News archive 2013
brainstrust is delighted to be involved with Cochrane UK. The Cochrane Collaboration is a global independent network of health practitioners, researchers, patient advocates and others, responding to the challenge of making the vast amounts of evidence generated through research useful for informing decisions about health.
So we now have a hotline to Cochrane so that we can share with you the latest research around brain cancer. And here is the first summary for you to read:
Traditionally, the standard of care for people with anaplastic oligodendrogliomas and anaplastic oligoastrocytomas (brain tumours) has been surgery followed by radiotherapy. However, the benefit of post surgery (adjuvant) chemotherapy and radiotherapy is still unclear. In addition, the value of chromosome markers is also under investigation. This summary investigates published research up to March 2014 about...
Read full storyCategory: Brain News | Published: 21 May 2014
brainstrust has been working with the Collaborative Ependymoma Research Network (CERN – not the Centre) on a newresource.
It’s for patients, caregivers and advocates of people with Ependymoma. The goal of this guide is to provide you with the basic facts surrounding ependymoma, including diagnosis and treatment.
You can get a free copy from brainstrust by calling 01983 292405 or email firstname.lastname@example.org
If you can’t wait then download your copy here:
https://cern-foundation.org/wp-content/uploads/2014/04/Ependy-Guide.pdf (23MB, so stable web connection advised!)
To find out more about CERN visit their website:
Read full storyCategory: Charity News | Published: 20 May 2014
Andy Fancourt ran the London Marathon to fundraise for our work, in memory of Bob Gadd. Andy has raised an incredible £4,000 for the Help for Heads fund.So Andy - on behalf of all the amazing people that we get to help, THANK YOU!
Help for Head supoprts the wide range of resources that we produce to help people with a brain tumour across the UK. Of his incredible acheivement, Andy says, "Having been made aware of brainstrust through the great work being done by Help for Heads and having already secured a ballot place in 2014 London Marathon I felt it was an ideal opportunity to try and raise some more money for brainstrust"
To support Andy, you can visit his JustGiving page over at www.justgiving.com/Andy-Fancourt
And if you are interested in setting up a fund to...
Read full storyCategory: Fundraising News | Published: 29 April 2014
Once again, long-standing brainstrust supporter Clive Wooster has taken on a circumnavigation of the Isle of Wight, by foot, for our work to help people facing a brain tumour diagnosis.
Clive and his team, which included Jon Owens and Damien Weight completed the 68 mile walk over 3 days. Clive says, “We’re still talking and can just about stand but raised over £2,700 for brainstrust, so a big thanks to all our supporters".
Before the walk, Clive said to us, "Most of my friends know how tough this walk is, so I'm delighted that Damien and Jon are joining me for what I told them was a nice stroll with a few pub stops. Actually, they have a suspicion I'm fibbing, but nonetheless are willing to do 24 mile days to support this great cause."
The funds that Clive, Jon and Damien have raised will help us keep our 24/7 support line open, go towards more of our revered resources, and
Read full storyCategory: Charity News | Published: 16 April 2014
You may have read and been inspired by Lorna Keen and Jacqui Thake's 300 mile cycle ride through Rajastan that appeared in the Mirror newspaper on the 12th April. If so... read on to find out how you too can have the adventure of a lifetime, and support our work helping people get back on top of things following a brain tumour diagnosis.
We work with many different challenge companies who organise “Open Challenges”. This means you can register for a challenge and fundraise for the charity of your choice.
People have taken part in so many varied events to support our work, including climbing to Everest Base Camp, climbing Kilimanjaro and trekking across Jordan. There are many overseas cycle rides – from London to Paris to cycling across Rajasthan and pretty much anything in between. We even had one team of cyclists peddling through 5 countries in 5 days through Europe,...
Read full storyCategory: Fundraising News | Published: 3 April 2014
We know how important a community is to people battling a brain tumour. Having people to talk makes big problems smaller, and the feelings of isolation and loneliness that are common following a brain tumour diagnosis can be made to go away.
brainstrust is working hard to create a community for brain tumour patients in Scotland. Having people to talk to will help our Scottish brain tumour patients and carers feel like they can think about living, rather than focusing on their brain tumour.
With your support we can make things even better. We will:
- Hold more Meet Ups across Scotland (each one costs between £300 and £500)
- Build capacity to make our phone and email support response times quicker than ever (we’re already pretty fast mind!). It costs us £120,000 a year to keep the service up and running.
- Hold training, education and networking events for brain tumour carers (each day costs around £2000)
- Employ more people to support patients in Scotland directly, at home, immediately after a brain tumour diagnosis (Up to £18,000 a year)
- Support patient and carer focused research projects in...
Read full storyCategory: Charity News | Published: 2 April 2014