News archive 2013
Are you living with or beyond a brain tumour diagnosis?
If so this could be of interest.
We've teamed up with Cancer Research UK to offer an exciting opportunity for you to have your say on the new portal in development which will enable cancer patients to view medical records online, as well as other information which is relevant to them.
You can join us for our event at CRUK's Islington head office on 23rd January 2014 to preview the portal and give your views on what you would like to see on it. We will really value any feedback you are able to give.
There is no cost to attend but we only there are limited spaces so please register early. There will be light buffet refreshments and CRUK have kindly offered to pay reasonable travel expenses.
This event is aimed at people who have had a cancer diagnosis at some point but if you need a carer to accompany you, please let us know as we are...
Read full storyCategory: Charity News | Published: 7 January 2014
The BBC have announced today that the DCVax trial is up and running at King's Hospital London. Keyoumars Ashkan, a neurosurgeon at King's, is leading the UK arm of the trial. He says there is a pressing need for new and better treatments for brain cancers.
This is welcome news for GBM patients, well done Ash and the team at Kings. For information, the vaccine needs to be given in the very tight window between biopsy and treatment beginning, and we know that the trial is now full.
If you've any questions, please feel free to get in touch - 01983 292405 or email email@example.com
Read full storyCategory: Research News | Published: 24 December 2013
We have recently been getting in the festive spirit in Sheffield and Derbyshire at the various Christmas Markets across the region, spreading awareness and raising a few pounds for brain tumour support too.
Many thanks to the loyal volunteers who joined us, it was an extremely successful few weeks and it has been fantastic finding those that need our support and those kind volunteers that would like to support us now and in the future. Thanks so much to everyone we have met and have a very Happy Christmas!
Read full storyCategory: Charity News | Published: 23 December 2013
It can be very lonely battling a brain tumour. We know. This isolation is a big issue and we are battling to solve it for you.
We do this through creating communities for hundreds of brain tumour patients and carers every year, and one day, with your help we hope to have a friendly, useful community that's fit to support the 55,000+ people battling a brain tumour in the UK.
A community fit to help 55,000+ people
Indeed, our online communities are growing everyday:
Over 400 people are now helping each other in our tightly moderated facebook community: www.facebook.com/groups/braintumoursupportbrainstrust/
Twitter is seeing some great discussions unfolding - follow us over on @brainstrust
And offline? Our meet ups are more popular than ever, with thousands of people benefitting from these events over the years. And we are constantly introducing patients and carers to each other via our 24/7 helpline (you can call us anytime on 01983 292405, or
Read full storyCategory: Charity News | Published: 17 December 2013
Once again the Shepherd family are lighting up Marlow Bottom in aid of brainstrust and the 55,000+ people living with a brain tumour in the UK.
This is the 13th year the family have been fundraising and the second year for brainstrust.
See the lightsYou can check out hte Shepherd's incredible Christmas display here: www.youtube.com/watch?feature=youtu.be&v=6uLtYh98QbY&feature=youtu.be
Hundreds of hours of work
Jancis Shepherd says, "Each year we try to introduce some new elements to the display. This year Tony has been making additional features such as the star and hoops which are on the apex of the roof. Tony has sequenced 8 different songs to music and one song plays approx. every 15 minutes at 00.15,30, 45 mins past each hour between 17-21.00hrs. Each song takes around 20 hours of programming and Tony can now control 80 strings of lights simultaneously. I think he has managed to capture the beauty of the lights and maintain their classical appearance."
Tony Shepherd says, "We want to support brainstrust...
Read full storyCategory: Charity News | Published: 16 December 2013
This year you helped us to run 30 Meet Ups, attended by nearly 1000 brain tumour patients and carers from Southampton to Aberdeen and many places in between.
5 star feedback for brain tumour support
Like last year, these helpful events got 5 star reviews from all that came. We're over the moon about this. We know Meet Ups continue to be really valuable, simply because you tell us they are!
“It was so great to meet up yesterday. We all had a lovely time meeting you and the other patients/carers. My mother said an amazing thing in that yesterday really helped her feel stronger about dealing with her condition after meeting you all”
Carer, London, October 2013
“A fantastic evening (thanks Brainstrust). I woke up feeling hopeful, and very happy to have met such wonderful people (who have inspired me to battle on....).”
Patient, Cambridge, 2013
“BRILLIANT!! Glad I went and happy to meet so many people”Patient, Manchester, 2013
Brain tumour support that tackles isolation and fear
Meet Ups help tackle the isolation that we know comes with this terrible disease. They also help us capture your views and give us a chance to hear what’s important to you...
Read full storyCategory: Charity News | Published: 5 December 2013