The NICE Improving Outcomes Guidance (IOG) for people with brain and other CNS tumours was published in 2006 and one of its measures is carrying out a survey of satisfaction amongst patients and their carers. This survey found that many brain tumour patients and carers felt that ‘breaking bad news’ or giving of histology results could be improved. Historically histology results were given to patients in an ad-hoc fashion on a ward, by a surgeon and CNS.
The clinical nurse specialist team at King’s College Hospital took this on board and looked at new ways to improve the service given to patients when it came to breaking bad news. They found that the the CNS is ideally placed to be the news breaker and lead a results clinic offering support, information, all given in an organised manner. The poster, explaining methodology and results is below for you to take a look at.
Jamie Logan, who was involved in the study was given the opportunity to share the work at the European Association of Neuro Oncology (EANO) conference, and as we felt that this was an important step forward in improving care for brain tumour patients and their carers, brainstrust supported him in getting to the event and sharing his study. Here’s what Jamie had to say:
“It is important to share this information with the neuro oncology community. The EANO conference was 4 days, informing delegates of new and exciting research and advances in science and academia, including healthy debate on differences in practice. The European neuro oncology nurses also had a meeting to exchange good practice and look at how to improve nursing practice throughout Europe. The conference for me was a way to share practice, learn lots and network with keynote speakers and professionals from around Europe.”
So it’s great to see elements of the IOG coming to fruition. These things do take time. However, perhaps charities, patients and carers should be focussing on, and pushing for speedier implementation of specific, straightforward initiatives that form part of the Guidance. Particularly on ideas that can be implemented quickly across hospitals for minimal impact on resource, but maximum impact on patient wellbeing and experience.