma, whether you’re a patient or a caregiver. We’d love to hear how you are getting on, what you’re struggling with. Conversation is one of life’s sweetest joys. Good conversation is not just a fringe benefit – it’s the means by which we stay sane, contented […]

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March 9th, 2025

Paris Half Marathon

Join team brainstrust’s mission to help people with a brain tumour at the Paris Half Marathon. The Paris Half Marathon is one of the best overseas half marathons for UK runners to take part in! The World famous fashion capital ups the ante when it comes to running for charity. A vibrant atmosphere as you […]

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March 9th, 2025

Cambridge Half Marathon 2025

Join team brainstrust as we take on the 2025 Cambridge Half Marathon for people with a brain tumour. This flat and fast course starts and finishes on Victoria Avenue in the centre of Cambridge with Midsummer Common as the event site. The route has been updated for 2025 and will now take you through the […]

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March 16th, 2025

Barcelona Marathon 2025

Join team brainstrust’s mission to help people with a brain tumour at the Barcelona Marathon. With very few hills or inclines, the course is very flat and fast, and suits first time runners, or those going for a PB!  The Barcelona Marathon is one of the most popular in Europe.  The course takes you through […]

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March 16th, 2025

Bath Half Marathon 2025

Join team brainstrust’s mission to help people with a brain tumour at the Bath Half Marathon. The Bath Half Marathon is a ‘big city’ race, starting and finishing in Bath city centre. This course is fast and undulating with proven potential to set a new personal best. Join 15,000 other runners on the flat, picturesque […]

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March 23rd, 2025

Sheffield Half Marathon

Join team brainstrust’s mission to help people with a brain tumour at the Sheffield Half Marathon. A major event in the UK’s running calendar, the Sheffield Half Marathon is South Yorkshire’s biggest event of its kind. Thousands of runners of all abilities will be taking part, raising many thousands of pounds for numerous great causes. With a city […]

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April 6th, 2025

London Landmarks Half Marathon 2025

London Landmarks Half places are available with team brainstrust. Event date: April 6th, 2025 Take on the 2025 London Landmarks Half Marathon with us to help people living with a brain tumour. This hugely popular half marathon takes in the iconic Westminster Bridge and Charing Cross Road, up past Leicester Square and China Town. Adding even […]

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April 6th, 2025

Milan Marathon 2025

Join team brainstrust’s mission to help people with a brain tumour at the fantastic Milan Marathon. A fast and scenic course that runs mostly in the heart of the city, medal and jersey for all finishers, plus a state-of-the-art Running Festival that turns into a modern and engaging running fair for three days. The start and finish […]

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April 6th, 2025

Brighton Marathon 2025

Join Team brainstrust as we take on the iconic Brighton Marathon for people living with a brain tumour diagnosis. The UK’s third largest marathon, not to mention most picturesque, will return on Sunday 6 April 2025! The fast and beautiful 26.2-mile course starts at Preston Park, and into Withdean before turning back down the London […]

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April 13th, 2025

Paris Marathon

Join team brainstrust’s mission to help people with a brain tumour at the world famous Paris Marathon. The Schneider Electric Marathon de Paris is now one of the biggest marathons in the world and perfectly combines a personal challenge with the chance to discover one of the world’s greatest cities. Race day will see you […]

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May 4th, 2025

Great Birmingham 10k 2025

Join team brainstrust’s mission to help people with a brain tumour at the Great Birmingham 10k. The AJ Bell Great Birmingham Run is the Midlands’ biggest and best running event, with thousands of Brummie runners taking to the streets every year to challenge themselves and raise cash for charity. There’s everything you’d expect from a […]

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May 4th, 2025

Great Birmingham Half Marathon 2025

Join team brainstrust’s mission to help people with a brain tumour at the Great Birmingham Half Marathon. The AJ Bell Great Birmingham Run is the Midlands’ biggest and best running event, with thousands of Brummie runners taking to the streets every year to challenge themselves and raise cash for charity. There’s everything you’d expect from […]

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May 10th, 2025

Tough Mudder 5km / 15km Challenge 2025

Join team brainstrust’s mission to help people with a brain tumour at the 2025 Tough Mudder in London. The ultimate obstacle course challenge now has 20+ obstacles over a 15 Kilometre run. With no competition and no timing, it’s just you, your teammates and muddy strangers working together to conquer the course and earn the world-famous orange […]

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May 11th, 2025

Great Bristol Run 10k 2025

Join team brainstrust’s mission to help people with a brain tumour at the Great Bristol Run 10k. Each year, thousands of runners push their perseverance and passion to the limit and take on the super-scenic 10k and half marathon routes at the AJ Bell Great Bristol Run. If stunning views, inspiring history and graffiti murals are […]

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May 11th, 2025

The Great Bristol Run Half Marathon 2025

Join team brainstrust’s mission to help people with a brain tumour at the Great Bristol Run Half Marathon. Each year, thousands of runners push their perseverance and passion to the limit and take on the super-scenic 10k and half marathon routes at the AJ Bell Great Bristol Run. If stunning views, inspiring history and graffiti […]

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May 18th, 2025

Great Manchester Run 10k 2025

Join team brainstrust’s mission to help people with a brain tumour at the Great Manchester Run 10k. The AJ Bell Great Manchester Run is the city’s original and best-loved running event – over 99% of runners say they’d recommend it to a friend. And in true Mancunian style, it’s a party from start to finish, […]

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May 18th, 2025

The Great Manchester Run Half Marathon 2025

Join team brainstrust’s mission to help people with a brain tumour at the Great Manchester Half Marathon. The AJ Bell Great Manchester Run is the city’s original and best-loved running event – over 99% of runners say they’d recommend it to a friend. And in true Mancunian style, it’s a party from start to finish, […]

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May 18th, 2025

Hackney Half Marathon

Join team brainstrust’s mission to help people with a brain tumour at this fast, flat, PB potential half marathon. The Hackney Half sells out every year and is renowned for its festival atmosphere and fantastic crowd support.  There will be entertainment stations along the route and a festival village for you to enjoy post race. Registration closes […]

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May 25th, 2025

Edinburgh Marathon 2025

Join team brainstrust’s mission to help people with a brain tumour at the Edinburgh Marathon. The marathon route is one of the fastest in the UK making that elusive personal best a distinct possibility! Edinburgh Marathon joined the world’s elite road races in 2012 by becoming the first marathon in Scotland to be officially recognised […]

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May 25th, 2025

Edinburgh Half Marathon 2025

Join team brainstrust’s mission to help people with a brain tumour at the Edinburgh Half Marathon 2025. Come and be part of Scotland’s BIGGEST running festival! This ever-growing festival of running is now a major event in the Scottish sporting calendar. Starting in Edinburgh, the course heads out through East Lothian offering stunning views and […]

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October 5th, 2025

Cardiff Half Marathon

Join team brainstrust’s mission to help people with a brain tumour at this well established Half Marathon which is now into its 22nd  year and part of the super half series that includes Prague, Berlin, Lisbon, Valencia. The Cardiff Half Marathon has grown into one of the largest and most exciting road races in Europe. It is […]

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October 12th, 2025

Manchester Half Marathon 2025

Join team brainstrust’s mission to help people with a brain tumour at the sell out Manchester Half Marathon. This inaugural half marathon sees runners take on generous, closed roads across the towns of Old Trafford, Stretford & Brooklands, with the promise of great support and an abundance of entertainment en route. The Manchester Half Marathon hosts […]

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October 19th, 2025

The Great South Run 2025

Join team brainstrust’s mission to help people with a brain tumour at the  Great South Run. The AJ Bell Great South Run is probably the world’s favourite 10-miler, with inspiring history, salty air and glorious sea views guaranteed. Portsmouth’s supporters will keep your spirits and motivation up the whole way round, with blaring music, cheers, […]

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Introduction

The Brain Tumour Data Dashboard lets you explore up -to-date, population level data about the brain tumours diagnosed in England between 2013 and 2015. Using the drop down menus on the left you can select different groups of patients to view in the charts below. In these charts the number of patients for every 100 diagnoses is displayed as images of people. Patients have been grouped by date of diagnosis, type of tumour, age, gender, and region in England.

For each group of patients you can explore the different routes to diagnosis, the proportion of those who received chemotherapy or radiotherapy, as well as the survival of the patients within each group. For more information about what these metrics mean please see the glossary.

How to use

  1. Select the year of diagnosis using the drop down menu.
  2. Select your patient group of interest from the four drop down menus in the following order:
    1. Tumour group
    2. Age at diagnosis
    3. Region of England
    4. Gender of patient
  3. To view a second chart to compare different groups of patients, click the ‘compare’ button.The second chart will appear below the first chart.

*Note that the tool is best used on a laptop or tablet rather than a mobile phone*

Unavailable data

Some of the data in these charts is not available.There are two main reasons for this:

  1. How the data has been grouped

If you cannot select a patient group from the drop down menus, the data is unavailable because of how the data has been organised.

Public Health England has grouped the data like a branching tree. The bottom of the tree contains all the patients with brain tumours, and then each branch divides the data by a certain characteristics, like age, or location of tumour. But the data is divided in an order, starting with location of the tumour (endocrine or brain), then by age, region, and gender. Age is at the start because it makes a bigger difference to survival rates and treatment rates than gender or region. Sometimes, after the data has been split by type of tumour and age, there is not enough data to be split again. This is because to protect patient confidentiality groups cannot contain less than 100 patients. Because some groups cannot be split further, you cannot create ‘totals’ for everyone by region or gender. For example, you cannot see results for all ages by region, or all brain tumours by gender. If these totals were calculated and released, it might be possible to identify patients, which is why Public Health England cannot release this data.

  1. Statistical reasons and data availability

If you can select a patient group from the chart menus, but the chart does not display, the data is unavailable for one of several reasons:

  1. Data is not yet available for the selected year from Public Health England.
  2. Data is not available because the data quality is too poor to release this statistic.
  3. Data is not available as the statistic is not appropriate for this group.
  4. Data is not available because the standard error of the estimate was greater than 20% and so the estimate has been supressed.

Up to date brain tumour data

Brain tumour data may influence the decisions you make about your care. Data also helps you understand the bigger picture, or landscape, in which you find yourself.

Brain tumour data and statistics influence the focus, and work of organisations like brainstrust. The information helps us to understand the scale and impact of the problems we are setting out to solve.

This tool helps you understand the landscape in which you find yourself having been diagnosed with a brain tumour. This landscape can be particularly tricky to navigate as there are many different types of brain tumour, all of which have a different impact.

The information you see represents the most up-to-date, official, population level brain tumour data available for England. Over time we will be adding to the brain tumour data available and publishing reports, with recommendations, as a result of what we learn from this data.

The data behind this content has come from Public Health England’s National Cancer Registration and Analysis Service (NCRAS) and is a direct result of the ‘Get Data Out’ project.

This project provides anonymised population level brain tumour data for public use in the form of standard output tables, accessible here: http://cancerdata.nhs.uk/standardoutput

Incidence

The number or rate (per head of population) of new cases of a disease diagnosed in a given population during a specified time period (usually a calendar year). The crude rate is the total number of cases divided by the mid-year population, usually expressed per 100,000 population.

Malignant

Malignant tumours which grow by invasion into surrounding tissues and have the ability to metastasise to distant sites

Mortality

The number or rate (per head of population) of deaths in a given population during a specified time period (usually a calendar year). The crude rate is the total number of deaths divided by the mid-year population, usually expressed per 100,000 population.

Non-malignant

Not cancerousNon-malignant tumours may grow larger but do not spread to other parts of the body.

Survival

The length of time from the date of diagnosis for a disease, such as cancer, that patients diagnosed with the disease are still alive. In a clinical trial, measuring the survival is one way to see how well a new treatment works. Also called ‘overall survival’ or ‘OS’.

Routes to Diagnosis

Under the ‘Routes to Diagnosis’ tab in the Brain Tumour Data Dashboard, you can explore the ways patients have been diagnosed with brain tumours. There are many ways, or routes, for cancers to be diagnosed in the NHS. A ‘route to diagnosis’ is the series of events between a patient and the healthcare system that leads to a diagnosis of cancer. The routes include:

  1. Two Week Wait

Patients are urgently referred by their GP for suspected cancer via the Two Week Wait system and are seen by a specialist within 2 weeks where they are diagnosed.

  1. GP referral

Diagnosis via a GP referral includes routine and urgent referrals where the patient was not referred under the Two Week Wait system.

  1. Emergency Presentation

Cancers can be diagnosed via emergency situations such as via A&E, emergency GP referral, emergency transfer or emergency admission.

  1. Outpatient

Outpatient cancer diagnoses include diagnoses via an elective route which started with an outpatient appointment that is either a self-referral or consultant to consultant referral. (It does not include those under the Two Week Wait referral system).

  1. Inpatient elective

Diagnosis via an inpatient elective route is where diagnosis occurs after the patient has been admitted into secondary care from a waiting list, or where the admission is booked or planned.

  1. Death Certificate Only

Diagnoses made by Death Certificate Only are made where there is no more information about the cancer diagnosis other than the cancer related death notifications. The date of diagnosis is the same as that of the date of death.

  1. Unknown

For some patients with a cancer diagnosis, there is no relevant data available to understand the route to diagnosis.

 

More information

If any of the statistical terms in this section of the brainstrust website are hard to understand, we recommend looking them up here:

Cancer Research UK’s Cancer Statistics Explained

http://www.cancerresearchuk.org/health-professional/cancer-statistics/cancer-stats-explained/statistics-terminology-explained#heading-Seven

If you are looking for help understanding terms relating specifically to brain tumours, and treatment, then the brainstrust glossary is available here:

https://www.brainstrust.org.uk/advice-glossary.php