Search the site

News

Here's the news! Come here to find the latest
brain tumour support support news, information on
the latest brain tumour stories, current brainstrust
events, our latest headlines, analysis and opinion.

You can also sign up for our e-newsletter (on the right)
and for the Logbook, our annual review.
News archive    2016   
  • Sport, surgery and beach rugby - Barty's story

    Sport has always played an important part in Barty Hills’ life. After recovering from brain tumour surgery, Barty is now using his passion for rugby to help others living with a brain tumour diagnosis. This is his story.

     

     

    Barty Hills was 20 and just about to start university when he was diagnosed with a brain tumour.

     

    “I was told the classic ‘we have some good news and some bad news'," he says. “They said I had a brain tumour but it’s on the outside of your brain. This meant little at the time. I was just glad I had my family by my side. With them there, I felt I could take on anything.”


    The strange thing for Barty was that the diagnosis came as a relief. “I hadn’t been feeling well for over six months and the scariest part is not knowing what it is or how to fix it to get better. Although it was a big shock, I was now aware of what the problem was and ready to take steps to get through it.”

     


    With the...



    Read full story
    Category: Fundraising News | Published: 15 June 2017
  • A wedding reception with a difference

    In October of last year Leon Rushworth was diagnosed with a grade four brain tumour. He found brainstrust online when he was waiting for surgery. To help, we sent the brain box, our toolkit for people with a new brain tumour diagnosis and their carers. “I read the books to help me through everything,” says Leon. “It was very useful.”

     

    After the surgery, Leon struggled with fatigue, which is a real problem for people living with a brain tumour. He married his fiancé, Sara, as planned in February this year, but his fatigue meant their wedding reception had to be put on hold.

     

    “I had been quite tired with the treatment and original operation. I was having a conversation with Sara and my friend Jason, and Jason came up with the idea of holding an evening reception at a later date as I was too tired at the time of our wedding.

     

    “I thought it would be a great opportunity to hold a charity night instead, so I could give something back to those who have supported me and Sara since my brain tumour diagnosis. We knew that our friend and neighbour Becky is good at organising these things, so she joined in. And hey presto, Leon’s Charity Night was...



    Read full story
    Category: Fundraising News | Published: 13 June 2017
  • A fantastic day of sport at the Summer Social 2017

    Thanks to everyone who came along, whether to watch or take part. The money raised will help support people living with a terrifying brain tumour diagnosis, helping them to feel less afraid and alone, and more in control.

     


    A huge thank you to Barty Hill and his friends for organising the event. Barty was diagnosed with a brain tumour in 2007 and despite the challenges he faces from his tumour, treatments and surgery, Barty has become one of brainstrust’s greatest supporters, and is determined to raise awareness and money to help others on their brain tumour journey.


    This is his story.

    Read full story

    Category: Fundraising News | Published: 7 June 2017
  • Well done to our Manchester runners

    Well done to our team brainstrust runners in this year’s Great Manchester Run. You were all amazing.


    We had a last-minute addition to the team when Claire Bushell, our support specialist for children and families, decided to run. Moved by the attacks in Manchester, Claire wanted to support the Manchester community, while raising money to help people living with a brain tumour.


    This is Claire’s story.

     

     

    Last Thursday, on a bit of a whim, I decided to take part in the Great Manchester Run for brainstrust. As a proud Mancunion for 7 years now, I've been really affected by the attack in Manchester - so when our Northern Fundraiser Michael challenged me to take up a place in the 10k - I didn't take much persuading.


    The chance to join my city in a huge event and show the world that the awful events have only brought us closer was really one I couldn't ignore. It was also a fantastic opportunity to raise a bit of cash for brainstrust. So now there was only one problem - I've never run 10k. In fact, I've barely run 5k before! And I only had 3 days to go.

     

    As the support specialist for children and...





    Read full story
    Category: Fundraising News | Published: 31 May 2017
  • Brain tumour information you can trust

     

    After being diagnosed with a brain tumour many people turn to the internet to find out more about their diagnosis and treatment options. But with so much information out there, how do you know it’s information that you can trust?

     

    NHS England developed the Information Standard quality mark to improve the quality of health and care information available to the public, patients and health and care professionals.

     

    The Information Standard means you can quickly identify reliable sources of quality information. You can be confident in your research, knowing that the organisation has gone through rigorous assessment to make sure the information is accurate, reliable and trustworthy.

     

    brainstrust was one of the first charities to adopt the Information Standard when it launched a few years ago, and has just been certified for another year.

     

    When you read brainstrust information, whether it’s on our website, leaflets or information sheets, you know that it has been recognised as quality information, helping you to understand the choices available to you and your...



    Read full story
    Category: Charity News | Published: 12 May 2017
  • Public Health England (PHE) Cancer Data and Outcomes Conference 2017

    Tuesday 13th and Wednesday 14th June - Manchester 

    The PHE Cancer Data and Outcomes Conference 2017 brings together patients, carers, clinicians, commissioners, academics and charities to showcase the latest developments and opportunities for using data to drive improvements in services, treatment and patient experience both nationally and locally. This year’s conference will cover the breadth of the patient pathway and explore the use of data at all stages including prevention, early diagnosis, treatment, survivorship and end of life. 

     

    The conference will take place on Tuesday 13th and Wednesday 14th June in Manchester. Patient bursaries are available for people affected by cancer and carers. The bursaries will cover the conference registration fee, travel to and from the conference and overnight accommodation for Tuesday 13th if needed.

     

    To register your interest please send an email to events@phe.gov.uk. You will be asked to complete a bursary application form. All applications will be considered after the closing date of 24th March and those that have been awarded a bursary will be notified by mid-April.

    For more information visit www.phe-events.org.uk/cdoc2017.



    Read full story
    Category: Research News | Published: 15 March 2017

Give today

Give today

donate now button
Help us support brain tumour patients and their families in the UK
Donate online

Join the community

Join the community

find brainstrust on Facebook find brainstrust on Twitter

Brain tumour news

Latest tweets

follow me on Twitter

Stay in touch