Low grade glioma community hub
When you are diagnosed with a Low Grade Glioma, having access to information that is relevant, reliable and helpful is incredibly important.
From speaking to our community, we know that many of you have dedicated lots of time to doing your own research on different topics related to a brain tumour diagnosis. This could include looking at treatment options, support services and services to help with symptom management.
On this page, you will find links to the information you need to feel in control, well resourced and less alone.
Information and advice from the community
The information on this page has been put together by our community for our Low Grade Glioma community. It has been designed to signpost you to support and services that other members of our community have found helpful.
Our support, information and events
A brain tumour diagnosis can leave you feeling overwhelmed, out of control and scared. In this section you will find information, resources and links to events to help you feel more resourced, less alone and less afraid after a Low Grade Glioma diagnosis.
Stories from people living with a low grade glioma
If you or someone close to you has been diagnosed with a Low Grade Glioma, it may help to know you are not alone, and you may also learn from others’ experiences. In this section you will find stories from other Low Grade Glioma patients and caregivers who have written about their experiences.
Coaching with brainstrust
Coaching begins with questions; we ask you what you need and what you want to achieve. It’s about collaborating with you, listening to you actively, and helping you build up a toolkit of skills to achieve your goals. With coaching, you focus on specific, definable issues with the intention of creating practical solutions that work for you.
Use our Thrive platform to get in-depth, on-going coaching support from our specialist support team. We can help you gain control of your situation to live the best life you can.
Click the button below to visit our ‘Thrive’ page and begin your coaching journey. Alternatively you can call 01983 292 405 to talk to a support specialist about how coaching could help you.
Help fund our mission
decrease in loneliness for people we support.
*See our impact report for a full break down of our impact
Just £5 a month could help us host our monthly Acoustic Neuroma meet up helping us connect more people with others who understand.