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News archive    2016   
  • UK Brain Tumour Symposium (formerly the UK Brain Tumour Summit) sells out in 48 hours

    UK Brain Tumour SymposiumLast week we announced, with Brain Tumour Research, the first UK Brain Tumour Symposium to be held jointly between our two organisations. The event is to take place in Milton Keyne's on the 12th Ocotber 2017. Following the launch on Friday 18th, the event was full by the Sunday evening with a waiting list now open. 


    On this, brainstrust's Chief Exectutive, Will Jones says,

    "Of course this is great news that there is such demand from our community for information on the latest treatments, brain tumour support initiatives and of course on research and campaigning for a better world for people with a brain tumour. We have an exciting programme for this event which I am sure people will find engaging, empowering and useful. On the flipside I understand it is frustrating for those that have been keen to join us and who haven't been able to register succesfully. Straight away we know that we must run the event again next year, and we will be working hard to generate the funding needed to cater for the demand. Thank you for your...

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    Category: Charity News | Published: 25 August 2017
  • Join us for the UK's first joint Brain Tumour Symposium

    brainstrust and Brain Tumour Research are proud to present the UK's first joint Brain Tumour Symposium (formerly the UK Brain Tumour Summit), an event for brain tumour patients, their friends and family, who are genuinely interested in helping us campaign for change.



    Taking place on 12th October in Milton Keynes, the Symposium brings together leading experts from many areas of brain tumour support and research. This is your chance to meet the doctors, scientists, patients, caregivers and charities who are leading the way in brain tumour research, support and campaigning.


    This free event will help you to understand the progress that is being made across many fronts in the work against brain tumours.


    Our aim is to provide an educational, collaborative and transparent focus on the biggest issues facing the UK brain tumour community today and the specific advances that are being...

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    Category: Charity News | Published: 14 August 2017
  • Carrie Holbrook, campaigning for the brain tumour community

    Since losing her husband to a brain tumour, Carrie Holbrook has been campaigning to raise awareness of brain tumours and improve outcomes for people with a brain tumour.

    She is delighted that brainstrust and Brain Tumour Research are working together to present the UK’s first joint Brain Tumour Symposium, which aims to provide an educational, collaborative and transparent focus on the biggest issues facing the UK brain tumour community today and the specific advances that are being made.

    Carrie said: “The UK Brain Tumour Symposium is a great opportunity to bring leading experts from brain tumour support and brain tumour research together. It will give people affected by brain tumours the chance to find out more about the progress and advances that are being made in many areas including brain tumour research, quality of life and living well.

    “Brain tumours are the biggest cancer killer amongst the under 40s, so it’s important to raise awareness, and this event is a great way to do that.”


    Read full story
    Category: Charity News | Published: 14 August 2017
  • Brain tumour information you can trust


    After being diagnosed with a brain tumour many people turn to the internet to find out more about their diagnosis and treatment options. But with so much information out there, how do you know it’s information that you can trust?


    NHS England developed the Information Standard quality mark to improve the quality of health and care information available to the public, patients and health and care professionals.


    The Information Standard means you can quickly identify reliable sources of quality information. You can be confident in your research, knowing that the organisation has gone through rigorous assessment to make sure the information is accurate, reliable and trustworthy.


    brainstrust was one of the first charities to adopt the Information Standard when it launched a few years ago, and has just been certified for another year.


    When you read brainstrust information, whether it’s on our website, leaflets or information sheets, you know that it has been recognised as quality information, helping you to understand the choices available to you and your...

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    Category: Charity News | Published: 12 May 2017
  • Taking on the marathon distance

    Amy Edgar is running the London Marathon in April to raise money to help the thousands of people in the UK who are living with a terrifying brain tumour diagnosis.

    Here Amy writes about her training and reasons for taking on the 26.2 mile challenge.


    Whilst I’m writing this, it’s a Friday evening. I’m sitting on the sofa, ice pack nursing my leg after my 16 mile run this morning, cup of tea, and a (huge) bar of chocolate! Marathon training is a battle, but not half the battle people go through when fighting a brain tumour. That is why I’m running 26 miles this April to raise as much as I can for brainstrust so they can continue the amazing support they provide for those who are living with or affected by a brain tumour. 





    My dad had a brain tumour many years ago, luckily he fought it and is very well. He got in touch with brainstrust years later so he could share his story with others. I ran my first 10k for brainstrust in 2015, since then I have occasionally been fundraising and attending meet up groups.

    I’ve been a keen runner for about 4 years but before training for the marathon the...

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    Category: Charity News | Published: 9 March 2017
  • Find the right support near you

    We know how hard it is to find great support when you've been diagnosed with a brain tumour. It's the reason we founded brainstrust 10 years ago, and why we wanted to provide 24/7 personal support and signpost you to other help that's available, wherever you may live.


    We launched our Little White Book directories to help you find your way on your brain tumour journey. Each Little White Book is produced regionally and signposts you to the support available in each area.


    We’re now launching Little White Books in Greater Manchester, Tees Valley, and one in the North West, focusing on children's brain tumour services. Each book has easy to navigate information on UK brain tumour resources.


    Read full story
    Category: Charity News | Published: 27 February 2017

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