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News archive    2015   
  • Join team brainstrust for the London or Liverpool Santa Run 2016


    Join thousands of Santas this December at the Liverpool or London Santa Dash and help people living with a brain tumour.

    It doesn't matter if you run, jog or walk, because this event is all about the taking part and helping people living with brain cancer.

    Taking place on Sunday 4th December, the BTR Liverpool Santa Dash is set to bring a flash of red (and blue), as well as Christmas cheer to the city of Liverpool with around 8,000 Santas taking on the running challenge. It promises to be perfect for all the family with a ‘mini dash’ on the same day.


    In London, choose from a 5km or 10km route. There's also a 200m fun run for the under 8s.


    Join in the festive fun and make a difference to the lives of people who are living with brain cancer, helping them to feel less alone, less afraid and more in control in the face of a devastating...

    Read full story
    Category: Fundraising News | Published: 27 October 2016
  • Exciting times for brainstrust as we bring our services to more people around the UK

    "brainstrust is dedicated to providing personal round-the-clock support for people with a brain tumour, and creating resources that help them feel less afraid, less alone and more in control. I’m delighted to be leading the board of trustees as we bring our services to more and more people around the UK.” - Chris Baker, brainstrust chair of the board.

    It's an exciting time for brainstrust as we make new appointments so that we can help and support more people with a brain tumour across the UK.


    We've appointed a new chairman and our first chief executive.



    Chris Baker is the new chairman of the board of trustees. Chris is the UK managing director of global technology company, Concur, and a former senior director of Microsoft. Chris has been a trustee since 2011.


    Our ambitions to expand our services has led to promoting Will Jones to the role of chief executive.


    Read full story
    Category: Charity News | Published: 26 October 2016
  • Teenagers and young adults to shape research priorities for tackling cancer

    Teenagers and young adults with cancer are being invited to have their say about the research needed to help tackle cancer in young people.


    By completing an online survey, teenagers and young people, and their family, friends, caregivers and clinicians can have a voice to help shape the future research agenda, and make sure that young adults receive the best care and treatment they need.


    Teenagers and young adults with cancer have different experiences and needs to those of children and older people with cancer, so it’s important that they have their say. The findings from the survey will be used to identify the top ten research priorities and unanswered questions about cancer in teenagers and young adults.


    The survey has been launched by the Priority Setting Partnership (PSP), set up by the James Lind Alliance (JLA) and is funded and supported by Teenage Cancer...

    Read full story
    Category: Research News | Published: 7 October 2016
  • Positive but very early news about a new immunotherapy drug for GBM has made the headlines today.

    An initial study suggests that an experimental drug could be effective in treating patients with glioblastoma (GBM).

    Durvalumab, a drug used to fight other kinds of cancer, is being tested on 148 patients in a clinical trial in the US. Early data suggests the therapy may stop the cancer in a significant minority of cases. Of the first 30 patients who received the drug, six people had shown no sign of deteriorating after six months. This is one person in five.


    It’s great to hear news about this trial, but it’s important to put the results into context. It is only six people and it’s a very early stage of the trials.


    According to David Reardon, clinical director of the Dana-Farber Cancer Institute’s centre for neuro-oncology in Boston, Massachusetts, the findings are promising but very preliminary.


    Dr Helen Bulbeck, our Director of Services and Policy at brainstrust, says: “As with all of these baby steps towards a breakthrough they have to be put in context. This is a very early phase trial and immunotherapy is only appropriate for a minority. So we'll watch this space and catch up with David Reardon in November. And keep you posted. There are several trials being designed at the moment and they'll be added to the

    Read full story
    Category: Research News | Published: 4 October 2016
  • Thanks for turning the world grey

    Thank you to everyone who took part in Wear Grey for a Day 2016. It was a great success.

    Thousands of people around the country helped turn the world grey on October 1st to raise awareness of brain tumours. Throughout the day, people shared their photos, stories and reasons for wearing grey. Loved ones were remembered.


    Liz Kirtley, one of the Wear Grey for a Day supporters, explained why she got involved. “I wore grey on Facebook and in real life. I have a low grade brain tumour. Many people really don’t understand how it affects us physically, mentally and emotionally. The support of charities like brainstrust is so important.”

    Thanks to everyone who put on their greys. Together, we made the world notice. Here are a few photos from the day.





    It's not too late to make a difference.

    You can still support people living with a...

    Read full story
    Category: Charity News | Published: 4 October 2016
  • Wear Grey for a Day 2016

    The world is turning grey today for people with brain tumours.

    Today is your chance to help improve the quality of life, and care, for people living with a brain tumour. Simply Wear Grey, and text-donate.


    Thousands of people around the country are already taking part so that brainstrust can help people with brain cancer feel less alone.

    Wear Grey. Text your donation today.


    Please, show your support. Wear Grey and donate by texting: WGRY16 £5 to 70070. Let's take the fear and confusion away.



    Read full story
    Category: Charity News | Published: 30 September 2016

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