Background
Early-stage clinical trials are an important first step in developing new treatments, but deciding whether to take part can involve uncertainty around risks, potential benefits and what to expect.
PRIME by brainstrust is supporting researchers who want to work in partnership with adults affected by high grade glioma to better understand what shapes how people feel about early-stage trials. Your perspectives can help researchers understand what information people need when considering a trial, what might make taking part feel more or less acceptable, and what support and safeguards should be in place.
Who can get involved?
We are looking for:
- People living with high grade glioma
- Caregivers, family members and loved ones of someone affected by high grade glioma
- No previous research experience is needed- we simply ask that you bring your own experiences and perspectives.
What will you do?
Join a 90-minute online workshop with brainstrust to explore your thoughts and feelings about early-stage clinical trials.
We’ll talk about what you would want to know before considering a new treatment, what might influence your decision to take part, and what support or safeguards would matter to you.
This will be a small, informal conversation with no scientific knowledge needed. Your perspectives will help shape how researchers approach early-stage trials and the needs of people considering taking part.
Please note that these workshops will take place online via Zoom. You’ll receive joining details after registering.
