In Do your own thing, Fundraising, Fundraising News

When Suzanne’s dad was diagnosed with primary small cell lung cancer that had spread to his brain, life changed forever. After he sadly passed away on 21st September 2023, Suzanne was determined to honour his memory in a way that reflected their shared love of adrenaline-fuelled adventures. One item high on his bucket list was Wing Walking — so Suzanne decided to take to the skies, not only to tick it off in his honour but also to raise vital funds for brainstrust, a charity close to her heart.

In Suzanne’s own words:

brainstrust is a charity close to my heart because my dad was diagnosed with primary small cell lung cancer which had spread to his brain, sadly on the 21st September 2023 my dad passed away.

We enjoyed doing many different adrenaline challenges together and Wing Walking was high up on his list! He inspired me to carry on with his bucket list and to raise money for charity in tow, so it seemed extremely fitting for me to do this for brainstrust.

For starters I personally booked the Wing Walk and then set up my JustGiving page and contacted brainstrust for their help to get posters of which I displayed in my workplace etc, and they sent me a neck scarf so I could wear this on the day. I shared this on social media on a regular basis, sent emails to work colleagues around pay day which seemed to help, you’ve got to be tactical!

I didn’t feel nervous until I got to the airfield on the day of my Wing Walk. I tried to share as much of my journey as possible to try and increase donations. I did a video of me pretending I had wings, added music and again popped this onto social media. My husband and mum were there to be my cheerleaders they watched from the viewing platform whilst I got myself positioned onto the wing of the plane. I was extremely nervous and tried shuffling my feet around to get comfortable, I remember thinking I’m just stood on a plane doing a Wing Walk nothing to be afraid of I’m all strapped in. We set off heading towards the viewing platform and my adrenaline starting to kick in I did all sorts of funny actions with my arms and blew kisses to my family then it struck me why I was doing this the and the one person I wanted here wasn’t! It was quite emotional but also exciting at the same time.

Once we took flight all my nerves seemed to calm and I was at ease, it was such a fantastic and surreal feeling to feel so free and to enjoy the scenery below. The weather conditions were perfect, sunshine galore. I was a bit shaky dissembling from the plane, but the adrenaline was pumping through my body, and I felt fantastic! This has got to be one of the top experiences I have done! And I’d do it again tomorrow would even love to do a loop the loop!

It’s quite sad as once you start talking to people and explain what you’re doing and why as they can relate to you as they either have a family member or know someone who has gone or is going through brain cancer.

 

My mission was to raise as much money as I can and if I could just inspire one person to take on a challenge or raise awareness of this heart-breaking disease then my job is done. Don’t put it off set yourself a challenge and once completed its truly humbling knowing that you’ve helped.

Suzanne has raised an incredible £785.00 – enough to fund 19 brain boxes.  The brain box is a must have support toolkit for people with a new brain tumour diagnosis and their caregivers. Fully customisable, with resources relevant to your unique situation, the brain box also comes with treats like teabags and self-care items.

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Turning Grief into Hope: One Family’s Journey After a Brain Tumour DiagnosisDo your own thing, Fundraising, Fundraising News

Introduction

The Brain Tumour Data Dashboard lets you explore up -to-date, population level data about the brain tumours diagnosed in England between 2013 and 2015. Using the drop down menus on the left you can select different groups of patients to view in the charts below. In these charts the number of patients for every 100 diagnoses is displayed as images of people. Patients have been grouped by date of diagnosis, type of tumour, age, gender, and region in England.

For each group of patients you can explore the different routes to diagnosis, the proportion of those who received chemotherapy or radiotherapy, as well as the survival of the patients within each group. For more information about what these metrics mean please see the glossary.

How to use

  1. Select the year of diagnosis using the drop down menu.
  2. Select your patient group of interest from the four drop down menus in the following order:
    1. Tumour group
    2. Age at diagnosis
    3. Region of England
    4. Gender of patient
  3. To view a second chart to compare different groups of patients, click the ‘compare’ button.The second chart will appear below the first chart.

*Note that the tool is best used on a laptop or tablet rather than a mobile phone*

Unavailable data

Some of the data in these charts is not available.There are two main reasons for this:

  1. How the data has been grouped

If you cannot select a patient group from the drop down menus, the data is unavailable because of how the data has been organised.

Public Health England has grouped the data like a branching tree. The bottom of the tree contains all the patients with brain tumours, and then each branch divides the data by a certain characteristics, like age, or location of tumour. But the data is divided in an order, starting with location of the tumour (endocrine or brain), then by age, region, and gender. Age is at the start because it makes a bigger difference to survival rates and treatment rates than gender or region. Sometimes, after the data has been split by type of tumour and age, there is not enough data to be split again. This is because to protect patient confidentiality groups cannot contain less than 100 patients. Because some groups cannot be split further, you cannot create ‘totals’ for everyone by region or gender. For example, you cannot see results for all ages by region, or all brain tumours by gender. If these totals were calculated and released, it might be possible to identify patients, which is why Public Health England cannot release this data.

  1. Statistical reasons and data availability

If you can select a patient group from the chart menus, but the chart does not display, the data is unavailable for one of several reasons:

  1. Data is not yet available for the selected year from Public Health England.
  2. Data is not available because the data quality is too poor to release this statistic.
  3. Data is not available as the statistic is not appropriate for this group.
  4. Data is not available because the standard error of the estimate was greater than 20% and so the estimate has been supressed.

Up to date brain tumour data

Brain tumour data may influence the decisions you make about your care. Data also helps you understand the bigger picture, or landscape, in which you find yourself.

Brain tumour data and statistics influence the focus, and work of organisations like brainstrust. The information helps us to understand the scale and impact of the problems we are setting out to solve.

This tool helps you understand the landscape in which you find yourself having been diagnosed with a brain tumour. This landscape can be particularly tricky to navigate as there are many different types of brain tumour, all of which have a different impact.

The information you see represents the most up-to-date, official, population level brain tumour data available for England. Over time we will be adding to the brain tumour data available and publishing reports, with recommendations, as a result of what we learn from this data.

The data behind this content has come from Public Health England’s National Cancer Registration and Analysis Service (NCRAS) and is a direct result of the ‘Get Data Out’ project.

This project provides anonymised population level brain tumour data for public use in the form of standard output tables, accessible here: http://cancerdata.nhs.uk/standardoutput

Incidence

The number or rate (per head of population) of new cases of a disease diagnosed in a given population during a specified time period (usually a calendar year). The crude rate is the total number of cases divided by the mid-year population, usually expressed per 100,000 population.

Malignant

Malignant tumours which grow by invasion into surrounding tissues and have the ability to metastasise to distant sites

Mortality

The number or rate (per head of population) of deaths in a given population during a specified time period (usually a calendar year). The crude rate is the total number of deaths divided by the mid-year population, usually expressed per 100,000 population.

Non-malignant

Not cancerous. Non-malignant tumours may grow larger but do not spread to other parts of the body.

Survival

The length of time from the date of diagnosis for a disease, such as cancer, that patients diagnosed with the disease are still alive. In a clinical trial, measuring the survival is one way to see how well a new treatment works. Also called ‘overall survival’ or ‘OS’.

Routes to Diagnosis

Under the ‘Routes to Diagnosis’ tab in the Brain Tumour Data Dashboard, you can explore the ways patients have been diagnosed with brain tumours. There are many ways, or routes, for cancers to be diagnosed in the NHS. A ‘route to diagnosis’ is the series of events between a patient and the healthcare system that leads to a diagnosis of cancer. The routes include:

  1. Two Week Wait

Patients are urgently referred by their GP for suspected cancer via the Two Week Wait system and are seen by a specialist within 2 weeks where they are diagnosed.

  1. GP referral

Diagnosis via a GP referral includes routine and urgent referrals where the patient was not referred under the Two Week Wait system.

  1. Emergency Presentation

Cancers can be diagnosed via emergency situations such as via A&E, emergency GP referral, emergency transfer or emergency admission.

  1. Outpatient

Outpatient cancer diagnoses include diagnoses via an elective route which started with an outpatient appointment that is either a self-referral or consultant to consultant referral. (It does not include those under the Two Week Wait referral system).

  1. Inpatient elective

Diagnosis via an inpatient elective route is where diagnosis occurs after the patient has been admitted into secondary care from a waiting list, or where the admission is booked or planned.

  1. Death Certificate Only

Diagnoses made by Death Certificate Only are made where there is no more information about the cancer diagnosis other than the cancer related death notifications. The date of diagnosis is the same as that of the date of death.

  1. Unknown

For some patients with a cancer diagnosis, there is no relevant data available to understand the route to diagnosis.

 

More information

If any of the statistical terms in this section of the brainstrust website are hard to understand, we recommend looking them up here:

Cancer Research UK’s Cancer Statistics Explained

http://www.cancerresearchuk.org/health-professional/cancer-statistics/cancer-stats-explained/statistics-terminology-explained#heading-Seven

If you are looking for help understanding terms relating specifically to brain tumours, and treatment, then the brainstrust glossary is available here:

https://www.brainstrust.org.uk/advice-glossary.php