News archive 2013
We often get asked about Avastin for brain tumour treatment in the UK. Here's where things are at the moment...
Sadly, Avastin for brain tumours is not the Holy Grail we all want. Research shows that for brain tumour treatment, there is not enough benefit for patients.
The drug will not change the overall survival for brain tumour patients, and whilst it may delay progression free survival this comes with a significant symptom burden. At the international SNO conference in November 2013 the results of the phase 3 trial were announced; We think everyone knew that it wouldn't be good news but the disappointment was clear amongst the audience. This is what the results showed:
Bevacizumab (Avastin) added to the standard of care (chemoradiation [CRT] with temozolomide) as the first line treatment of glioblastoma did not improve median overall survival (OS), and, although the combination was associated with longer progression-free survival (PFS), it did not reach its prespecified target, according to results of the Radiation Therapy Oncology Group (RTOG) 0825 phase III study presented at Sunday’s Plenary Session (Abstract 1). Mark R. Gilbert, MD, of The University of Texas MD Anderson...
Read full storyCategory: Research News | Published: 26 June 2014
Following a high grade glioma diagnosis, Paula and Richard Middleton struggled to find a resource that would help them to explain Richard’s diagnosis to their young daughter. And so Toby the Teapot was born. This wonderful, quirky and beautifully illustrated book is now available online at:
Read full storyCategory: Charity News | Published: 25 June 2014
This weekend, on the 21st June 2014, the Apollo Festival kicks off at York Sports Club, Clifton Park.
The event includes 4 Music stages with live sets from Reverend and the Makers, Mark Morris of the Bluetones, and Chris Helme of the Seahorses.
To find out more, visit www.apollofestival.co.uk
This is a great opportunity to have a great day out and support our collaboration with the Smiley Riley Fund - all funds raised will help us to reach more children, and their families, who are facing a brain tumour diagnosis. Find out more about our dedicated 'little brainstrust' support here: www.brainstrust.org.uk/little-brainstrust/
You can see some of the great photos from our most recent Meet Up for children with a brain tumour over on the Smiley Riley website:
Read full storyCategory: Fundraising News | Published: 18 June 2014
brainstrust is delighted to be involved with Cochrane UK. The Cochrane Collaboration is a global independent network of health practitioners, researchers, patient advocates and others, responding to the challenge of making the vast amounts of evidence generated through research useful for informing decisions about health.
So we now have a hotline to Cochrane so that we can share with you the latest research around brain cancer. And here is the first summary for you to read:
Traditionally, the standard of care for people with anaplastic oligodendrogliomas and anaplastic oligoastrocytomas (brain tumours) has been surgery followed by radiotherapy. However, the benefit of post surgery (adjuvant) chemotherapy and radiotherapy is still unclear. In addition, the value of chromosome markers is also under investigation. This summary investigates published research up to March 2014 about...
Read full storyCategory: Brain News | Published: 21 May 2014
brainstrust has been working with the Collaborative Ependymoma Research Network (CERN – not the Centre) on a newresource.
It’s for patients, caregivers and advocates of people with Ependymoma. The goal of this guide is to provide you with the basic facts surrounding ependymoma, including diagnosis and treatment.
You can get a free copy from brainstrust by calling 01983 292405 or email firstname.lastname@example.org
If you can’t wait then download your copy here:
https://cern-foundation.org/wp-content/uploads/2014/04/Ependy-Guide.pdf (23MB, so stable web connection advised!)
To find out more about CERN visit their website:
Read full storyCategory: Charity News | Published: 20 May 2014
Andy Fancourt ran the London Marathon to fundraise for our work, in memory of Bob Gadd. Andy has raised an incredible £4,000 for the Help for Heads fund.So Andy - on behalf of all the amazing people that we get to help, THANK YOU!
Help for Head supoprts the wide range of resources that we produce to help people with a brain tumour across the UK. Of his incredible acheivement, Andy says, "Having been made aware of brainstrust through the great work being done by Help for Heads and having already secured a ballot place in 2014 London Marathon I felt it was an ideal opportunity to try and raise some more money for brainstrust"
To support Andy, you can visit his JustGiving page over at www.justgiving.com/Andy-Fancourt
And if you are interested in setting up a fund to...
Read full storyCategory: Fundraising News | Published: 29 April 2014