Working with the NCRI to Develop Key Priorities for the Community
brainstrust has long been affiliated to the National Cancer Research Institute (NCRI) as the patient/caregiver advocate on the Brain Group. It is a privilege – it means we can bring […]
How Brain Tumours Hide Themselves From the Body’s Defences
A global team of researchers have put their heads together to determine how high-grade gliomas respond to treatment. Discovering this could explain how the cancer cells to hide from the […]
Katie’s story: living with a colloid cyst
Hi! My name is Katie, I am 25 years old, I am currently living in the lovely Kent countryside just outside of Southeast London. I work in a local secondary […]
Kay’s story
After suffering with migraines for years, Kay was diagnosed with a large Meningioma and had to undergo surgery. Kay has written about her experiences from diagnosis, through to surgery and […]
Explaining your brain tumour surgery to your children
Shelley, a member of the brainstrust community, has drawn on her own experience of being diagnosed with a meningioma, as well as her professional experience in education, to create a […]
Online Tool to Provide Mental and Sexual Health Support to Those with ABI by Coventry Researchers
Researchers at Coventry University have identified an unmet need for those with an acquired brain injury when it comes to mental and sexual well-being. As a result the researchers are […]
Life with an Acoustic Neuroma: Lin’s story
Lin from Kent was diagnosed with an Acoustic Neuroma in September 2020. Nearly two years on, Lin shares her story and experiences of life with an Acoustic Neuroma following recent […]
The Inaugural Jim Woods Memorial Ride
The Inaugural Jim Woods Memorial Ride “A great ride in memory of a great man” is how one Alton Cycling Club member described the Jim Woods Memorial Ride. The inaugural […]
Helping you navigate welfare and benefits
Helping you navigate welfare and benefits When you or someone close to you is diagnosed with a brain tumour, you may find yourself worrying about finances. You may be worried […]
We’re all going on a summer holiday… or are we?
We’re all going on a summer holiday . . .Or are we? Summer is tricky at the best of times. We’re emerging from COVID still –there are new variants doing […]