News archive 2015
We know how hard it is to find the right support when you’ve been diagnosed with a brain tumour. It’s the reason why we founded brainstrust 10 years ago and why we wanted to provide 24/7 personal support and then signpost you to all of the other help available, wherever you may live.
Following a successful trial in Sheffield, we’re today launching four brand new directories that will help you find your way on this journey.
Read full storyCategory: Charity News | Published: 10 May 2016
Mansfield Mum funds access to a new lifesaving protocol to help doctors treat people with a brain tumour
Sandy Marshall, one our amazing supporters, has raised funds to promote a new scan referral procedure for doctors treating patients with persistent headaches.
Sandy’s son Jack was diagnosed with a malignant brain tumour last year. Keen to do something positive and to help others in the same situation, Sandy began fundraising. She, alongside the help of friend Shekina, went on to raise £2,292 from running Race for Life and a clothing sale.
“I’d raised the money and was determined that is should go somewhere it could make the most difference. I found brainstrust online, who support people affected by a brain tumour. I got in touch, and explained Jack’s story and the Charity said that my money could fund the open access publication of this research project that would eventually lead to patients getting quicker scans when they go to the doctors with a headache.”
The protocol that Sandy is funding is being developed by Professor Willie...
Read full storyCategory: Fundraising News | Published: 4 May 2016
Lisa Bennett was diagnosed with a brain lesion last year. brainstrust has supported Lisa throughout her journey and now she’s decided to give something back, in a special way.
It was whilst researching her diagnosis online that Lisa found brainstrust. She got in touch began to access the support that we offer, and soon started to get back on top of things.
Now Lisa is focusing on giving something back and helping others who are facing the uncertain times. On 6th June she will be undertaking ‘Walk the Thames’, a 7 and a half mile stretch of pathways from Greenwich to Cutty Sark to Westminster Bridge.
Read full storyCategory: Fundraising News | Published: 26 April 2016
We know from speaking with our community that fatigue is a huge issue when living with a brain tumour, and that it effects quality of life.
In a new step towards addressing fatigue, our Director of Services and Policy Helen has been a key player in a new Cochrane Collaboration review published last week, entitled ‘Interventions for the management of fatigue in adults with a primary brain tumour.’
Although it’s still early days for this strand of clinical research, it’s a step in the right direction towards finding how we can help people experiencing fatigue manage their symptoms, and the work is still underway.
Soon we will be publishing our own guide to managing fatigue which will, alongside our...
Read full storyCategory: Research News | Published: 26 April 2016
Our amazing supporters Karen and Damyon Garrity from Stockport, who have raised over £28,000 for brainstrust over the years, are now working to raise money for a new, special project.
The couple are planning to build a magical garden at Tithe Barn School in Heaton Moor in memory of their son Lucas, who they lost to a brain tumour in 2013.
Lucas's mum Karen says:
“Lucas is sorely missed by all who knew him, and we had been looking for an appropriate way to remember his love of life, happy caring nature and his sunny smile. Our vision is to develop a child friendly community garden with outdoor learning, which is fun and educational in an interesting environment”
The garden will feature a rainbow path with additional lighting making the garden available for use in the evenings and will be designed in collaboration with Dreamscape...
Read full storyCategory: Fundraising News | Published: 30 March 2016
brainstrust is working with Epilepsy Research UK to identify research priorities for tumour-associated epilepsy
Epilepsy can have a huge impact on people living with a brain tumour. In fact, up to 85% of patients with a low grade glioma experience seizures and up to 60% with a high grade.
We know how devastating the condition can be. The loss of independence, living with uncertainty, and the impact that taking medication has on top of a brain tumour diagnosis can be overwhelming.
That’s why we’re delighted to be working in collaboration with Epilepsy Research UK to identify the key research priorities for tumour-associated epilepsy. The collaboration began at a recent international workshop entitled 'Tumour-associated epilepsy: bridging the translational gap’, which shared the latest research in the field.
We’re now working together with leading researchers and clinicians to address the challenges that a diagnosis brings, so that people living with tumour-associated epilepsy can live the best quality of life...
Read full storyCategory: Charity News | Published: 30 March 2016