We know that once diagnosed with a brain tumour, children feel scared, and their carers isolated. We know that the diagnosis can have a huge impact on parent and caregiver’s lives, but you don’t have to go through this alone.
Little things can help ease you through. Below are some new resources that you might find helpful. All are free to brain tumour patients and their loved ones. If you would like to request hard copies of any of the resources please get in touch with our Support Specialist for children and families, Khadijha.
This guide has been produced by brainstrust and has had input from esteemed health care professionals as well as parents of children with a brain tumour. This Who’s Who is designed for parents, children and teenagers to gain an insight into what the role of each professional is.
Little brainstrust Know Hows
Easy to read fact sheets to give you key points on topics chosen by our community. When it comes to brain tumours, accessing simple, factual information can be difficult. There is a great deal of conflicting information available that can leave you feeling confused and overwhelmed. We’ve created the brain tumour Know Hows so you can access concise, clear and impartial information about current topics. As with all of our resources, where they involve health information, our Know Hows are written following our rigorous Information Standard process, so you know that the information is trustworthy and reliable.
This Know How is intended to bring some clarity to a confusing topic. Medicinal cannabis is a broad term for any sort of cannabis-based medicine used to relieve symptoms. There are many mixed messages about cannabis in the media and within the brain tumour community. Many cannabis based products are available to buy online, but their quality and content is not known. They may be illegal and potentially dangerous. Certain things inside cannabis contain anticancer properties, but this does not make it an anticancer treatment.
We are often asked about second or even third opinions. Seeking more opinions has both advantages and disadvantages. This Know How has been designed to help you understand the pros and cons of a second opinion, bring some clarity as to what the options are and inform you how to go about seeking another opinion.
How to handle conflict
When you are living with a brain tumour, emotions can run high, as people are living with stress. At times like this, we tend to go to our default behaviour – what we know – and this can make things worse. This Know How will help you understand how to handle conflict, and try and turn it into something productive.
How to deal with overwhelm
When situations change, it is hard to know which way to turn. Things that you did so easily
suddenly become overwhelming. Some things are within your power to change. Some are not. This Know How is designed to help you understand the difference, and prioritise the things that you can have an impact on.
Access to the internet at the tips of our fingers has made getting hold of information quicker and easier than ever, but how can you know what sources to trust? Misinformation spreads fast online, and is sometimes shared by people with a large following.
This Know How will help you to understand what reliable websites look like, establish fact from fiction online and stop feeling overwhelmed by the volume of information available.
Have an idea for a Know How or other resource?
If the answer is yes, we want to hear from you! Get in touch and let us know by email or call 01983 292 405.