Little brainstrust – useful links for parents

Making day to day living a little bit easier Radar key – If treatment gives your child an unpredictable stomach, it can make the thought of going out anywhere new really challenging. […]
Paula’s story

Here Paula Middleton recounts her families story, how she and her husband wrote Toby the Teapot – to help children understand when their parent has a brain tumour. A quote […]
2020: a brand new year

What are your new year’s resolutions? A new year brings with it new opportunities. New year’s resolutions can be a helpful way to stay positive, to give you that extra […]
All about fatigue

Dry January? We’re thinking Jaded January. Dr Helen Bulbeck, our director of services and policy, reflects on the start of the new year and how to make real, achievable resolutions […]
Southampton Children’s Hospital programme: Ready Steady Go for children, teenagers and young adults with a brain tumour

There are over 500 families impacted by a childhood brain tumour diagnosis every year, with many children living with complex conditions and late effects from childhood through to adulthood. […]
Living with a brain tumour at Christmas

When you have a brain tumour, the excitement of the Christmas period can often be overbearing with the pressure to feel joyful, merry and bright. Below, Paula shares her experience […]
‘Brainy Bunch’ took on 100km and raised £15,962

Sam, Kate, Ciara, Tom and Rachel aka the ‘Brainy Bunch‘ walked 100km from London to Brighton in May this year and raised a PHENOMENAL £15,962.00. Speaking about the challenge Sam said: […]
Run, Row, Ride raises nearly £5,000!

This November, 24 fundraising superstars took on brainstrust’s brand new Run, Row, Ride challenge to complete 30 miles in 30 days, collectively raising nearly £5,000.00! They may have signed up […]
Margaret’s Run Row Ride Diary – Part 3

Margaret’s Run, Row, Ride Diary – The Final Instalment ! Day 10 I think.. Here in Sydney it’s Sunday 10th November. Another day, another airport and one scrambled brain (nothing […]
24 hours of brainstrust support

24 hours in the life of brainstrust support *All names of patients and carers have been changed. 10.30pm The support line took a call from Jo*, a patient, who was […]