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News archive    2016   
  • Brain tumour information you can trust


    After being diagnosed with a brain tumour many people turn to the internet to find out more about their diagnosis and treatment options. But with so much information out there, how do you know it’s information that you can trust?


    NHS England developed the Information Standard quality mark to improve the quality of health and care information available to the public, patients and health and care professionals.


    The Information Standard means you can quickly identify reliable sources of quality information. You can be confident in your research, knowing that the organisation has gone through rigorous assessment to make sure the information is accurate, reliable and trustworthy.


    brainstrust was one of the first charities to adopt the Information Standard when it launched a few years ago, and has just been certified for another year.


    When you read brainstrust information, whether it’s on our website, leaflets or information sheets, you know that it has been recognised as quality information, helping you to understand the choices available to you and your...

    Read full story
    Category: Charity News | Published: 12 May 2017
  • Taking on the marathon distance

    Amy Edgar is running the London Marathon in April to raise money to help the thousands of people in the UK who are living with a terrifying brain tumour diagnosis.

    Here Amy writes about her training and reasons for taking on the 26.2 mile challenge.


    Whilst I’m writing this, it’s a Friday evening. I’m sitting on the sofa, ice pack nursing my leg after my 16 mile run this morning, cup of tea, and a (huge) bar of chocolate! Marathon training is a battle, but not half the battle people go through when fighting a brain tumour. That is why I’m running 26 miles this April to raise as much as I can for brainstrust so they can continue the amazing support they provide for those who are living with or affected by a brain tumour. 





    My dad had a brain tumour many years ago, luckily he fought it and is very well. He got in touch with brainstrust years later so he could share his story with others. I ran my first 10k for brainstrust in 2015, since then I have occasionally been fundraising and attending meet up groups.

    I’ve been a keen runner for about 4 years but before training for the marathon the...

    Read full story
    Category: Charity News | Published: 9 March 2017
  • Find the right support near you

    We know how hard it is to find great support when you've been diagnosed with a brain tumour. It's the reason we founded brainstrust 10 years ago, and why we wanted to provide 24/7 personal support and signpost you to other help that's available, wherever you may live.


    We launched our Little White Book directories to help you find your way on your brain tumour journey. Each Little White Book is produced regionally and signposts you to the support available in each area.


    We’re now launching Little White Books in Greater Manchester, Tees Valley, and one in the North West, focusing on children's brain tumour services. Each book has easy to navigate information on UK brain tumour resources.


    Read full story
    Category: Charity News | Published: 27 February 2017
  • Teafest 2017 is here

    'When I have a cup of tea I feel supported. I feel very cared for by brainstrust.'


    Brain tumour support is built on tea. We know.



    Having a cup of tea and a chat can help people with a brain tumour to think things through before making decisions about their care or treatment, helping them to feel more in control.


    This week, join us for Teafest17 and help the 60,000 people living in the UK with a brain tumour to feel less alone and afraid, and more in control.


    Get involved

    • Why not hold your own Teafest at home, school or work?


    • Ask your local cafe or coffee shop to get involved.


    • Shop for Teafest - buy tea towels, tea mats, mugs, wristbands and more for your Teafest event.


    • Swap your morning cuppa for a text donation.


    Read full story
    Category: Charity News | Published: 21 February 2017
  • Last night a shining light has gone out at brainstrust

    Last night a shining light has gone out at brainstrust and for the brain tumour community. Last night we said goodbye to our friend Shaun Skinner.


    Despite the personal challenges created by his own brain tumour, Shaun has been a close friend, ally and advocate to us all, working tirelessly to raise awareness of the real impact of this horrible disease, and funds for our work to help people with a brain tumour to feel less alone, less afraid and more in control.



    Shaun asked us to help him with 'Wear Grey' back in 2011. Since then Shaun, with Wear Grey, has helped over 1 million people understand the impact of brain tumours. In addition, he has inspired people to raise funds for brain tumour support well in excess of £100,000.


    Of course we will now be working harder than ever to make Wear Grey the event that Shaun...

    Read full story
    Category: Charity News | Published: 16 January 2017
  • Coping with scan anxiety

    Sam Newton is all too familiar with the anxiety that scans can cause. She’s experienced it as a brain tumour patient and as a health care professional.



    Sam is a radiographer, specialising in breast screening, and working with people who have cancer or are anxious and afraid that they have cancer. Sam is also a patient. Three years ago, she was diagnosed with two meningiomas, and now has regular scans.


    As a patient and professional with 23 years of experience, Sam understands the process more than most, but it doesn’t make having an MRI scan any easier. “Personally, I dislike them,” Sam says. “I am very claustrophobic, so I have medication to help me cope. My MRI colleagues are fantastic; they always look after me very well. But there is always that anxiety of what if. What if it's reoccurred or what if my second tumour has grown. It’s good to know I'm monitored but it always heightens my worries.”


    Her own experience means she understands exactly how her patients are feeling. She understands the worry. She understands the fear. And the feeling of not being in control,...

    Read full story
    Category: Charity News | Published: 6 January 2017

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