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News archive    2014   
  • A colour run in memory of Ruth


    Melanie Langston and Julia Sparling, Ruth's Sister and Mum, alongside her family and friends, took part in the Run of Dye colour run in Ipswitch in memory of her sister Ruth, who sadly passed away of a brain tumour in December.

    Ruth’s battle with the tumour was particularly tragic. She passed away at just 34, after 11 months of intense treatment, which left her unable to see her beloved daughter Lydia’s first birthday. And, by Lydia’s second birthday Ruth had passed away.

    brainstrust supported Ruth’s family through this devastating time and Mel wanted to do something so that other families living with the challenges of a brain tumour could receive the same amount of support.

     “We had a ball at Run or Dye colour run and between 20 of us have raised this money for brainstrust. brainstrust and especially Helen was a huge help and support to me when we were on our tragic journey and I hope this money will help others too”

    Read full story
    Category: Fundraising News | Published: 11 August 2015
  • Sponsored haircut raises over £600 for brain tumour support.

    Emma Chapman of Mad Hatter’s Tea Parlour took the brave step of cutting her long hair in order to raise money for our support service. The haircut was in memory of her friend, Tony Gouldman, who passed away of a brain tumour in June. brainstrust had supported Tony and his wife Sally following diagnosis.

    It’s not the first time Emma has fundraised for brainstrust. In January she held high tea at her Mad Hatter's Tea Parlour, alongside Tony and Sally. The haircut was just another way of giving back to the charity that has helped those close to her.

    “I feel passionate about helping brainstrust who can help those and their families in need with the support they can offer… I will admit I was a bit scared, but not as scared as those who are actually diagnosed with these diseases- mine is just 8 inches off my hair which will grow back, they need more support and care than I do”

    Emma’s haircut raised an incredible amount- over £600- money which will be spent supporting more people like Tony and Sally, and help them feel less afraid, less alone and more in control in the face of...

    Read full story
    Category: Fundraising News | Published: 11 August 2015
  • 'Achieving world-class cancer outcomes: a strategy for England 2015-2020' - Our response

    The Independent Cancer Taskforce recently published a new report: Achieving world-class cancer outcomes: a strategy for England 2015-2020, which sets out recommendations for a new cancer strategy in England.

    brainstrust’s response:

    The strategy outlined looks very promising, and many of the plans will have a positive impact upon our community, especially considering our representation on many cancer groups.

    The report itself has breadth and depth and builds on everything that has gone before it (back to Calman Hine in 1995, the 2000 Cancer Plan, 2007 Cancer Reform Strategy, 2011 Cancer Outcomes Strategy).  It is well grounded in research and has a sense of reality about it. It is do-able. It pulls together, for the first time, the disparate strands of early diagnosis, data and information, and survivorship. 
    And through our representation on the NCIN and the NCRI, we are well placed to wave the flag for brain tumours, so that the plans for world class outcomes can also reach our community.  

    The report highlights what we have been shouting about - that there isn't enough resource to deliver. We...

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    Category: Charity News | Published: 20 July 2015
  • Our supporter, Ruth Thompson, raises £3,750 for brainstrust at Summer Ball

    Ruth Thompson, one of our amazing supporters, held a charity ball last month at Hazel Grove near Stockport.

    Many of her friends and family attended the event, which went on to raise an incredible £3,750 to help fund our support service.

    Ruth, and brainstrust, would like to thank the sponsors of the ball: C&C Insurance Brokers, Beddard Roofing, Cheshire Flowers and Simon Dunn Handmade Chocolates, as well as Hazel Grove Golf Club for the fantastic food and venue.

    Finally, a huge thank you to everyone who bought tickets and donated raffle/auction prizes, and a special thanks to Ruth for organising such a successful event. The funds raised will go towards helping people in the area who are living with and beyond a terrifying brain tumour diagnosis.

    Ruth, you're amazing!

    Read full story
    Category: Fundraising News | Published: 17 July 2015
  • Your chance to get involved with some interesting research about illness perceptions and quality of life.

    Francesca Smithson Evans, a trainee Clinical Psychologist at the University of Hull, is conducting an interesting research project about whether the way a brain tumour diagnosis is communicated can affect illness perception and quality of life.

    We know that quality of life is of utmost importance to our community. And, we’ve also recently been heavily invested in improving the communication of a brain tumour diagnosis and creating better conversations between clinicians and their patients.

    So, this project seems relevant to you, our brain tumour community, and below are details of how you can be a part of it.

    Click HERE to begin the questionnaire. 

    Read full story
    Category: Charity News | Published: 15 July 2015
  • brainstrust’s Dr Helen Bulbeck gives main lecture at the closing day of the BNOS conference

    On Friday, our Director of Services and Policy, Dr Helen Bulbeck, gave the introductory lecture at the 2015 BNOS conference. She presented to members of the clinical community, charities and healthcare professionals about how clinicians can best communicate a brain tumour diagnosis to their patients.

    We know that you want better, more honest conversations with your clinical teams, sooner. The lecture communicated the importance of addressing this, and shows methods to how it can be achieved by taking a ‘patient as the co-pilot, not passenger’ approach.

    Helen’s closing remarks, ‘say what you notice. Not what you think’ would give patients and clinical a much more equal role in consultations, if applied.

    This approach would help put you in control from the moment of diagnosis.

    And more control can mean a better outcome. We know.


    Read full story
    Category: Charity News | Published: 3 July 2015

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