Press Releases Archives - Page 8 of 9 - Brainstrust, brain tumour charity

In Brain News, Press Releases, Research News

Posted 30th May 2018

DCVax brain tumour immunotherapy: the facts

Brain tumour immunotherapy, particularly DCVax is gaining an increasing amount of media coverage and interest. We are seeing a growing number of calls to our brain tumour support helpline about [...]

By Will @ brainstrust

In Brain News, Brain Tumour Data, Charity News, Press Releases, Research News

Posted 30th April 2018

New, routinely accessible brain tumour data to help people understand the impact of the disease.

Until recently, up to date, accurate population level brain tumour data has been hard to get. brainstrust and Public Health England’s National Cancer Registration Service (NCRAS) have been [...]

By brainstrust-dev

In Press Releases

Posted 17th November 2016

brainstrust launches Leeds office

Leading supportive brain tumour charity, brainstrust, has established an office in Leeds to help patients and caregivers across the North of England. The new Leeds office, at [...]

By brainstrust-dev

In Press Releases

Posted 6th September 2011

brainstrust funds the launch of the UK’s first nationwide brain tumour tissue bank Charlotte’s Bank of Hope

brainstrust, the Meg Jones brain cancer charity, has just announced it is to fund the UK’s first nationally accessible brain tumour tissue bank. The tissue bank is being launched on 20th [...]

By brainstrust-dev

In Press Releases

Posted 30th March 2011

brainstrust publishes ‘The Snaggle Tooth Splat’ â€“ an illustrated book to support children suffering with brain cancer

brainstrust, the Meg Jones brain cancer charity, has just published The Snaqgle Tooth Splat, an illustrated children’s story book designed to explain to children who have just been [...]

By brainstrust-dev

In Press Releases

Posted 23rd February 2011

brainstrust launches the Brain Tumour Hub to mark Brain Tumour Awareness Month March 2011

brainstrust, the Meg Jones brain cancer charity, is launching its latest pioneering initiative, the Brain Tumour Hub, on 1 March 2011 to coincide with Brain Tumour Awareness Month in the UK where [...]

By brainstrust-dev

In Press Releases

Posted 1st February 2011

Shooter Richard Faulds MBE becomes latest patron of brainstrust

Richard Faulds MBE, the Olympic Gold medallist and multi World, European and British shooting champion, has agreed to become the latest patron of brainstrust, the Meg Jones brain cancer charity. [...]

By brainstrust-dev

In Press Releases

Posted 4th June 2010

Brain tumour patient Keith Knight to ride 450 miles around SW Ireland for brainstrust

Brain tumour patient, Keith Knight from Brentwood is setting his sights on raising £5,000 for brainstrust by riding 450 miles around the south west coastline of Ireland with two [...]

By brainstrust-dev

In Press Releases

Posted 1st March 2010

Just been diagnosed with a brain tumour? Here are brainstrustâ€™s top ten tips to cope in the immediate aftershock

March 2010 is Brain Tumour Awareness Month in the UK where 6,000 new cases of primary brain tumour are diagnosed every year. Worst still, brain cancer kills more children than any other [...]

By brainstrust-dev

In Press Releases

Posted 18th February 2010

brainstrust launches new â€˜meet-upsâ€™ patient support concept

Brain Tumour Awareness Month – March 2010 On 16 March 2010, brainstrust – the Meg Jones brain cancer charity – is launching a new approach to patient support, patient and [...]

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Introduction

The Brain Tumour Data Dashboard lets you explore up -to-date, population level data about the brain tumours diagnosed in England between 2013 and 2015. Using the drop down menus on the left you can select different groups of patients to view in the charts below. In these charts the number of patients for every 100 diagnoses is displayed as images of people. Patients have been grouped by date of diagnosis, type of tumour, age, gender, and region in England.

For each group of patients you can explore the different routes to diagnosis, the proportion of those who received chemotherapy or radiotherapy, as well as the survival of the patients within each group. For more information about what these metrics mean please see the glossary.

How to use

Select the year of diagnosis using the drop down menu.
Select your patient group of interest from the four drop down menus in the following order:
1. Tumour group
2. Age at diagnosis
3. Region of England
4. Gender of patient
To view a second chart to compare different groups of patients, click the ‘compare’ button.The second chart will appear below the first chart.

*Note that the tool is best used on a laptop or tablet rather than a mobile phone*

Unavailable data

Some of the data in these charts is not available.There are two main reasons for this:

How the data has been grouped

If you cannot select a patient group from the drop down menus, the data is unavailable because of how the data has been organised.

Public Health England has grouped the data like a branching tree. The bottom of the tree contains all the patients with brain tumours, and then each branch divides the data by a certain characteristics, like age, or location of tumour. But the data is divided in an order, starting with location of the tumour (endocrine or brain), then by age, region, and gender. Age is at the start because it makes a bigger difference to survival rates and treatment rates than gender or region. Sometimes, after the data has been split by type of tumour and age, there is not enough data to be split again. This is because to protect patient confidentiality groups cannot contain less than 100 patients. Because some groups cannot be split further, you cannot create ‘totals’ for everyone by region or gender. For example, you cannot see results for all ages by region, or all brain tumours by gender. If these totals were calculated and released, it might be possible to identify patients, which is why Public Health England cannot release this data.

Statistical reasons and data availability

If you can select a patient group from the chart menus, but the chart does not display, the data is unavailable for one of several reasons:

Data is not yet available for the selected year from Public Health England.
Data is not available because the data quality is too poor to release this statistic.
Data is not available as the statistic is not appropriate for this group.
Data is not available because the standard error of the estimate was greater than 20% and so the estimate has been supressed.

Incidence

The number or rate (per head of population) of new cases of a disease diagnosed in a given population during a specified time period (usually a calendar year). The crude rate is the total number of cases divided by the mid-year population, usually expressed per 100,000 population.

Malignant

Malignant tumours which grow by invasion into surrounding tissues and have the ability to metastasise to distant sites

Mortality

The number or rate (per head of population) of deaths in a given population during a specified time period (usually a calendar year). The crude rate is the total number of deaths divided by the mid-year population, usually expressed per 100,000 population.

Non-malignant

Not cancerous. Non-malignant tumours may grow larger but do not spread to other parts of the body.

Survival

The length of time from the date of diagnosis for a disease, such as cancer, that patients diagnosed with the disease are still alive. In a clinical trial, measuring the survival is one way to see how well a new treatment works. Also called ‘overall survival’ or ‘OS’.

Routes to Diagnosis

Under the ‘Routes to Diagnosis’ tab in the Brain Tumour Data Dashboard, you can explore the ways patients have been diagnosed with brain tumours. There are many ways, or routes, for cancers to be diagnosed in the NHS. A ‘route to diagnosis’ is the series of events between a patient and the healthcare system that leads to a diagnosis of cancer. The routes include:

Two Week Wait

Patients are urgently referred by their GP for suspected cancer via the Two Week Wait system and are seen by a specialist within 2 weeks where they are diagnosed.

GP referral

Diagnosis via a GP referral includes routine and urgent referrals where the patient was not referred under the Two Week Wait system.

Emergency Presentation

Cancers can be diagnosed via emergency situations such as via A&E, emergency GP referral, emergency transfer or emergency admission.

Outpatient

Outpatient cancer diagnoses include diagnoses via an elective route which started with an outpatient appointment that is either a self-referral or consultant to consultant referral. (It does not include those under the Two Week Wait referral system).

Inpatient elective

Diagnosis via an inpatient elective route is where diagnosis occurs after the patient has been admitted into secondary care from a waiting list, or where the admission is booked or planned.

Death Certificate Only

Diagnoses made by Death Certificate Only are made where there is no more information about the cancer diagnosis other than the cancer related death notifications. The date of diagnosis is the same as that of the date of death.

Unknown

For some patients with a cancer diagnosis, there is no relevant data available to understand the route to diagnosis.

More information

If any of the statistical terms in this section of the brainstrust website are hard to understand, we recommend looking them up here:

Cancer Research UK’s Cancer Statistics Explained

http://www.cancerresearchuk.org/health-professional/cancer-statistics/cancer-stats-explained/statistics-terminology-explained#heading-Seven

If you are looking for help understanding terms relating specifically to brain tumours, and treatment, then the brainstrust glossary is available here:

https://www.brainstrust.org.uk/advice-glossary.php

Up to date brain tumour data

Brain tumour data may influence the decisions you make about your care. Data also helps you understand the bigger picture, or landscape, in which you find yourself.