March 2013 brings UK brain tumour awareness month, and we’re working hard to make sure brain tumour patients and carers have a voice.
brainstrust has set up the online tool www.braintumourawareness.org.uk to help the brain tumour patient community share their concerns and experiences, which in turn could help others understand and then fix day to day issues.
brainstrust Director of Development, Will Jones says ‘there is a great opportunity for us to get to grips with the everyday challenges, big and small, that brain tumour patients and carers face. Our real work begins when we have identified key themes and issues registered via the online tool – from here we will work with the patient and clinical communities to make things better for brain tumour patients in the real world. Already we are seeing some opportunities where patient experience and quality of life could be improved. These are themes which fall outside of the traditional campaigning issues of research funding and generic awareness.’
To find out more, and to help us fix a real problem that you’re facing visit www.braintumourawareness.org.uk