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News archive    2017   
  • New routes to diagnosis data suggests quality of life improvements for people with a brain tumour

    New data shows that the proportion of people receiving a brain tumour diagnosis following emergency admission is decreasing, whilst diagnosis following a GP referral is up.


    Charts - Health Data Insight CIC, 17th January 2018,
     Data - Public Health England's National Cancer Registration and Analysis Service (NCRAS)


    This is encouraging news, as whilst this may not have any impact on survival (in fact it may create a lead time-bias,) we do know that effective diagnosis following a visit to a GP can have a dramatic and positive...

    Read full story
    Category: Campaign News | Published: 17 January 2018
  • UK Proton Beam Therapy Units to open from this year

    Proton Beam Therapy (PBT) will arrive in the UK from 2018, with sites opening at The Christie Hospital in Manchester and UCLH in London by 2020.

    The new sites will see an extension of the service currently offered to some patients referred to the USA for treatment for some specific types of brain tumour.


    brainstrust represents the brain tumour community on the Proton Beam Strategy Group, led by the National Director, Adrian Crellin. So we're well placed to ensure that the community's voice is heard. It means we are at the heart of this new service.


    More information will be following about who this treatment is appropriate for and what the risks and benefits are of this treatment. If you’d like to know more about PBT and other types of radiotherapy, you can read our resource here or just give us a call on 01983 292 405.

    Read full story
    Category: Brain News | Published: 15 January 2018
  • Incubator day in Leeds a success

    On Friday 8th December 2017, brainstrust and the NCRI (National Cancer Research institute) held an Incubator day aimed at designing a clinical trial for early diagnosis in patients who are diagnosed with a brain tumour.


    The incubator day was a interactive workshop where primary care specialists, neurologists, and researchers interested in the area met to discuss potential proposals for clinical research. The NCRI Early Diagnosis Group was supported by members of the Leeds Clinical Trials Unit, Health Economists, Research Design Service members, patients and charity representatives.


    A potential randomised study of patients with “headache suspicious of cancer” to different pathways to care was discussed but it was considered too early for such a study and the clinical endpoints need to be better considered.


    A prospective multi-centre study of “headache suspicious of cancer” looking at the red flag features in the history, the value of a simple screening test of cognition and other features prior to imaging, will be developed – led by Dr. Robin Grant (Neurology, Edinburgh); Prof Richard Neal (Primary Care, Leeds) and Prof Leone Risdale (Prof Neurology and General Practice, Kings College, London). Other Centres involved will...

    Read full story
    Category: Research News | Published: 15 January 2018

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