Acoustic Neuroma community resources
The information on this page has been put together by our community for our community of people living with an Acoustic Neuroma. It has been designed to signpost you to support and services that other members of our community have found helpful.
We plan for this page to grow over time, so if you have anything that you would like to share on here, please get in touch with Jodie on email@example.com
The following information has been put together by Katie. Katie was diagnosed with an Acoustic Neuroma in 2017 and had surgery to remove it in February 2019 whilst she was living in Australia. Katie now lives back in the UK and is passionate about sharing her experience and knowledge to help others going through a similar experience.
‘Advocating for carers: a qualitative study exploring the needs of UK carers of patients with an acoustic neuroma’ is a study conducted by Katie, who completed an MSc in Health Pyschology.
If you would like a summary of the paper, click here.
‘The benefits of a clinic visit: how I connected course learning, personal experiences and observing a professional’ is an article written by Katie during her MSc studies on her experience of a clinic visit.
Following her surgery, Katie was diagnosed with grade 6 House-Brackman facial paralysis which resulted in her not being able to close her eyelids. Katie took the time to research options into managing this and things that may help, such as eyelid weights.
Our meetup community
Each month, we run a virtual meetup group for people with an Acoustic Neuroma. There is no agenda- it is a chance to chat with people who understand. Below you will find information that has been shared in these groups that you may find helpful for your own situation.
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