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News archive    2017   
  • Carrie Holbrook, campaigning for the brain tumour community

    Since losing her husband to a brain tumour, Carrie Holbrook has been campaigning to raise awareness of brain tumours and improve outcomes for people with a brain tumour.

    She is delighted that brainstrust and Brain Tumour Research are working together to present the UK’s first joint Brain Tumour Symposium, which aims to provide an educational, collaborative and transparent focus on the biggest issues facing the UK brain tumour community today and the specific advances that are being made.

    Carrie said: “The UK Brain Tumour Symposium is a great opportunity to bring leading experts from brain tumour support and brain tumour research together. It will give people affected by brain tumours the chance to find out more about the progress and advances that are being made in many areas including brain tumour research, quality of life and living well.

    “Brain tumours are the biggest cancer killer amongst the under 40s, so it’s important to raise awareness, and this event is a great way to do that.”


    Read full story
    Category: Charity News | Published: 14 August 2017
  • National survey shows decline in positive experience for brain tumour patients

    Many people with a brain tumour are not receiving the care and support they expect, according to the National Cancer Patient Experience Survey 2016.

    The survey is designed to monitor national progress on cancer care, provide information that could be used to drive local quality improvements, assist multi-disciplinary teams, commissioners, and NHS Trusts in improving patient services, and inform the work of charities supporting cancer patients.

    The survey found that:

    • Only 26% of people with a brain tumour received a care plan

    • 42% said they felt their clinical team worked together all of the time to give the best possible care

    • 40% felt supported by their GP

    • 42% felt happy with the provision of care and support post treatment

    • 63% were happy with how their results were communicated to them

    All of the above showed a decline from 2015. 

    • On a positive, 85.5% felt they had all the information they needed about radiotherapy, and 57.6% (an increase from 52% in 2015) had a better understanding of how the treatment worked for...

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    Category: Campaign News | Published: 26 July 2017
  • Cancer Research UK announces £25million investment in brain tumour research

    Exciting news – and not before time. For some years now Cancer Research UK (CRUK) has shown a real commitment to funding brain tumour research, increasing its funding share to 8%. Now CRUK is pushing the research agenda forward and is committing £25million over the next five years so that two Centres of Excellence can be established – purely for brain cancer research.

    What does this mean for our community?

    It means that at long last there will be a dynamic, multidisciplinary research community in the UK. It means too that the infrastructure required to facilitate innovation in the field, and create hubs of expertise will become established. For too long the research community has been fragmented and underfunded. This funding will make a...

    Read full story
    Category: Research News | Published: 27 June 2017
  • From runner to event organiser - Ashley's story

    As a keen runner, Ashley Hawkins has taken part in more than 20 half marathons, raising thousands of pounds for various charities.


    In December 2013, when his dad died of a brain tumour, Ashley wanted to raise money for brainstrust, in memory of his dad and to help people in the UK who were affected by a brain tumour.

    There was just one problem. After a serious knee injury and double knee surgery, surgeons told Ashley he wouldn’t be able to run long distances anymore.

    Not to be deterred, he decided that instead of running a half marathon, he would organise one instead. He set up an events company, Fit4thechallenge, in January 2014 and the Bassingbourn brainstrust half marathon was born, followed soon after by the Bass Belle 10 miler.

    “I could no longer run in the races and raise sponsorship,” says Ashley. “So, the next best thing was to create races with a charitable element.”
    Ashley currently has two races in his event portfolio, the Basingbourn half takes place on the first Sunday in July, and the Bass Belle takes place on the last Sunday in November.

    The events are always...

    Read full story
    Category: Fundraising News | Published: 21 June 2017
  • Sport, surgery and beach rugby - Barty's story

    Sport has always played an important part in Barty Hills’ life. After recovering from brain tumour surgery, Barty is now using his passion for rugby to help others living with a brain tumour diagnosis. This is his story.



    Barty Hills was 20 and just about to start university when he was diagnosed with a brain tumour.


    “I was told the classic ‘we have some good news and some bad news'," he says. “They said I had a brain tumour but it’s on the outside of your brain. This meant little at the time. I was just glad I had my family by my side. With them there, I felt I could take on anything.”

    The strange thing for Barty was that the diagnosis came as a relief. “I hadn’t been feeling well for over six months and the scariest part is not knowing what it is or how to fix it to get better. Although it was a big shock, I was now aware of what the problem was and ready to take steps to get through it.”


    With the...

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    Category: Fundraising News | Published: 15 June 2017
  • A wedding reception with a difference

    In October of last year Leon Rushworth was diagnosed with a grade four brain tumour. He found brainstrust online when he was waiting for surgery. To help, we sent the brain box, our toolkit for people with a new brain tumour diagnosis and their carers. “I read the books to help me through everything,” says Leon. “It was very useful.”


    After the surgery, Leon struggled with fatigue, which is a real problem for people living with a brain tumour. He married his fiancé, Sara, as planned in February this year, but his fatigue meant their wedding reception had to be put on hold.


    “I had been quite tired with the treatment and original operation. I was having a conversation with Sara and my friend Jason, and Jason came up with the idea of holding an evening reception at a later date as I was too tired at the time of our wedding.


    “I thought it would be a great opportunity to hold a charity night instead, so I could give something back to those who have supported me and Sara since my brain tumour diagnosis. We knew that our friend and neighbour Becky is good at organising these things, so she joined in. And hey presto, Leon’s Charity Night was...

    Read full story
    Category: Fundraising News | Published: 13 June 2017

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