In Charity News, Patient & Carer Events

brainstrust Health and Well-being Day at Cliveden House

 At the stunning location of Cliveden House on Monday, we held our third Information, Health and Well-being event for the brain tumour community. These events happen thanks to Pablo Lievano and Greg Gerard, dear friends of brainstrust whose own brain tumour experiences have fueled their passion and determination to support others on this journey.

None of these events would have been possible without Pablo’s amazing vision, perseverance, networking skills and hard work, when he single-handedly created, organised and funded the first event. 

Maria Lievano

 

On the day

It’s been a journey seeing how the seasons change at Cliveden and boiling hot or freezing cold, the weather doesn’t diminish numbers or the enthusiasm of the audience, or the speakers.

With a jam-packed programme that gave time to education and relaxation, everyone left relaxed and much better able to face the challenges that living with a brain tumour brings.
This time we were privileged to have insights from:
  • Northwest Biotherapeutics about the role that immunotherapy has in treating glioblastoma. More information can be found in the Know How
  • Mr Plaha, consultant neurosurgeon, on the latest advances in first line treatment – brain surgery.
  • Experts in diet and nutrition, mindfulness, hypnotherapy and complementary therapies, who led various workshops throughout the day.

Read more about these incredible events here and you can watch a video for an insight into the day here.

 

What a difference a day makes

Pablo’s purpose was to help others in this dire situation who might not have his sheer doggedness to find the help they need. I am so proud of his legacy.

Mario Lievano

We are always striving to improve the events, services and resources that we have available for our community. To do this, it is vital for us to listen to

you, our community, and your feedback after events like the Health and Well-being Day. Here are the thoughts of a few attendees:

“It was amazing, I never imagined we would get this much access to everyone”.
”It was the perfect location and a real treat to be in such beautiful surroundings. We learnt a lot and met some lovely people. Over the last 6+ months we have been so busy with appointments and just coping.  We haven’t met any other brain tumour patients or carers before and amazingly met a couple who live near us and whose children went to the same school as our son!”
“My husband’s oncology nurse told me about the workshop arranged for last Monday at Cliveden and although we had planned to be away for a few days i thought that we had to go! It was such an interesting day, we learnt a lot and most of all we met people in similar situations to us and felt such a strong bond with them.”
And our Progress Trackers from the day showed that people felt significant improvement across all of the areas we measure. So these Health and Well-being events are just one of the ways that we are achieving our goals of making life better for people with a brain tumour: by eliminating isolation, defeating fear, increasing engagement and improving knowledge and understanding.
More events like this one are being planned across the UK for the rest of 2019. Make sure you’re the first to know by receiving our newsletters straight to your inbox.

If you would like to donate to help us continue Pablo’s legacy with these Health and Well-being events, please visit the donate page of our website.