News archive 2015
We know how lonely it can be living with a brain tumour. We also know how much it can help to be with others who truly understand.
We organise Meet Ups for the brain tumour community to get together, share experience and have some fun. No matter where you are on your journey or what role you have (such as carer, patient, health care professional) come along, feel less alone and become better connected.
Here are some Meet Ups we have coming up in the near future. Please join us- we always love to see you.
Read full storyCategory: Charity News | Published: 1 March 2016
March is brain tumour awareness month and we’re spending it helping people understand the real issues that people with a brain tumour have to face, and how we can help people become stronger in the face of these.
By picking up a brain tumour wristband, or pin badge, you can make the world notice brain tumours.
And, we’ll spend the funds raised helping more people feel less afraid, less alone and more in control in the face of a terrifying brain tumour diagnosis.
Read full storyCategory: Fundraising News | Published: 29 February 2016
On Saturday 13th February the Chapter Art Centre in Cardiff became home of the fourth annual Great Charity British Bake Off. The day brought around 25 amateur bakers together, along with cake eaters and supporters, in order to raise money for our support service.
Cakes were judged and awarded in the four categories, from most delicious, cutest cupcake, best decorated and Under 12s. The winners were sent home with a shiny new trophy to pop on their mantlepieces.
It was Steffan Edwards, one of our amazing supporters, who organised the event and he’s fully aware of how much the day will make a difference to those who we help:
“We managed to raise an incredible £539.90 for brainsturst, which will help the charity supply 10 Brain Boxes to families, or cover a print run and distribution of their
Read full storyCategory: Fundraising News | Published: 26 February 2016
Our celebration of all things tea for brain tumour support begins today, and it's already shaping up to be our most creative TEAFEST yet.
Not only is there a number of tea parties and cake sales planned but people are throwing in some extra special elements, such as Terri Cooper from Clacton on Sea who’s planning high tea with traditional bone china crockery, a clothing sale, tea leaf reading, entertainment for children and a raffle with various prizes. Terri is taking part in TEAFEST in memory of her son Gary, who she lost to a brain tumour in July 2014.
“Gary was originally misdiagnosed and by the time we had received his true diagnosis, we had very little knowledge or support and time was of the essence. That’s when we found brainstrust. This wonderful, caring and small charity offered us so much advice and support. Sadly this was too late to help Gary,...
Read full storyCategory: Fundraising News | Published: 18 February 2016
brainstrust's data workshop: exploring how National Cancer Registry data can be used for the benefit of the brain tumour community
We know that there are so many questions you need answering when you’re diagnosed with a brain tumour.
That’s why a few weeks ago we held a fascinating workshop which explored how National Cancer Registry data can be used for the benefit of the brain tumour community.
By bringing together people living with a brain tumour, their carers, health care professionals and key players from charities and cancer registry services, we aimed to identify what specific questions we, as a community, want answered and how new ways of looking at registry data can give us these answers.
We’re now working hard to take this forward. We hope that in the near future there will be a process in place where data can give people living with a brain tumour the answers about their condition that they need, so that they can regain control sooner.
Read full storyCategory: Charity News | Published: 2 February 2016
We often get asked about the effectiveness that proton beam therapy has on treating brain tumours.
Helen, Our Director of Policy and Services, is on the NCRI Clinical and Translational Radiotherapy Working Group, which helps to develop radiotherapy clinical trials. The group have recently approved a document which provides a detailed overview of proton beam therapy. You can read the document by clicking here.
The recent interest in proton beam therapy coincides with the publication of our new resource- my radiotherapy book. The resource outlines the range of treatment options currently available to people living with a brain tumour, and below is the response included on proton beam therapy.
Read full storyCategory: Charity News | Published: 29 January 2016