We know that there are so many questions you need answering when you’re diagnosed with a brain tumour.
That’s why a few weeks ago we held a fascinating workshop which explored how National Cancer Registry data can be used for the benefit of the brain tumour community.
By bringing together people living with a brain tumour, their carers, health care professionals and key players from charities and cancer registry services, we aimed to identify what specific questions we, as a community, want answered and how new ways of looking at registry data can give us these answers.
We’re now working hard to take this forward. We hope that in the near future there will be a process in place where data can give people living with a brain tumour the answers about their condition that they need, so that they can regain control sooner.